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Hi Matilda,

I appreciated your post - it is not so academic now because I did end up with negative results, as I learnt from my doctor in a rushed phone conversation (I am getting a new doctor!). I have no idea what the values are and I think she only ordered IgA and tTG. She had done a whole bunch of tests and I am positive for hypthyroidism and a severe vitamin D deficiency. So a lot of my symptoms are explained but my GI problems remain unaccounted. I am not sure what to do now in terms of pursuing the question of celiac/gluten intolerance. Getting these two diagnoses were actually quite overwhelming. I have been feeling so unwell for so long and denying it even to myself as everyone insisted that I was a "perfectly healthy individual" that it is going to take me some time to process even this and learn what diet and lifestyle changes I need to make in addition to the best way to manage them medically.

Particularly, I'm concerned that I may have to give up soy products which I consume a great deal of as a vegetarian (almost vegan) but which I have now found lower thyroid activity and are goitrogenic. I suspect this may be harder for me than giving up gluten. I may have to get used to this first before going gluten-free.

I am now going to wait to see what the test results were and then decide whether to see a gastro for a second opinion. Does this make sense?

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Hi, I thought I would also add that my doctor had me tested through Quest which I know some people here have found unreliable as far as celiac testing goes. I was wondering if it made any sense to

1) get tested through another lab

2) take my results to a celiac disease specialist and see what she has to say

3) get an endoscopy done

4) or just skip ahead to Enterolab for stool/gene testing

Any thoughts?

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hi matilda,

thanks for responding. i am now getting tested for vitamin A deficiency to see if that is present in addition to the vit D deficiency. if both are, it could point to a fat malabsorption syndrome. once that is taken care, i will think about enterolab.

thanks so much for your wishes and your expressions of support and concern through the past couple of weeks - i much appreciate it!

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