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Help! I Got Glutened!

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xpaperbackwriterx Newbie
xpaperbackwriterx
Posted

Okay. So two weeks ago I ate a TINY bite of chocolate cake because, initially I never thought I had Celiac Disease, just a slight gluten intolerance, so I went gluten free (i've been gluten-free for about four months now and ive felt GREAT, no adhd meds anymore or anxiety or headaches or stomachaches). I didn't think the cake would hurt me because people without Celiac can usually eat a tiny bit of gluten (when on a gluten-free diet)and be fine. Well....I think I must have Celiac. Because my main symptoms before were serious constipation, ADHD, acid indigestion, anxiety and migraines, and I just generally felt like crap all the time. I ate that gluten and the very next day I got a really bad headache, terrible heart burn, and became so incredibly constipated its ridiculous--stool softeners and eating extensive fruits and vegetable wont help like it used to. This is like no other constipation I've ever had. And its been two weeks, and I've only gone a couple times. Its becoming dangerous. PLEASE someone tell me any ideas they have about how to recover from such awful constipation. Herbs? meds? special diet??? ANYTHING?! Thank you so much!

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georgie Enthusiast
georgie
Posted

Exactly my symptoms and also why I think I am Coeliac and not just Gluten Intolerant. I know some people that are GI and they sneak bits of Gluten and do not get bowel blockages.... Miralax. Get thee some Miralax and use that. I ended up with Diverticulitis, antibiotics and a water diet for a week ... and that is not fun... and all caused by some mis labelled lollies that had wheat starch....so be careful and get to a Dr if worried. My Dr said if this had not worked then it would have been hospital and an IV.. The dose my Dr told me to take for this I should not say here - but it was a 'lot' of Miralax. Try a fluid diet and Miralax. If you go to hospital it will be similar treatment.

glutenfreesavvy Rookie
glutenfreesavvy
Posted

I am so sorry! I can relate...that's a problem I have to deal with when glutened too. At this point, this is what I'd do.

1. Eat dried fruits, like apricots & prunes

2. Lots of water - at least 1/2 your body weight in ounces - more if you're really active

3. Drink herbal tea that have senna, but be careful it can cause some cramping if you overdo

4. Take some slippery elm - it coats the gi tract & is soothing, as well.

Hope this helps...I feel your pain. :-)

GFinDC Veteran
GFinDC
Posted

Milk of magnesia from the drug store can help. I also suggest looking closely at everything you are eating to be sure it is gluten free. That includes all vitamins, meds, sodas, coffee, teas etc. Staying off processed foods for a while might help also. Being gluten free is not easy if you eat food made by other people. You really need to know what the ingredients are in everything you eat. Wash your fruit and veggies before eating or cooking them also, just in case the picked up some gluten in the grocery store during storage.

Kim27 Contributor
Kim27
Posted

Try a combination of the Miralax and Magnesium Oxide pills. You can get those at any pharmacy, even WalMart, it is usually held behind the counter but is not a prescription.

anabananakins Explorer
anabananakins
Posted

Okay. So two weeks ago I ate a TINY bite of chocolate cake because, initially I never thought I had Celiac Disease, just a slight gluten intolerance, so I went gluten free (i've been gluten-free for about four months now and ive felt GREAT, no adhd meds anymore or anxiety or headaches or stomachaches). I didn't think the cake would hurt me because people without Celiac can usually eat a tiny bit of gluten (when on a gluten-free diet)and be fine. Well....I think I must have Celiac. Because my main symptoms before were serious constipation, ADHD, acid indigestion, anxiety and migraines, and I just generally felt like crap all the time. I ate that gluten and the very next day I got a really bad headache, terrible heart burn, and became so incredibly constipated its ridiculous--stool softeners and eating extensive fruits and vegetable wont help like it used to. This is like no other constipation I've ever had. And its been two weeks, and I've only gone a couple times. Its becoming dangerous. PLEASE someone tell me any ideas they have about how to recover from such awful constipation. Herbs? meds? special diet??? ANYTHING?! Thank you so much!

I'm sorry I don't have any tips add but I hope you feel a lot better soon. Getting glutened sucks, whether it's by accident or through something like this. But I would encourage you to try and stay strictly gluten free from now on. Whether or not you have officially diagnosed celiac doesn't make much difference unfortunately to how our bodies react to it. There are people with severly damaged vili who don't have any noticable symptoms... others like me who test negative but feel amazingly better gluten free and who feel sick now at the tiniest crumb. So don't let a lack of a diagnosis downplay how much better you feel gluten free. And I really hope you feel well again soon.

cctaylor01 Newbie
cctaylor01
Posted

I don't know if anyone has mentioned this yet, because I didn't read the entire thread, but when that happens to me (as constipation is one of my major problems), I use senna. I find that nothing else works to give me relief. You can buy it in tea form (yogi, traditional medicinals and some other brands sell it) or in pill form at the drugstore. For me it takes about 12-24 hours to work but when it works, it works.

I like it because it's a natural laxative. None of the chemical laxative stuff works for me.

I hope you feel better soon!

Claire

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    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
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    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      Heat intolerant... Yikes

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
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