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  • Recent Activity

    1. - lizzie42 replied to lizzie42's topic in Coping with Celiac Disease
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      New diagnosis for 3 year old. Help!

    2. - Scott Adams replied to MTAC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      NEW - 7 year old daughter diagnosed but 'not officially' - negligence from NHS

    3. - Scott Adams replied to lizzie42's topic in Coping with Celiac Disease
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      New diagnosis for 3 year old. Help!

    4. - MommaBear82 replied to bdot78's topic in Coping with Celiac Disease
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      Celiac Caused By Mold?

    5. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
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      Headaches / Migraines and Hypoglycaemia


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    • lizzie42
      Thank you! Hers were much higher than 10x plus positive ema. Plus anemia, rash, low vitamin d. The GI appointment isn't till middle of April but the pediatrician said to go ahead and stop gluten as there is no question. We went ahead and she hasn't had gluten for about 36 hours. This morning her rash wasn't blistery for the first morning since it started. 
    • Scott Adams
      It is shocking that you were apparently not informed about this positive celiac disease test. In the Europe the protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children!    
    • Scott Adams
      I agree with @trents and in the Europe the protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children!    
    • MommaBear82
      Just wanted to say that mold can absolutely cause the genes for Celiac to be turned on. I know from experience, unfortunately....
    • knitty kitty
      You're very welcome, @Sarah Grace, You do need a B Complex, but the TTFD is not the same at all.  B Complex usually contains Thiamine Hydrochloride (good) or Thiamine Mononitrate (bad) and the other seven essential B vitamins.    Don't get vitamins containing Thiamine Mononitrate.  This is used because it has a long shelf-life (it won't break down and become inactive sitting on a store shelf).  But that same non-reactivity occurs in the body, so Thiamine Mononitrate is not absorbed well and is difficult to utilize since it's so non-reactive.  Only thirty percent of Thiamine Mononitrate is absorbed. TTFD is a form of thiamine that was first found in garlic.  It has a fatty tail attached which allows it to enter cells very easily.  Benfotiamine has a fatty tail and gets easy access, too.  Thiamine Hydrochloride needs passive diffusion to enter cells (high concentrations outside of cells moving to areas of low concentration inside cells).  TTFD can cross the blood brain barrier by itself.  Benfotiamine and Thiamine HCl need carrier molecules to pass through.  They'll still get through, just takes longer.  Because TTFD gets into the brain so easily, smaller amounts are needed to see results.   Thiamine Hydrochloride 500 - 2000 mg/day Benfotiamine 300 - 1800 mg/day TTFD 50 - 500 mg/day  Everyone is different, so you have to find what's right for you.  I take some of each every day. Ask your supplier about Lipothiamine, also TTFD with added lipoic acid (brain likes this).   Thiamax is another TTFD brand name to look for.  I hope you can find a source! P.S. for pain, I take B12 Cobalamine , B 6 Pyridoxine, and Thiamine (Alinamin TTFD)  All together these three vitamins have an analgesic effect.  Takeda Alinamin EX Plus is the brand name of one tablet with all three in that I really like and rely on.
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