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      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Frances03

Nestle Butterscotch Chips Got Me

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I dont know why I thought they were gluten free, but just wanted to post that they aren't, in case someone else should need the info. I went and got some Hershey's butterscotch chips today, which ARE safe. But I had already made some peanut butter cookies with the Nestle brand and ate some. At least I figured it out before I ate the whole bag :)

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Nestle will clearly label in the ingredient list any source of gluten. What gluten ingredient was in the butterscotch chips that we should watch for?

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They contain barley.

Here's the ingredients:

INGREDIENTS: SUGAR, PARTIALLY HYDROGENATED PALM KERNEL OIL, COCONUT OIL, LACTOSE, WHEY, NATURAL AND ARTIFICIAL FLAVORS (INCLUDING BARLEY PROTEIN), NON-FAT MILK, BUTTERMILK SOLIDS, SODIUM CASEINATE, SOY LECITHIN-AN EMULSIFIER, SALT, ARTIFICIAL COLORS (YELLOW 5 LAKE, YELLOW 6 LAKE, BLUE 2 LAKE)

and yes I know they clearly label, it was my own mistake, and I never blamed Nestle. I'm just posting this in case someone else should fail to look since most baking chips are gluten-free. These are NOT.

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oops good thing I aint used my butterscotch chips! I swear I looked it up and it said they were safe on a list of Nestle products... but maybe I misread... Well time to toss those out.... Thanks for the heads up!

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Nestle will clearly label in the ingredient list any source of gluten. What gluten ingredient was in the butterscotch chips that we should watch for?

This is not true. I just checked Nestle online (Lean Cuisine). There are two dinners that don't have "wheat" on the list of included allergens (e.g. "Contains: Wheat, Dairy"). So I was going to buy them (Chicken with almonds and a glazed chicken).

But the FAQ page says: "Q. Looking for LEAN CUISINE

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There are two things that are relevant here.

When there is a difference between the label on the product you have in your hand and any other source, believe the label on the package you have.

Most manufacturers will not claim "gluten-free" since they do not test. They use practices to clean and take precautions but since they don't test they don't guarantee gluten-free.

"Not gluten free" IS NOT THE SAME AS "contains gluten."

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There are two things that are relevant here.

When there is a difference between the label on the product you have in your hand and any other source, believe the label on the package you have.

Most manufacturers will not claim "gluten-free" since they do not test. They use practices to clean and take precautions but since they don't test they don't guarantee gluten-free.

"Not gluten free" IS NOT THE SAME AS "contains gluten."

Peter, you have good points. My points are: 1) Nestle has the ability to certify gluten-free if it wanted to; 2) I know it MAY be gluten-free or is LIKELY to be gluten-free but that is not something that I care to risk, as being ill causes all sorts of problems (missed work, missed family events not to mention internal damage); 3) I choose to support products that can confirm that they are gluten-free - the CYA statements are disingenuous and unhelpful; 4) random CC and small amounts of gluten add up.

In the case of Lean Cuisine, I would like to have a quick, healthful lunch to keep on hand. The two chicken meals that I could identify have no bread, tortillas, noodles, gravy etc. How hard would it be to make sure that the machinery was clean and the spices not CC'd and put a gluten-free label on two out of 15-20 varieties?

And taken to extreme, all companies could put CYA statements out there (chapstick is another one) and feel like they are being helpful but making life unnecessarily difficult for us.

I appreciate your input and do not want to quarrel with you but I am firm in my opinions.

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In the case of Lean Cuisine, I would like to have a quick, healthful lunch to keep on hand. The two chicken meals that I could identify have no bread, tortillas, noodles, gravy etc. How hard would it be to make sure that the machinery was clean and the spices not CC'd and put a gluten-free label on two out of 15-20 varieties?

I have the iPad app "Is that gluten-free?" it lists Smart Ones frozen meals as having a gluten-free list. It is a Heinz product. Also, Thai Kitchen has some add water and you get noodles. These are usually in the rice section at the grocery and would keep well in your car, pantry or desk at work.

There are some specialty frozen gluten-free meals but they can be $5. I have seen these Smart Ones for 4 for $5 on sale.

http://www.heinz.com/glutenfree/products.html This is a nice list of alot of products.

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i ALWAYS mess up the thai kitchen noodle things by putting too much water. I must be thai food challenged. :P

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i ALWAYS mess up the thai kitchen noodle things by putting too much water. I must be thai food challenged. :P

We need to work together . . . I never add enough water and end up with a gloppy mess. :D

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This is not true. I just checked Nestle online (Lean Cuisine). There are two dinners that don't have "wheat" on the list of included allergens (e.g. "Contains: Wheat, Dairy"). So I was going to buy them (Chicken with almonds and a glazed chicken).

