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Holding Toddler?

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I'm probably grasping at straws here, but has anyone had their infant or toddler insist on being held while you are standing? Whenever she starts feeling bad, I'm on my feet and holding her. She starts screaming as soon as I sit down. She's now 3yrs, but at 6 months old she was in the NICU for 8 days with "aspiration pneumonia" and I literally stood with her in my arms for almost the entire time. I put the diagnosis in quotations because we're still not sure this was the correct diagnosis since she had fallen off the growth charts, lost all of her hair over one weekend, screamed constantly, had explosive diarrhea several times a day, refused to eat, and randomly vomited. We started her on Neocate (elemental formula) and took her off all foods (not really at the suggestion of a dr., but more out of desperation and things slowly improved.

We've reintroduced all foods over the past year, and things have started getting bad again over the past few months. We've gone gluten free again, and I'm wondering if we should also eliminate dairy. She loves her milk, but she just had a major, fit pitching meltdown. All the while she was crying about her back and would only calm down if I was standing and holding her. She finally passed out in my arms and I was able to put her in the bed.

I feel like I've been on a roller coaster for the past 3 years, and I'm just ready to know which one I'm riding.



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I would definitely try eliminating dairy.

My 7month old will often start fussing if I sit down - it's usually if she's tired or not feeling well. There's something about the motion of standing, and the change in pressure on their bodies, that seems to make a difference.

Good luck!!

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I have to ditto Tiffany. Also, my body is short, so my grandsons get kind of squished if I sit down while holding them. They really fight that squished feeling.

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My son was diagnosed at 18 months. Pre diagnosis and during any accidents we had to hold him all the time. His favorite positions when glutenend are swinging or behind held upside down. He will sometimes allow me to put him down with a pillow under his back so that he is arched so I can use the restroom! ;) Good Luck! People don't realize how exhausting it is to have a celiac kid!!

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