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possiblyglutensensitive

So Tired I Could Sleep All Day, Ever Since Last Menstrual Period.

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OK 3 weeks gluten-free, I Thought MAYBE I was feeling a little better? The shoulder and neck pain and nausea and general stomach pains are the areas which are really noticeable.

I had my period less than 1 week ago and I have been SO tired since. Neck kinks (oh and also general back pain), depressed mood, and just lots lots of fatigue, and also pain in my hands (top of hand when I move them a certian way) and wrists, which feel like bone pain (whatever that feels like.... I know it isn,t nerve pain or muscle or tendon pain because I am pretty sure I know what those feel like).

Headaches also came back, I had a pretty bad one on the 4th day of my period, and also today.

I am not even motivated to stay gluten-free.

I really REALLY need encouragement, namely, tell me how LONG it took for symptoms to get better or go away:

fatigue?

pain?

headaches?

ETC.? (your symptoms)

when do you just loose hope? when do you tell yourself that gluten is not the issue?

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Are you anemic? If you are even borderline anemic, the blood loss from your period can put you under the functional range.

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Are you anemic? If you are even borderline anemic, the blood loss from your period can put you under the functional range.

Hi Jestar

thank yo so much for your reply. I need hope right now!

I have had iron and B12 anemia in the past confirmed by blood tests, and i had to take iron pills and get B12 shots (did nothing I was still tired).

I have also had "low iron" in the past. then the following blood tests would be normal, I don't know why.

i am now waiting for test results (taken about 3 weeks ago) for celiac (tTG) and a bunch of other things (like iron...).

Each time I have my period it's hard to climb back uphill. Sometimes I stay depressed for a good 2 weeks after. Each time I have my period I have increased pain. Only this time, BEFORE my period, my pain wasn't as bad as usual (I had been gluten-free for 2 weeks) and I felt hopeful. Now I just feel terrible. :(

I forgot to say, since yesterday I have foot pain, like pins, a bit of numbness and pain, and I hadn't had those pains since last summer when I was working long hours and exhausted. I don't get it! WHY is the foot pain back? I've been off work for a whole week! The pain is the worst when I am lying down. It woke me up last summer. Now it's not as bad as then but it still hurts.

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I don't want to dishearten you, but it took me 6 months to really start to feel normal again. I didn't even realize how good I felt until I was glutened by some vitamins and saw how far I had come. You may want to start on some vitamins, approved by your local health food store. You may be hypothyroid, anemic, b12 def, etc. There are so many diseases associated with Celiac... Just take care of yourself! Rest, drink a lot of water, and try some supplements. And remember, you're not alone!

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I don't want to dishearten you, but it took me 6 months to really start to feel normal again. I didn't even realize how good I felt until I was glutened by some vitamins and saw how far I had come. You may want to start on some vitamins, approved by your local health food store. You may be hypothyroid, anemic, b12 def, etc. There are so many diseases associated with Celiac... Just take care of yourself! Rest, drink a lot of water, and try some supplements. And remember, you're not alone!

No, no, you actually encouraged me. I need to hear how it took a while to feel better so that I WILL stay gluten-free.

I am still waiting for test results but I expect them to be negative. All the more reason why I need to hear from people who persevered on their gluten-free diet and started to feel better eventually.

I am almost a month gluten-free and I am feeling better than 2 days ago when I started this thread. i am probably low in iron which would explain why I am so drained after my period? I also have all the symptoms.

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i have been gluten free since the end of july and let me tell you: my period knocks me on my A$$ ever since! totally fatigued, cramping, D, headaches, joint/bone pain, lower backache, etc. maybe since i was feeling so many of the same symptoms from the gluten ALL THE TIME now when i feel bad from a visit from mother nature, i can notice the difference. maybe the contrast was so slight that i felt bad all the time, then a little noticably worse for 4-6 days, then back to just *bad* - if that makes sense?! anyway, i'm getting ready for a little 'down-time' and for now i can plan to get the extra rest/plan accordingly for a week or so. beats feeling crappy ALL the time :)