But the FAQ page says: "Q. Looking for LEAN CUISINE® products which might be Gluten free. Is there a list of NESTLE® products which are Gluten free? A.Unfortunately, we cannot provide a list of NESTLE® products that are gluten free. Most of our products contain gluten or a derivative of gluten." This was retreived from the website today. Note that it doesn't refer just to Lean Cuisine but to all Nestle products.

So why would they go through the trouble of having an allergen list on the box but then CYA statement on the website? It just annoys the heck out of me.

Down with Nestle.

There are only 2 Lean Cuisine that I found that don't contain something with gluten. Though the Wheat may be distinctly labled, they are not required to distinctly lable barley or rye. I'm not sure I understand your objection. I appreciate companies that list gluten containing ingrediants, even if that means I have to read the list of ingrediants instead of just their "CONTAINS:" statement. Egads...we have some responsibility. :blink:

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In the case of Lean Cuisine, I would like to have a quick, healthful lunch to keep on hand.

I randomly pulled the ingredient list of a lean Cuisine meal. I've highlighted the things in it that make me question your "healthful" definition.

Ingredients:

COOKED CHICKEN TENDERLOINS (CHICKEN TENDERLOINS, HIGH FRUCTOSE CORN SYRUP, WATER, CORN OIL, MODIFIED CORNSTARCH, LEMON JUICE CONCENTRATE, SODIUM PHOSPHATES, SALT, CARAMEL COLOR, POTASSIUM CHLORIDE, GARLIC, ONION, PAPRIKA, SPICE), WATER, BLANCHED ENRICHED LONG GRAIN PARBOILED RICE (WATER, RICE, IRON, NIACIN, THIAMIN MONONITRATE, FOLIC ACID), GREEN BEANS, MUSHROOMS, ONIONS, 2% OR LESS OF BLANCHED WILD RICE, MODIFIED CORNSTARCH, SUGAR, SALT, CULTURED WHEY, CHICKEN FAT, LEMON JUICE CONCENTRATE, CARAMEL COLOR, DEHYDRATED ONIONS, SPICES, DEHYDRATED GARLIC, PAPRIKA.

Contains: MILK INGREDIENTS

Why not make your own and freeze it? You can leave out the extra fat, salt, and chemicals.

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I have the iPad app "Is that gluten-free?" it lists Smart Ones frozen meals as having a gluten-free list. It is a Heinz product. Also, Thai Kitchen has some add water and you get noodles. These are usually in the rice section at the grocery and would keep well in your car, pantry or desk at work.

There are some specialty frozen gluten-free meals but they can be $5. I have seen these Smart Ones for 4 for $5 on sale.

http://www.heinz.com/glutenfree/products.html This is a nice list of alot of products.

Yes, I keep the Thai Kitchen noodles on hand for emergencies. But I have an executive level job and we often order in at short notice. Thai Kitchen noodles are too hard to cook fast and really - without adding shrimp or chicken, veggies and such - aren't a full meal.

But thanks for the Smart Ones list. I'll check it out.

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There are only 2 Lean Cuisine that I found that don't contain something with gluten. Though the Wheat may be distinctly labled, they are not required to distinctly lable barley or rye. I'm not sure I understand your objection. I appreciate companies that list gluten containing ingrediants, even if that means I have to read the list of ingrediants instead of just their "CONTAINS:" statement. Egads...we have some responsibility. :blink:

That is EXACTLY my objection...they are not required to lable barley or rye. Both of those can be hidden easily in spices.

I don't want to argue but you're making it sound like I'm incorrect, and I'm not. It "may" be gluten-free but not guaranteed.

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I randomly pulled the ingredient list of a lean Cuisine meal. I've highlighted the things in it that make me question your "healthful" definition.

Why not make your own and freeze it? You can leave out the extra fat, salt, and chemicals.

With all due respect, Jestgar (you usually have a lot of good ideas) I didn't ask for a critique of my choices.

I cook 90% of my food from scratch. This is for an emergency and/or quick when I don't have time or I'm not in my office (traveling) or it's short notice. I'm an executive, I have a family, plus I teach part-time at the university level so sometimes I don't have time to cook or bring my own.

OK, I think I'm done with this thread. I'm not annoyed with this community, only with Nestle.

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That is EXACTLY my objection...they are not required to lable barley or rye. Both of those can be hidden easily in spices.

No, they can't. Both barley and rye are grains, not spices. They can not be hidden there. Seasonings, yes, but not "spices." No grain can be labeled as a spice.

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With all due respect, Jestgar (you usually have a lot of good ideas) I didn't ask for a critique of my choices.

