Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

Salax

Leaky Gut Diet

Recommended Posts

Hi Guys,

I am begining to suspect I have Leaky Gut. And I am trying to find accurate resources on diet information for this. Does any one have any really good sources on Leaky Gut and the Diet? Any personal experiences with De-toxing or not? I was thinking about going Paleo anyways, but I am not sure on the fruit side of things and the whole discussion on Quinoa and Rice, do I eat them or not. I like them, they seem ok for me...but not sure where to begin.

Thanks much! :D


Salax
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Celiac Disease - Gluten Free since Feb 2009,
Cow Milk &  Corn free - June 2012,
Gall Bladder Failure - Removed July 2009,
Colitis, Hashimotos Disease, & Diverticulitis

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
( )_( )
(='.'=)
(")_(") Eat your vegetables!

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Hi Guys,

I am begining to suspect I have Leaky Gut. And I am trying to find accurate resources on diet information for this. Does any one have any really good sources on Leaky Gut and the Diet? Any personal experiences with De-toxing or not? I was thinking about going Paleo anyways, but I am not sure on the fruit side of things and the whole discussion on Quinoa and Rice, do I eat them or not. I like them, they seem ok for me...but not sure where to begin.

Thanks much! :D

Hi,

I am in the same boat. I have been gluten-free since last October, but I am sure I have food intolerances. Tried to do elimination diet twice, but I just can't stick to it! I am strongly considering going Paleo, but a "modified" version. I ate Paleo for several days last week, but was starving without a small amount of rice or white potatoes. Been looking at Robb Wolf's web site, and it is very informative on the Paleo lifestyle. Best of luck to you!

Share this post


Link to post
Share on other sites

I am watching this thread in hopes of getting some ideas/information.

I am currently doing an elimination diet,,, and the way things are looking I am going to be pretty much eating Paleo wither I want to or not


Gluten free Oct/09
Soy free Nov/10

 

Share this post


Link to post
Share on other sites

You may find this article on leaky gut syndrome helpful: http://www.allergyescape.com/leaky-gut-syndrome.html


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites

Me too :-(

As if being gluen-free wasn't enough hard work I need to heal my gut and I'm fed up, especially because I have to study it and do it all by myself, I feel like I'm climbing a mountain.

If anyone wants to study the issue or work together PM me.

Share this post


Link to post
Share on other sites

Thanks for the responses guys. I guess this is my next adventure challenge. B)


Salax
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Celiac Disease - Gluten Free since Feb 2009,
Cow Milk &  Corn free - June 2012,
Gall Bladder Failure - Removed July 2009,
Colitis, Hashimotos Disease, & Diverticulitis

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
( )_( )
(='.'=)
(")_(") Eat your vegetables!

Share this post


Link to post
Share on other sites

Thanks for the responses guys. I guess this is my next adventure challenge. B)

Why don't you choose skydiving, or something less challenging next time.......


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

Share this post


Link to post
Share on other sites

As if being gluen-free wasn't enough hard work I need to heal my gut... especially because I have to study it and do it all by myself, I feel like I'm climbing a mountain.

AMEN! I'm with you on that!

I've been on this elimination/challenge diet with a list of food allergies I tested pos. to for one year now. Got some back but gained new allergies in the process and lost some. It's a revolving door, although the gains outweigh the losses,...I think. I'm going to give it one more year with the new allergies and trying to ditch some of the repeat offenders for a longer time period and see if I can ditch them. Then I may have to come up with a new plan. I'm SO tired of thinking about EVERY thing I put in my mouth EVERY meal, EVERY day. I do feel so much better still overall so not complaining about my symptoms anymore, but it's just hard work as you said and too many restrictions.


Me: GLUTEN-FREE 7/06, multiple food allergies, T2 DIABETES DX 8/08, LADA-Latent Autoimmune Diabetes in Adults, Who knew food allergies could trigger an autoimmune attack on the pancreas?! 1/11 Re-DX T1 DM, pos. DQ2 Celiac gene test 9/11

Son: ADHD '06,

neg. CELIAC PANEL 5/07

ALLERGY: "positive" blood and skin tests to wheat, which triggers his eczema '08

ENTEROLAB testing: elevated Fecal Anti-tissue Transglutaminase IgA Dec. '08

Gluten-free-Feb. '09

other food allergies

Share this post


Link to post
Share on other sites

Why don't you choose skydiving, or something less challenging next time.......

LOL! :lol: Skydiving would actually be easier!, even for those of us who are afraid of heights!


