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New Info On Rash And Question About Tingles

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I've posted a few times on the rash (exzema) that I'm struggling with so thought I'd send an update. I saw Dr. Fasano and in the 5 minutes he spent with me he told me that these rashes are not uncommon as people heal from celiac. He said he'd check me for other causes of the rash after my blood tests show that the intestines have healed. Fortunately, my acupuncture treatments are helping so I'm not losing my mind with the itching.

My next puzzle is the daily tingles. I feel tingles all over, except my torso. They are accompanied by the chills. The odd part is I don't notice them on the weekend. Perhaps if I'm moving around they dont' bother me? But at work it's Awful. I've cut waaaay back on sugar and am starting to cut back on caffeine. But I'm confused. It seems like the tingles are from either sitting too much or the flourescent light or something...! It's worse in the afternoon. I've stopped afternoon caffeine and see no improvement. I will cut back to one cup in the morning and see, but I'm not convinced this will work.

Does anyone else know what i'm talking about?

thanks!

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I saw Dr. Fasano and in the 5 minutes he spent with me he told me that these rashes are not uncommon as people heal from celiac.

Interesting, wonder if he read that somewhere, or it's from his personal experience. In my opinion, the current strict definition of "Dermatitis Herpetiformis" - "water blister like rash covering elbows, knees etc etc" doesn't really cover the wide range of itchy rash that can attack gluten-intolerant people :P

Anyway, about the tingling... Tingling could indicate neurological damage to peripheral nerves, which can definitely be caused by gluten. Do you have numbness with that?

It can be poor circulation - you said that getting up and walking around helps?

It can be a pinched nerve radiating pain - a neck injury may cause you to feel numbness anywhere along your arm or hand, while a low back injury can cause numbness or tingling down the back of your leg.

Do you have a gluten-free vitamin and mineral supplement - often gluten-intolerant sufferers have poor absorption of nutrients until they've healed completely.

Here's a bigger list of what tingling could mean. If it continues, I'd advise seeing your GP for a medical opinion ;)

Medline link on tingling


Feb 2010 - Start of continuous GIT problems and panic attacks

July 2010 - Blood and biopsy -ve, went gluten free after testing which completely relieved symptoms

July 2011 - 1 year gluten free, food intolerances (Chicken, eggs, olives, goat milk) gone!

2012 - Soy no longer a problem

*************************************************************

Gluten intolerant

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My next puzzle is the daily tingles. I feel tingles all over, except my torso. They are accompanied by the chills. The odd part is I don't notice them on the weekend.

Is your work environment really cold? :P

Taking any medication - could be a side-effect?


Feb 2010 - Start of continuous GIT problems and panic attacks

July 2010 - Blood and biopsy -ve, went gluten free after testing which completely relieved symptoms

July 2011 - 1 year gluten free, food intolerances (Chicken, eggs, olives, goat milk) gone!

2012 - Soy no longer a problem

*************************************************************

Gluten intolerant

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I've posted a few times on the rash (exzema) that I'm struggling with so thought I'd send an update. I saw Dr. Fasano and in the 5 minutes he spent with me he told me that these rashes are not uncommon as people heal from celiac. He said he'd check me for other causes of the rash after my blood tests show that the intestines have healed. Fortunately, my acupuncture treatments are helping so I'm not losing my mind with the itching.

________________________________________________________________________________

I am strugling with a new rash now after being gluten free for 7 months. Did Dr Fasano think you have DH rash or exzema and does he think that exzema is common in Celiacs. Also the blood work doesn't tell if your intestines are healed. They only tell if you are on the right track as far as diet is concerned. My blood work shows I am on the right track but my rash is getting worse. Sorry I can't help you about the tingling.


Dx Celiac July 2010 by Endoscopy biopsy- had Endoscopy for another reason, not for possible Celiac

Lactose intolerant discovered August 2010

Hypothyroid Dx 2009. Sleep Apnea 2005

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Thanks for your thoughts!

I'm not sure about Dr. Fasano's source but I'm guessing experience since he specializes in celiac.

As for the tingling, thanks for your ideas. I had not considered mold but that's a definite possibility. I'm not the only one who feels a bit icky in this building. In the last few days the tingles have been decreasing. it does seem that either caffeine, sugar or the combination aggravate it. But it could be that the soy, nuts, etc that I took out of my diet was the culprit. Or I'm catching a break for a bit :)

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