Sorry. I didn't mean to come off snotty. :P

I don't eat anything processed except in the raresest of cases, so eating a frozen packaged meal just doesn't seem like the right choice to me. I bring frozen meals to work that I have made. I get more volume for less calories, no preservatives, and I never have to worry about contamination.

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No, they can't. Both barley and rye are grains, not spices. They can not be hidden there. Seasonings, yes, but not "spices." No grain can be labeled as a spice.

Barley malt can also hide in 'natural flavors'.

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That is EXACTLY my objection...they are not required to lable barley or rye. Both of those can be hidden easily in spices.

I don't want to argue but you're making it sound like I'm incorrect, and I'm not. It "may" be gluten-free but not guaranteed.

Never heard of barley being hidden in spices and I have yet in 9 years to find rye being hidden in anything at all. Do you have some examples of this happening?

richard

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That is EXACTLY my objection...they are not required to lable barley or rye. Both of those can be hidden easily in spices.

I don't want to argue but you're making it sound like I'm incorrect, and I'm not. It "may" be gluten-free but not guaranteed.

They DO lable when there IS barley or rye.

Nothing in life is guarenteed except death :blink:

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    Tammy Rhodes
    Celiac.com 04/24/2018 - Did you know in 2017 alone, the United States had OVER TENS OF THOUSANDS of people evacuate their homes due to natural disasters such as fires, floods, hurricanes, tornadoes and tsunamis? Most evacuation sites are not equipped to feed your family the safe gluten free foods that are required to stay healthy.  Are you prepared in case of an emergency? Do you have your Gluten Free Emergency Food Bag ready to grab and go?  
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    Connie Sarros
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    PLoS One. 2018; 13(3): e0193764. doi: & 10.1371/journal.pone.0193764

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    • I don't think that's harsh at all. There are real concerns about cross contamination in the kitchens with these "gluten-free pizzas". Even Domino's has a warning.  While the Gluten Free Crust is certified to be free of gluten, the pizzas made with the Gluten Free Crust use the same ingredients and utensils as all of our other pizzas. Read the upper left big red box which says: Domino's DOES NOT recommend this pizza for customers with celiac disease. https://www.dominos.com/en/pages/content/customer-service/glutenfreecrust.jsp
    • Hello, I can tell you a couple of things, the first of which is based on personal experience. I sometimes have an unsightly rough patch on my nose that I have been struggling with for a number of years. If I bring up the topic at the dermatologist, they tend to put me on either an anti-fungal or a steroid cream, both of which after a while I stop using. The steroid of course does "work." My skin clears up. And now with the anti-fungal, this was more interesting. It seems that whatever it was on my nose did kind of clear up, but then a patch of...something (I don't know what) would crop up just outside of the area where I had put the anti-fungal cream. That made me laugh. Next, I assumed it might have been caused by not washing my hair enough (I have dandruff and used Head & Shoulders) so I'd experiment and it would (sort of) seem that my nose was not as bad on the day after I washed my hair. But the most dramatic improvement by far has occurred since I switched from Head & Shoulders to a bar shampoo (which I do in order to get organic ingredients but more important to cut down on plastic waste). Rough patch is simply gone with no trace of it. The older I get the more I am tending to use personal care products that try very hard to be organic. Second, I read the adverse effects of dapsone, and see that exfoliative dermatitis is one of them, as is photosensitivity. Have you ruled out adverse effects? Plumbago
    • I would say to both of you to nix the iodine for 2 weeks. Look up low iodine diet on thyca.org. The other thing is - and you 're not going to like this - BUT NOTHING labeled gluten free. Eat fresh fruits & veggies, & meat & dried beans you sort, wash & cook yourselves & later, the dairy can be added back in. NO EATING OUT!!!!! Nothing from a bag!!!!! You want a snack? Apple slices, carrots, banana, fruits or even some leftover meat. If you continue to have problems after about 2 weeks of that, then you may need to have the Dapsone dose upped. You guys need to know that dh is ultra sensitive to the tiniest amount of gluten. One reason I am not a fan of people taking Dapsone is because it does control the rash & people are lulled into a false sense of security. You may be eating stuff you are sensitive to but you don't know it b/c the Dapsone is masking the reaction.  MOST of us with dh can't eat like celiacs who do not have dh; at least not in the beginning & maybe for years & years. Depends on the individual but enough of us have learned the hard way that we have to go to the maximum extreme to get relief.
    • It’s interesting I am a Dr. Of Naturopathy out of South Florida I started my own practice “My Total Body Wellness “ I do bio- energetic scans which are scans to show where your body might be having imbalances that could turn into health related issues in the future. I did scan for a few different Lyme imbalances I never knew that the hives and meat could be related. Thank you and thank you for the links I’m going to research today. Have a great day
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