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i have been gluten free since the end of july and let me tell you: my period knocks me on my A$$ ever since! totally fatigued, cramping, D, headaches, joint/bone pain, lower backache, etc. maybe since i was feeling so many of the same symptoms from the gluten ALL THE TIME now when i feel bad from a visit from mother nature, i can notice the difference. maybe the contrast was so slight that i felt bad all the time, then a little noticably worse for 4-6 days, then back to just *bad* - if that makes sense?! anyway, i'm getting ready for a little 'down-time' and for now i can plan to get the extra rest/plan accordingly for a week or so. beats feeling crappy ALL the time :)

That makes sense. Have you noticed a lot of improvement (except when you have your period obviously!) since you went gluten-free? With what symptoms?

My neck and shoulders are better, but if I get too stressed (like today at the emergency vet hospital with my dog) or spend too much time a the computer, I still hurt quite a bit. And the fatigue is still pronounced, espeically if I am stressed out.

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Just wanted to say thanks guys.

I was feeling so bad today, severally exhausted after 10 hours of sleep (generally get 3-5). Splitting headache, exhaustion has ruled the last 2 days and wondered what the heck was going on.

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That makes sense. Have you noticed a lot of improvement (except when you have your period obviously!) since you went gluten-free? With what symptoms?

My neck and shoulders are better, but if I get too stressed (like today at the emergency vet hospital with my dog) or spend too much time a the computer, I still hurt quite a bit. And the fatigue is still pronounced, espeically if I am stressed out.

my neck was soooo sore (and shoulders, too, but most noticable was neck pain) i had absolutely no sense of smell, allergies (nasal, respiratory, etc) of course GI issues galore, pain at the bottom of my left ribcage (no idea) fatigue like crazy, interest in NOTHING new, old or whatever (alot of things that should have been taken care of - simple things like making a phone call or writing a letter) no appetite, my house was on bare minimum caretaking, etc. tell you what: my body was NOT FUNCTIONING - it does so many amazing things being fed the right things! i feel *shiny* (my color is improved sooo much!) and it gets better all the time. i am still amazed. every day! i might even throw the football with my grandkid if he keeps bugging me :) stopped taking my claritin d-12 b/c i don't need it anymore right now (we'll see what spring brings me) the football thing: my co-ordination is returning. stick with the diet; it means so much as far as quality of life! also, sleeping wayyy better (was a very fitful sleeper) and since i gained more weight, not freezing to death all the time. i am still affected by stress, but not by *glutened* stress :) then mother nature comes and throws that present in my lap..... lol i am due pretty soon.... if my posts my become scathing. as 'ms. b%$@#y' has awakened from her gluten coma lolol i noticed her, too. i was feeling so froggy the other day - driving the grandkid (he is 7) to his buddy's house to cookout we were chewing and snapping our bubble gum and cranking the stereo and oh, mercy, it was 60 degrees so the windows were down :) got me A SPEEDING TICKET!! first one in 15 years. that cop must've thought i was insane cuz i laughed so hard. that spunky chick has been asleep for a loong long time :D

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Glad i found this thread, because I've been gluten free for 3 months now and everytime i get a period it feels like my early periods all over again, where it's the worst pains, that i'm exhausted, headaches all day, major bloating! It's bad because it really is affecting my daily life, unfortunately i had severe pains all day yesterday, and all i wanted to do was stay in bed, but had to entertain family for 12 hours. Was actually horrible :( Maybe it is like someone else said, it feels like all the gluten symptoms again, but because they've gone almost completely from getting off gluten, it seems extra noticeable at the moment? Please tell me it calms down??

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Hey possiblyglutensensitive,

are you still eating soy and nightshade vegetables?

it wasn't until I eleminated those that the pain started going away. My periods used to put me down for several days but it's starting to ease up finally. It's taken me 2 years to get where I am at now. I'm not 100% so I figure I have another 2 to 3 years to have optimal results. You are just starting hon. Look at this like baby steps. You have just taken your first baby step. It's gonna be awhile before you can crawl. Hang in there. You'll eventually be running. :D

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