Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Celiac Or Not?

norahsmommy

Recommended Posts

norahsmommy Enthusiast
norahsmommy
Posted

My youngest daughter is 12 months old. Since introducing solids it seems we have been having problems. One of the first foods we introduced was oatmeal at 6 months and Gerber puffs. She became so very constipated she would scream horribly when trying to go #2. It was awful to watch. She occasionally would have steaks of blood in her diapers and her bm smelled SOO bad. It was like a rotting dead thing. Then after the major blockage of poo she would have diarrhea for the day. Then she wouldn't poop for 8 days. It was a vicious cycle. She would scream and fuss all day and get up 8-11 times a night. I told her doc but he suggested that her digestive system was slow and she would get better once she was crawling more. She didn't. I was convinced it was food related so I took her off all solids and added them back slowly. She had no problem with baby foods we tried and then she had a cracker. She got a rash, and was obviously in pain the rest of the day, and she didn't poop for 7 days. All from 1 cracker! Then I cut out breads again and she got back to pooping normally and wasn't fussy anymore. Then I added back crackers and it happened again. It happened with puffs, bread, crackers, and also with a babyfood that contained barely flakes. So then I started to wonder if it was celiac or at least a gluten intolerance. She has been gluten free and doesn't have issues unless I mess up and feed her something that has gluten in it or I set her food down in an area that had bread crumbs or something. Its hard keeping gluten away from her. I have 2 other young kids and they are constantly dripping crumbs everywhere even if I make them eat only at the table and vacuum every day. My husband does it too. In order to make 1 sandwich he somehow manages to get crumbs on the floor and every counter surface in our small kitchen. Then he will pick up that sandwich and pick up baby and play with her while dripping crumbs. It is very frustrating trying to keep it away from her. I am not perfect and she has been getting gluten lately and is back to having constipation, though not so much pain as before when she was eating bread and crackers. I want to get her tested but I dread that she needs to be eating gluten. Any advice or tips would be great!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


norahsmommy Enthusiast
norahsmommy
  • Author
Posted

bump for info

Link to comment
Share on other sites
Jestgar Rising Star
Jestgar
Posted

Have you considered getting her tested?

Link to comment
Share on other sites
norahsmommy Enthusiast
norahsmommy
  • Author
Posted

Have you considered getting her tested?

I am going to ask that they test her at her next doc appointment on the 3rd. I don't think they will do it that day but hopefully they will schedule her an appointment soon. How long did it take to get your child tested after you or your doc suspected gluten problems?

Link to comment
Share on other sites
Skylark Collaborator
Skylark
Posted

Yes, she sounds like she has gluten issues. If she's mostly gluten-free the testing will not be reliable though. It's so hard to have to gluten challenge to get good tests.

Link to comment
Share on other sites
norahsmommy Enthusiast
norahsmommy
  • Author
Posted

Yes, she sounds like she has gluten issues. If she's mostly gluten-free the testing will not be reliable though. It's so hard to have to gluten challenge to get good tests.

I am going to be putting her back on gluten until testing is complete. I don't want to, but I do want to know what the problem is. If its NOT gluten I need to find out what it is.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,214
    • Most Online (within 30 mins)
      7,748
    Julez13
    Newest Member
    Julez13
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Constant low back, abdominal and pelvic pain!

      By cristiana · Posted

      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors.  Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps.  I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen.  I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was. 
    • cristiana
      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

      By cristiana · Posted

      HI @Kirbyqueen That's great news your insurance will be kicking in soon.  Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
    • Scott Adams
      Trying to read my lab results

      By Scott Adams · Posted

      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

      By Kirbyqueen · Posted

      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      Trying to read my lab results

      By trents · Posted

      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
×
×
  • Create New...