Me: GLUTEN-FREE 7/06, multiple food allergies, T2 DIABETES DX 8/08, LADA-Latent Autoimmune Diabetes in Adults, Who knew food allergies could trigger an autoimmune attack on the pancreas?! 1/11 Re-DX T1 DM, pos. DQ2 Celiac gene test 9/11

Son: ADHD '06,

neg. CELIAC PANEL 5/07

ALLERGY: "positive" blood and skin tests to wheat, which triggers his eczema '08

ENTEROLAB testing: elevated Fecal Anti-tissue Transglutaminase IgA Dec. '08

Gluten-free-Feb. '09

other food allergies

Share this post


Link to post
Share on other sites

I'm SO tired of thinking about EVERY thing I put in my mouth EVERY meal, EVERY day. I do feel so much better still overall so not complaining about my symptoms anymore, but it's just hard work as you said and too many restrictions.

I am right there with you


Gluten free Oct/09
Soy free Nov/10

 

Share this post


Link to post
Share on other sites

:lol:

I agree Skydiving would be easier!!!

And a lot more thrilling :lol:


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites

Why don't you choose skydiving, or something less challenging next time.......

I know right. Except I hate heights LOL, so no. :P Hehe.


Salax
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Celiac Disease - Gluten Free since Feb 2009,
Cow Milk &  Corn free - June 2012,
Gall Bladder Failure - Removed July 2009,
Colitis, Hashimotos Disease, & Diverticulitis

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
( )_( )
(='.'=)
(")_(") Eat your vegetables!

Share this post


Link to post
Share on other sites

Hi,

I am in the same boat. I have been gluten-free since last October, but I am sure I have food intolerances. Tried to do elimination diet twice, but I just can't stick to it! I am strongly considering going Paleo, but a "modified" version. I ate Paleo for several days last week, but was starving without a small amount of rice or white potatoes. Been looking at Robb Wolf's web site, and it is very informative on the Paleo lifestyle. Best of luck to you!

I am halfway thru the Paleo Solution book by Robb Wolf. It is one of the most eye opening books I've ever read. I started reading it because my daughter has Celiac and her symptoms have returned after being gluten free and symptom free for a year. Our whole family is now going Paleo. It is hard and is taking some time to get used to, but I'm hoping it is the answer to healing.


Mother of a 7 yr. old with Celiac - Diagnosed Feb. 2010

Feb 2011 Started Paleo/SCD Diet for her and our household.

Daughter is gluten free, corn free, casein free, and grain free.

Share this post


Link to post
Share on other sites

Hi All-

Bumping this back to the top as I have just started full elimination diet. I was dx'd Celiac in March 2009 - was very slow to get better, but did finally improve a great deal - felt healthy for the first time in years!

Unfortunately good health only lasted about 8 months - my digestive symptoms stayed at bay for a long time with mainly fibromyalgia symptoms worsening. Over the past six months I have become very sick again - muscle/joint pain, foggy is an understatement - my brain has been mush - severe memory problems and more. During the past few months my digestive symptoms have gotten nearly as bad as they were when I was dx'd Celiac and that was pretty darn bad.

Research finally brought me to Lectin Intolerance & Leaky Gut Syndrome (which I had heard before, but I thought it was just other names for Celiac).

In the past I've tried removing nightshades and dairy, but not all the problem lectin groups at once.

I just finished two days of green smoothie detox. Today was day three - I woke up still sluggish, but a couple hours later I felt wired (like I'd had several cups of coffee). Was able to stay vertical the majority of the day and my brain is still fairly clear at 10PM!!! As of today I'm eating meat/vegies/fruit only. In a week or a month (depending on improvement) I'll start challenging each group: eggs, nightshades, nuts, dairy and grains (really hope I get rice, corn and quinoa back).

Guess I'm curious to hear from others that:

1) isolated their Lectin Intolerance with elimination diet - which groups of foods you lost or re-gained?

2) had significant healing - how long did it take?

Thanks!


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

Share this post


Link to post
Share on other sites

I am a major lectin intolerant. I am glad that I tolerate dairy lectins, because I do not tolerate corn, soy, legumes. nightshades, citrus and of course gluten. I don't believe I will ever regain soy or corn, but I have recently been eating occasional slices of Udi's bread (potato starch) without any problems, so I am going to continue testing potato. After quitting gluten I acquired lectin intolerance to nightshades, legumes and citrus. and also had problems with quinoa and amaranth during my leaky gut syndrome period. I must say I was a little slow in making the lectin connection but I fit the pattern so perfectly. The nightshades came first so they were the first ones for reintroduction testing, but I am doing it REAL slow :P - don't want to slip back again and still not confident about leaky gut 100%.

I am almost four years post gluten, but only made a determined leaky gut cure effort a year ago when I continued to come up with more lectin intolerances. Up till then I was still using digestive enzymes quite consistently. I consulted with a nutritionist (Krispin Sullivan - I am sure you have read her Lectin Report) last summer and followed her supplement recommendations and believe it has helped. All the other commercial breads are so awful and I had so wanted to try Udi's and have been limiting it to every 3-4 days. Next I will try it more frequently. :)


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites

I asked my GI Dr about leaky gut after seeing it mentioned here. She had never heard of it!

