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Poll- How Tall Are You?


Cinnamongirl

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Cinnamongirl Rookie

I've read celiac disease may cause people to be shorter than they otherwise would be. I'm 5 feet tall and wonder if I lost some height because of it. Anyone else feel this way and want to post their height?

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  • Replies 57
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Emilushka Contributor

5'6". I was diagnosed at 27 years old.

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RideAllWays Enthusiast

I'm 5 feet tall.

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Wenmin Enthusiast

5' 2"

Diagnosed in 2008 at age 42

Wenmin

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Lisa Mentor

5'8, but beginning the decline. <_<

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jerseyangel Proficient

5' 3" :)

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celiac-mommy Collaborator

DD's 9 years old. She's about to hit 5 feet any day. She was diagnosed at age 4. Son is over 44" and 5 years old which is about the 75% for his age. He was diagnosed at 2. But I'm 5'11" and hub's 6'5". I'm the shortest 'kid' in my family but I don't have Celiac...

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diane64 Apprentice

I am 5 foot 9. Imagine how tall I'd be without celiac? I wonder!

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MelindaLee Contributor

I'm the shortest in my family at 5'2"...my next sister is undergoing testing now, and is the next shortest at 5'3". Interesting question! My DS is 5'10" and celiac, my other DS is 6'4" and not celiac. :blink:

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mushroom Proficient

5'7" - shrunk 3/4 of an inch. Self-diagnosed 3 years ago.

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eatmeat4good Enthusiast

I'm 5 feet tall.

Been 5'1" all my life until last Dr. visit when they said I am now officially 5 feet o inches.

What????

I guess those 7 years undiagnosed took a toll.

This is interesting.

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okieinalaska Apprentice

5' 6 and a 1/2. Just recently diagnosed at age 42.

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IrishHeart Veteran

interesting poll!

I am just 5'4"... which is a bummer because I wanted to be a professional dancer, but was too short:<(

My sister, who I think may be celiac, too is 5'3".Brother 5'9" Dad was 5'8" and Mom 5'3". None of us are very tall.

I was just DXed at age 53 after a long illness and a lifetime of issues I can now link to this.

Hubby, however, is 6'3"...he's our family giant :>)

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bridgetm Enthusiast

I don't come from a tall family. At 5'6" I'm the tallest in my house by 2+ inches. Would have grown taller if not for steroid asthma meds all through childhood. No obvious gluten-intolerance symptoms until last year.

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mcc0523 Newbie

I'm the shortest one in my family, besides my mom. Dad is 6'2", Mom is 5'4", youngest brother is 5'10", oldest brother is 6'5", and my sisters are both 5'11". I was 5'6" at my tallest, but I'm now down to 5'5", and I'm only 25... I have osteoporosis, so the height loss scares me a bit. I hope that I'm able to reverse some of the bone loss just by being able to absorb vitamins and minerals again now that I'm gluten-free.

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notme Experienced

5'8" at the last check - anybody's shoe size shrink?? i used to wear a solid 9 sometimes 9 1/2. now i am 8 1/2, sometimes 8?? maybe i should double check my height.....

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rosetapper23 Explorer

I'm 5'8-1/2", and I was diagnosed at 47. My son, who was diagnosed at almost 16, was supposed to end up between 6'5" and 6'8", but his celiac was triggered when he was 11. He began to lose ground with his height--he was usually the tallest in his grade, but by the end of 8th grade, he was not even one of the tallest in his class. He ended up at 6'3-1/2". I think celiac definitely affected his adolescent growth.

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HS7474 Apprentice

I'm 4'11". My mom is 5'3" and dad is 5'6". Sister is 5'2". All are non-celiac. My brother, who I suspect may have celiac, is 5'10".

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lynnelise Apprentice

I'm 4'11. My mom used to be 4'10 but she's got osteoporosis and has shrunk a bit! My dad is only around 5'6. I had stomach problems my whole life but only figured out the gluten connection a year and half ago!

My daughter made it to 5'3 (her dad is 6'3) but at 15 she seems to have stopped growing. I suspect she has celiac but her bloodwork was negative and she refuses to try the diet! (Teenagers! <_< )

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K8ling Enthusiast

6'1" and I am the short one in my family. My dad has celiac as well and he is 6'4".

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srall Contributor

I'm 5'7" but I think my height is pretty normal considering the rest of my family. I am the shortest one though. Not that 5'7" is short by any means. My 7 year old however is TINY and always has been. (She's been gluten/dairy/corn free since October) Until I realized what was going on I was completely flummoxed because of my height and my husband is 6'2". Now it kind of makes sense and it might just be my imagination, but I feel like she might be starting to catch up a little.

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ravenwoodglass Mentor

I'm 5'2" doctors told my mom when I was two that I would be 5'8". Some sort of calculation they do with thigh bones. I have very long legs but a shortened trunk. My son is 5', he became celiac in infancy and has shortened thigh and upper arm bones, my DD is 5'4" she was hit with celiac as an early teen, we were told she would be tall but stopped growing at around 12 or so but has normal proportions. My Mom was 4'11", size 2 shoe as an adult. She, like myself, became celiac in childhood when DH appeared.

I think how much impact celiac has on your height depends on when it was triggered. Those who are triggered later in life have a better chance of fulfilling their growth.

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Fire Fairy Enthusiast

5'5. I have an aunt who I strongly suspect has celiac who has lost a lot of height, she can't really stand straight anymore. Sadly she will never change her diet.

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ravenwoodglass Mentor

5'8" at the last check - anybody's shoe size shrink?? i used to wear a solid 9 sometimes 9 1/2. now i am 8 1/2, sometimes 8?? maybe i should double check my height.....

I lost a full shoe size also but in my case it was from getting rid of full body edema. I now wear the same shoe and clothing size I did in my teens.

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Googles Community Regular

I'm 5'7" and the shortest in my immediate family. :( Wish I was taller.

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    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
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