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Furious With Stupid Doctors

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A gluten challenge can be dangerous. My daughter who was about 16 months at the time of the challenge ended up in the hospital for dehydration. The explosive "D" in her diapers ended up giving her a (UTI) Urinary Tract Infection. Giving her the antibiotic (that should have been gluten free) started vomitting that would not stop. She was in the hospital about 2 days and I am very lucky that at least one of the doctors from the ped's office come in to the hospital daily. So there is another doctor that is familiar with you and your child.

There was one very young and STUPID doctor that came in and tried to test her for meningitis. I don't think his name really was "Doogie Dipsh(*!" but that what he answered to that day. He verbally got it from me that day. Never showed his face again. I think I have some hospital notes about me ;) .

This dietician and doctor should have a complaint made against them. Saying a gluten free diet is a "FAD" is not acceptable. A gluten free diet is the only known medical treatment for Celiac Disease, Gluten intolerance, and Dermatitis Herpiformis. A diagnosable disease is not a fad.


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My link

In the above link I have read:

A review paper in The New England Journal of Medicine listed 55 "diseases" that can be caused by eating gluten. (iv) These include osteoporosis, irritable bowel disease, inflammatory bowel disease, anemia, cancer, fatigue, canker sores, (v) and rheumatoid arthritis, lupus, multiple sclerosis, and almost all other autoimmune diseases. Gluten is also linked to many psychiatric (vi) and neurological diseases, including anxiety, depression, (vii) schizophrenia, (viii) dementia, (ix) migraines, epilepsy, and neuropathy (nerve damage). (x) It has also been linked to autism.(ix)

We used to think that gluten problems or celiac disease were confined to children who had diarrhea, weight loss, and failure to thrive. Now we know you can be old, fat, and constipated and still have celiac disease or gluten sensitivity.

There there is:

The question that remains is: Why are we so sensitive to this "staff of life," the staple of our diet?

There are many reasons ...

They include our lack of genetic adaptation to grasses, and particularly gluten, in our diet. Wheat was introduced into Europe during the Middle Ages, and 30 percent of people of European descent carry the gene for celiac disease (HLA DQ2 or HLA DQ8), (xii) which increases susceptibility to health problems from eating gluten.

American strains of wheat have a much higher gluten content (which is needed to make light, fluffy Wonder Bread and giant bagels) than those traditionally found in Europe. This super-gluten was recently introduced into our agricultural food supply and now has "infected" nearly all wheat strains in America.

Something else interesting:

The Elimination/Reintegration Diet

While testing can help identify gluten sensivity, the only way you will know if this is really a problem for you is to eliminate all gluten for a short period of time (2 to 4 weeks) and see how you feel. Get rid of the following foods:

"Have patience with all things, but chiefly have patience with yourself. Do not lose courage in considering your own imperfections but instantly set about remedying them -- every day begin the task anew."

Saint Francis de Sales

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You could also demand a rectal biopsy and gluten challenge. It's not really used in the US, but is less invasive and does not require a challenge because the gluten is applied to the already taken biopsies.

I don't know how accurate it is.

If it makes you feel any better, my pediatrician also called my childhood vegetarian diet restrictive. Heck, my adult doctors called a low meat (but normal total protein) intake restrictive. Restrictive is not necessarily bad unless growth and nutrient intakes are affected. Your kids eat fruit and vegetables, so they're better off than many American kids! Point out that they eat grains, just not wheat/barley/rye.

2/2010 Malabsorption becomes dramatically noticable

3/2010 Negative IgA EMA; negative IgA TTG

4/2010 Negative biopsy

5/2010 Elimination diet; symptoms begin to resolve on gluten-free diet round two (10 days)

5/2010 Diagnosed gluten sensitive based on weakly positive repeat IgA & IgG TTGs and dietary response; decline capsule endoscopy.

Now, what to do about my cookbook in progress? Make it gluten-free?

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I also feel your pain. My daughter is only one and we began seeing signs of celiac very early...three months. I love my bread! When she started on solids anything with dairy/wheat were no good. More stomach issues and still has not slept through the night at 1 year. My pediatrician on her own said to cut out the dairy/gluten for a month. We did and noticed results. She wasn't in pain anymore! Still not a good sleeper but that is just her. So, next check up I asked to be referred to a GI doc and when I was there, she called him to consult on what to do/test for celiac. He said she should have not been take off gluten to begin with and now we would have to put her back on it. So, we did but couldn't last more than 5 days. Now we (living in Canada) cannot get support or join the celiac association because we cannot live with putting her in pain just for a diagnosis. There are lots of benefits to those 'members'...most gluten-free stores give huge discounts and there is lots of support locally. Not for us though.

Not fair!

Sorry...no advice other than use your parental instincts...we should be listening more to them!

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