Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

8 Y/o Daughter Positive Blood Test


BleuPhire

Recommended Posts

BleuPhire Newbie

Since Dahlia was 2 she has had constipation and bad gas. My husband says that both of us are always complaining of belly aches but I guess it's just normal to me. She was put on Mirilax at 2 and whenever I call the dr. about blood in her stool the nurse tells me to give her popcorn and apple juice.

Her belly was hurting every night for a while so I took her to another dr. in the same practice who seems to be into promoting a healthy diet. She gave Dahlia Mirilax (at an adult dose) again and said to take her off dairy and if she kept hurting we would do an xray. The Mirilax cramped her up and gave her D which the nurse said could be from it passing around a blockage.

I don't know how we came to this decision but we took her off dairy and gluten. I have attempted elimination in the past but never stuck with it. Her belly aches went away even though she still had C. Her demeanor and attitude improved and we noticed a "change" in her. We challenged it 1 week later and her belly aches came back but thought maybe it was behavioral. Took her off again, 1 week later we challenged it without telling her and her pain came back.

I brought her back to the dr. and asked for the blood test. The dr. said she didn't know what test to write up but she would look it up. The nurse gave us the papers and said she didn't know if she had to fast before and to call the lab. We glutened her up for 1 week. Tested Thurs morning, Monday the nurse called and said she is "highly gluten sensitive".

They referred us to a dietitian but won't to a GI specialist. I asked to test my 2y/o but we keep playing phone tag and I don't think they want to. Her stools are usually pretty loose but she eats a lot of beans.

My chiro said I probably am too so for the past few weeks I have been gluten-free. I don't have insurance but could get the blood work done through LabCorp or my chiro. I havne't decided yet.

When I told my mom, she said "Oh that must have been what was wrong with you at that age. I took you to the top specialists and all they could tell me was that I was a bad mom!"

I feel like I need a new pedi dr. Or need to be a little more stern with mine. Also, the cafeteria manager at Dahlia's elementary school didn't even know what gluten was. Then she said the gravy was okay because it comes from a packet, they don't make it! I set her straight.

Thanks for listening to my story. It feels good to share it with people who understand!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shacon-bacon Apprentice

Wow, so very happy that you have found out for sure!! She will start to feel so much better once the gluten is cut from her life :) I also have an 8 y/o daughter, we are in the midst of trying to figure out of she has it to.

Thank you for pressuring the doctors to do more and find whats wrong with your daughter! You should definately get the blood test too if you can!

Link to comment
Share on other sites
celiac-mommy Collaborator

I have a 9y/o girl. She was diagnosed at age 4. We pack lunches every day and keep a snack box at school. If there's anything I can do to help on the day to day stuff, let me know, I'm a pro! :P

It's made a HUGE difference with both of my kids. Both are so healthy it's crazy--especially from where we came from...

Link to comment
Share on other sites
BleuPhire Newbie

So, I took Dahlia to the dr. today and long story short: HER TEST RESULTS WERE NORMAL!!! The nurse thought they were high (9 and dr. said 11 is high). Total miscommunication!

Overall good visit though and now I know why I was having the problems of going to a GI and getting Mila tested.

Dr. said not to go by the results though if we are having a good outcome being off gluten. I feel better. Dahlia doesn't have belly aches. Am I just searching for a cure for all my problems?

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Braver101 posted a topic in Coping with Celiac Disease
      0

      Constant sweating with celiac disease

    2. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      10

      Peripheral Neuropathy

    3. - trents replied to djmu's topic in Related Issues & Disorders
      10

      Peripheral Neuropathy

    4. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      10

      Peripheral Neuropathy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,483
    • Most Online (within 30 mins)
      7,748

    Sweet Potato
    Newest Member
    Sweet Potato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Braver101
      Does anyone else get soaking wet sweats just out of nowhere? I’m not in menopause, there’s nothing wrong with me except celiac disease and my thyroid, and I’m taking my medicine. I am 18 days gluten-free but I cannot stop sweating and it makes me freezing cold and I’m soaking wet and changing my clothes literally as I’m changing my clothes the new clothes are soaking wet and nobody will help me. Please somebody out there help me. 
    • Tlbaked13
      Sometimes I end up spitting out a drink of water! But for the most part I do ok with the liquids that I've been sticking to which Is hardly anything carbonated (meaning diet soda mainly)  I drink alot of tea which I make myself lipton cold brew sweetened with half sugar and half Splenda, smoothies when I could in the beginning but made with milk so I'm now using orange juice instead of the milk but it doesn't workout real often I drink black coffee in the mornings with no trouble usually and I've been experimenting with some juices but the sugar content is a set back I'm not a huge water fan but will drink it unfortunately where I live I can't do the tap water I'm the only one who has a problem with it apparently but for some reason I just can't...unless I'm using it in coffee or tea and the tea even took me some time to stand yes I have thought about boost/ ensure but they are very costly for someone who is scrapping the bottom at this time 
    • trents
      Do you believe your swallowing is a manifestation of your neuropathy? I'm thinking if you are having trouble getting food down you need to focus on consuming things that have a high nutritional density so that whatever you are able to get down counts for something. Have you looked at Boost and other high protein/high calorie shake products?  They are fortified with vitamins and minerals as well. Do you have any trouble with aspiration of liquids? For celiac testing purposes, the guidelines are calling for daily consumption of about 10gm of gluten - the amount in about 4-6 slices of bread - in order to ensure valid testing. That sounds like it would be a challenger for you.
    • Tlbaked13
      Thank you and I am aware that I should be eating a "normal" diet until tested it's kind of been trial and error for my diet or more like just ERROR! I about 1-3 bites a meal I'm to a point that 99 percent of the time I'm having trouble swallowing just about everything occasionally I find either something or a very small window of time that allows me to get very little of something! I am basically getting zero nutrition what so ever because I take one bite of the meal that I usually just slaved over just to end up tossing it when it's all said and done...did anyone else ever experience anything like this?  I am more then open to suggestions! It is taking a very extreme toll on me and my body forsure 
    • JustGemi
×
×
  • Create New...