I read the article that was posted and it seems like so many things would be eliminated..I'm wondering what we COULD eat?

I wish there was a treatment center we could just go to where they'd give us our meals and and suppliments and we'd focus on doing nothing but healing! :blink:

Share this post


Link to post
Share on other sites

I found that it was the things I was eating too frequently that became a problem for me. A rotational diet where you don't keep eating the same things over and over seems to work best with a leaky gut.


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites

Mushroom-

Thank you so much for sharing - it is very encouraging to hear that you have been able to add a few things back carefully after a year.

Today - Day 4 - I feel like I'm coming out of a year long sleepwalk! I rode my bike and cleaned my kitchen - can't tell you how bad our house got over the past several months. Trying not to get too excited, but I am VERY hopeful for the first time in a very long time.

Yes, I've read Krispin's report - I'll include the link along with another that I found helpful for others reading this entry:

http://www.krispin.com/lectin.html

http://www.cutthecarb.com/how-to-reverse-a-leaky-gut-and-stop-autoimmune-diseases/

Bubba's Mom-

I'm eating meat, fruit and vegies now and will for about a month depending on improvement before I challenge each lectin group: nightshades, nuts, dairy and grains. It has been easy for the past several days, especially because I'm already seeing improvement - I'm sure I'll have a panic attack soon without rice and quinoa! As long as I improve it will be worth it as for the past several months I've had no life (about an hour in the morning functional) and had major symptoms for the past year.

Doctors can be extremely frustrating (no words to say how frustrating) with our symptoms. I've had mild versions of my Celiac and Fibromyalgia symptoms since my early 20s - took 23 years of going to docs for the same symptoms before they found Celiac - by that time I had only about 5-6 functional hours per day with severe digestive problems along with a whole host of other problems...the only thing that was "normal" about me was my bloodwork for every flipping thyroid and autoimmune disease - except celiac of course. It does seem that western medicine is starting to come around to some links between food and autoimmune disease - yet it has a very, very long way to go and such a shame that so many of us have been suffering for so long with no where to turn for help.

At least there is this forum!

:)


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

Share this post


Link to post
Share on other sites

I think we had the holy grail of bad ingredients for supper last night? It was chile with kidney beans, tomatoes, bell pepper, over pasta which was corn/rice based. Hubby put cheese on his. :o

I noticed I burped it up, which I haven't been doing with other foods lately.

I'm going to do some experimenting.

Share this post


Link to post
Share on other sites

I think we had the holy grail of bad ingredients for supper last night? It was chile with kidney beans, tomatoes, bell pepper, over pasta which was corn/rice based. Hubby put cheese on his. :o

I noticed I burped it up, which I haven't been doing with other foods lately.

I'm going to do some experimenting.

I used to love Chili - until I went gluten-free and it caused stomach upset - guess my gut was trying to tell me something about other lectins - my brain just took a bit longer to figure it out!

This diet is extreme, but I woke up this morning (day 5) ready to get out bed and start doing things for the first time in over a year!


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

Share this post


Link to post
Share on other sites

. It does seem that western medicine is starting to come around to some links between food and autoimmune disease - yet it has a very, very long way to go and such a shame that so many of us have been suffering for so long with no where to turn for help.

At least there is this forum!

:)

I wouldn't go quite so far as to say that. I still get this chilly look like "You must be whacko" if I have the temerity to mention lectin intolerance to someone with M.D. after their name (with only one exception so far and she is my cardiologist).

I think we had the holy grail of bad ingredients for supper last night? It was chile with kidney beans, tomatoes, bell pepper, over pasta which was corn/rice based.

Sounds like the meal from h*ll - all those spices, legumes and nightshades :unsure:

I used to love Chili - until I went gluten-free and it caused stomach upset - guess my gut was trying to tell me something about other lectins - my brain just took a bit longer to figure it out!

This diet is extreme, but I woke up this morning (day 5) ready to get out bed and start doing things for the first time in over a year!

Way to go, GottaSki. Either legumes or nightshades gotcha ;). I used to love chili over a baked potato!!!


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites

I wouldn't go quite so far as to say that. I still get this chilly look like "You must be whacko" if I have the temerity to mention lectin intolerance to someone with M.D. after their name (with only one exception so far and she is my cardiologist).

You are absolutely right - I've had the there is nothing physically wrong with you, so it must be mental look from doctors so many times over the years I don't think I count them. I think my thought this morning was more along the lines of docs starting (and I mean only starting) to understand that celiac isn't just a childhood illness anymore ;)


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

Share this post


Link to post
Share on other sites

I think my thought this morning was more along the lines of docs starting (and I mean only starting) to understand that celiac isn't just a childhood illness anymore ;)

Well, you're right of course -- we can't expect strides, only baby steps. And they don't have as much invested in the issue as we do


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites