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Hello, I Have Celiac Disease. Can I Play?


bridgeofsighs

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bridgeofsighs Apprentice

Hi everyone! I'm a 26 year old male from the Columbus, Ohio area.

I've been lurking around on this forum for a few months now, but never felt like i should get too involved with posting until i was certain that i had a problem with gluten. I knew that when i stumbled on this website and started reading about Celiac's disease, that i had a good lead on possible answers to why i was suffering from a slew of psychosomatic symptoms (depression, anxiety, ADHD, excessive mood changes, brain fog, fatigue/lack of energy, mild to severe abdominal discomfort and irregular bowel movements) that were negatively affecting my quality of life. Upon learning of Celiac and/or gluten intolerance, i decided it couldn't hurt to cut it out of my diet (along with dairy) for a few days just to see what the result would be. Well, to my surprise, after just a couple of days, i started to notice a drastic improvement. After a week or two, i got a taste of what it felt like to feel normal again. Amazing! From that point i was pretty certain that i had a problem with gluten, but needed to know for sure if it was Celiac or just a gluten intolerance. So i set up an appointment with my doctor in hopes to get tested for Celiac disease. He ordered me up some blood tests, virtually no questions asked. Anyways, to cut to the chase after all that rambling, the blood test results came back positive for Celiac Disease. Not exactly a comforting thing to hear, but at least i have the answer and hopefully now i can get on the right track to a healthier and happier tomorrow.

I look forward to becoming a regular participant of this forum and continuing to learn all i can about this disease.

All the best,

Derek


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kareng Grand Master

Welcome, Freshmeat Derek!

ravenwoodglass Mentor

Welcome to the family. I am glad you got such good results so quickly. Sometimes there can be some ups and downs at first but we are here to help in any way we can.

Soapmommy Newbie

Hello, my 13yo son has adhd and down syndrome. I became concerned with gluten issues because of concerns on how they were negatively effecting him. The food was easy for me but finding gluten free soaps lotions, and other bath products was a hunt for the needle in a hay stack, so I started making my own products for him, which turn in to me starting my own natural bath n body company. His skin is so much better but I am confident with the levels of previously untrace gluten from skin care products. Now that he is getting older i have to do more negotiation on the food but I have more wiggle room because I know for a fact that he get no gluten for unwanted sources.

Hi everyone! I'm a 26 year old male from the Columbus, Ohio area.

I've been lurking around on this forum for a few months now, but never felt like i should get too involved with posting until i was certain that i had a problem with gluten. I knew that when i stumbled on this website and started reading about Celiac's disease, that i had a good lead on possible answers to why i was suffering from a slew of psychosomatic symptoms (depression, anxiety, ADHD, excessive mood changes, brain fog, fatigue/lack of energy, mild to severe abdominal discomfort and irregular bowel movements) that were negatively affecting my quality of life. Upon learning of Celiac and/or gluten intolerance, i decided it couldn't hurt to cut it out of my diet (along with dairy) for a few days just to see what the result would be. Well, to my surprise, after just a couple of days, i started to notice a drastic improvement. After a week or two, i got a taste of what it felt like to feel normal again. Amazing! From that point i was pretty certain that i had a problem with gluten, but needed to know for sure if it was Celiac or just a gluten intolerance. So i set up an appointment with my doctor in hopes to get tested for Celiac disease. He ordered me up some blood tests, virtually no questions asked. Anyways, to cut to the chase after all that rambling, the blood test results came back positive for Celiac Disease. Not exactly a comforting thing to hear, but at least i have the answer and hopefully now i can get on the right track to a healthier and happier tomorrow.

I look forward to becoming a regular participant of this forum and continuing to learn all i can about this disease.

All the best,

Derek

Skylark Collaborator

Welcome to the exclusive online rice and potatoes club, Derek!

bridgeofsighs Apprentice
:D I lol'd, thank you for the warm welcome, ladies!

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    • trents
      Welcome to the forum, @Mettedkny! Your ttg-igg numbers are elevated but what about your ttg-iga numbers? Were your ttg-iga numbers elevated at your original diagnosis? The reason I ask is because elevated igg antibody test scores are more likely to be caused by something else besides a celiac reaction to gluten. The ttg-iga test is considered to be the centerpiece of celiac disease blood antibody testing. But some people are seronegative for the iga celiac tests, particularly if they are iga deficient. If they are iga deficient, the igg tests can be helpful. Have you ever had a "total iga" test run to check for iga deficiency?
    • Mettedkny
      Not sure where to start - been diagnosed for 17 years, and for 16 years my bloodwork has been perfect. Last May I started on HRT (estrogen patch & progesterone pill) for post menopausal symptoms, and to help with mild osteoporosis. In June my Gliadin IgG numbers suddenly went up to 59 (from previously being below 5 for 16 years). Did a deep dive on the progesterone pill manufacturer (Aurobindo) to ensure that the medication IS gluten free - and was told multiple times that there is no gluten in the pills. The pill is the ONLY thing that has changed, and my son, who is also celiac has perfect numbers.  Scoured my life to try and find out where the gluten could be coming from and the only thing I found was a tea I drank that had "possible wheat straw" (had been drinking this tea for about 5 years with no issues - and was confirmed by the manufacturer that their tea is certified gluten-free despite the "straw") - cut the tea out thinking that it MUST be the tea. Repeated the blood test 3 months later and it dropped to 55 - not indicative that the gluten has been found and removed from my diet. Had bloodwork done again yesterday and it is now 95 😳 I am completely floored. WHERE is it coming from??? I am SO careful. Would NEVER cheat, don't eat out and like I said, my son has NO issues and his number is 3 (as of yesterday). Has anyone had a problem with progesterone pills? It is the only variable that I can think of, but how do I prove that it is the problem without discontinuing to take the HRT (which I really need for post menopausal symptoms, sleep, anxiety, brain fog and hot flashes).
    • Nicbent35
      That’s a good thought, I didn’t think of that aspect of waiting longer! Thanks 
    • trents
      Thanks for reporting back @Nicbent35! You seem to understand the options and the risks. So, it is a decision you will just have to make. But you don't have to make it right away. You might consider keeping her gluten-free for a while yet. I would give it six months before considering adding gluten back in. Make sure the improvement you are seeing is due to removing gluten and not something else that will pass such that you see a reversion to former behavior and symptoms.
    • trents
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