Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

msb11

I Need An Expert Opinion...

Rate this topic

Recommended Posts

Recently my oldest daughter (6 years old) and I have been tested with negative results...she has had constipation leading to vomiting issues since she was 1.5. She also has serious anxiety issues (which I have ready can be caused by Celiacs). I have extreme fatigue, easy bruising, hair loss (actually going to a dermatologist at the mayo clinic next week because my doctors can not figure out what is causing this), moderate GI issues, swelling of hands and feet, and yesterday I went to a holistic doctor and she said I have low blood sugar, am insulin resistant, and have zero mineral absorption. Also yesterday, my youngest daughter (4 years old), who has been constipated since Friday began having blood in her stool, what little was coming out. Took her immediately to the pediatrician who ordered a belly x-ray that showed no impaction...also, had her tested yesterday, but will have to wait for results.

I have been eating gluten free for a little over two weeks now and have noticed that I have way more energy...do you think we are gluten intolerant? Is there a test other than the diet?

Here are my blood test results...I can't make sense of them:

Gliadin AB, IgA: 4

Serum IgA: 180

TTG AB, IgA: <3

Thank you for any insight at all.

Share this post


Link to post
Share on other sites

When I was a little girl, I often had blood in my stool caused by fissures. These are tiny cracks in the sphincter or the skin down there, whatever it literally is. This is caused by constant constipation. Some things you can do BESIDES cure the constipation, which would obviously be the best thing, is not to use harsh soaps on the bottom. These dry out the skin further and make fissures more common.

Also, more and more I am really doubting these celiac tests. I know I'm talking out of school here, but I have met so many people who not only have symptoms, but who have gotten substantially better going gluten free, but still test out negative. The tests are not as good as your experience on a gluten free diet.

I would definitely try your daughter out on a gluten-free and dairy free diet and see if her Constipation and Vomiting get better. It can really change her life if she does not have to grow up with those things, the way I did. Take good care.

Sherri

Share this post


Link to post
Share on other sites

Also, more and more I am really doubting these celiac tests. I know I'm talking out of school here, but I have met so many people who not only have symptoms, but who have gotten substantially better going gluten free, but still test out negative. The tests are not as good as your experience on a gluten free diet.

I would definitely try your daughter out on a gluten-free and dairy free diet and see if her Constipation and Vomiting get better. It can really change her life if she does not have to grow up with those things, the way I did. Take good care.

Sherri

This can not be stressed enough. After all testing is done do get her on the diet along with yourself.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,757
    • Most Online
      4,125

    Newest Member
    Betsy17
    Joined
  • Forum Statistics

    • Total Topics
      112,047
    • Total Posts
      956,571
  • Who's Online (See full list)

  • Forum Discussions

    It is meant to be restrictive -  so you don’t run any risk of cc with gluten.  That really is the fundamental basis.  It isn’t meant to be fun or interesting.  It is meant for people who are very sick and the normal gluten-free diet isnt working.  It is a last step before medications.  It is not a lifestyle or a life long diet.  So, for those who really need it for its original intent- they are going to follow it to the letter with a doctor , who is versed in Celiac.   Lots of people try pa
    I have ataxia and for me it is a feeling like walking on a ship that is in a high sea. I had ataxia since childhood and needed canes by the time I was diagnosed. Over 40 years later... Ataxia has pretty much resoved but I did need to get physical therapy to walk normally. I don't however feel dizzy thankfully. If the dizzy feeling sticks around after your other gluten symptoms resolve it might be a good idea to see an ear doctor just to be on the safe side. Sometimes our body gets so busy fighti
Corn would not make DH flare unless it was either CC'd in processing or was contaminated through your prep and cooking process. For example grilling the corn on a grill that had gluten prepared on it previously or washing it in a colander that had pasta drained previously.  IMHO Squirmy is spot on. Give yourself some time to heal on the gluten free diet and avoid HIGH iodine sources like iodized salt, seaweed and seafood. The bit of natural iodine in veggies and fruits shouldn't be an issue. If
  • Blog Entries

  • ×
    ×
    • Create New...