Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Reducing Gluten Vs. Gluten-Free? (New Member)


anna34

Recommended Posts

anna34 Enthusiast

Hello, and thank you for the information provided to me so far.

My daughter's blood test results have prompted the GI to do the biopsy/scope next week. While we're waiting, my husband and I have been discussing how things will change if it comes back positive for celiac. I'd like to know if someone who has celiac must go completely gluten-free to get better, or can reducing the amount of gluten in one's diet help?

Also, if one is "gluten sensitive" rather than celiac, would reducing the amount of gluten in one's diet perhaps work?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Gluten has to be avoided completely if one is Celiac or gluten intolerant.

Even the dust of flour on a counter can make you ill if you are Celiac or gluten intolerant.

Cross contamination is a big issue that must be avoided.

Accidentally ingesting gluten can make us very very ill.

You will find that you or your child may become hypersensitive to even trace amounts of gluten once you have been gluten free for a time.

Although there are some people who have no symptoms when they ingest gluten, that seems to be the exception rather than the norm. Avoiding cross contamination is no small task. Yet it absolutely must be done if your child is Celiac or gluten intolerant.

No taking buns off burgers and eating the meat.

No eating toppings off pizza and leaving the crust.

No occasional cookie....

These things would be causing gluten ingestion which will cause damage to Celiacs, or symptoms for the gluten intolerant.

It is hard to think about avoiding it entirely, but it is absolutely necessary for the health of your child if he/she is Celiac or gluten intolerant.

The kitchen would need to be cleaned of gluten, Teflon pots and pans that are scratched need to be replaced.

Medications and vitamins need to be checked.

The more meticulous you are the better the health of the gluten intolerant person.

Having said that, there are degrees of sensitivity to gluten.

But the science and general consensus shows that even trace amounts need to be avoided.

Best of luck

Link to comment
Share on other sites
Happyw5 Explorer

I am allergic to wheat and gluten sensative, I avoid gluten completely. It has only been a month for me, but it is getting easier every day. If she has celiac or gluten intolerance you have to avoid it completely. It will be hard at first but once she realizes how good she starts feeling it will be worth it. I have 5 small kids and in my home we are all eating gluten free except our bread and a few snacks(because it is so expensive). They have not even noticed-they actually like everything better then I do. I make everything homemade now and it is getting very easy...I proudly made chicken strips from scratch that were amazing and I make awesome choc chip cookies!!! Good Luck--and you can do this!!!

Link to comment
Share on other sites
anna34 Enthusiast

Thank you. I assumed that once one goes gluten-free they would become more and more sensitive to it and it will need to be eliminated completely.

Link to comment
Share on other sites
ravenwoodglass Mentor

Thank you. I assumed that once one goes gluten-free they would become more and more sensitive to it and it will need to be eliminated completely.

Yes that does happen but that is the bodies way of protecting us. Celiac or gluten intolerant the body is forming antibodies that can attack any organ including the brain. Even if the biopsy is negative with positive blood tests she need to be strictly gluten free. You should also have all first degree relatives tested whether they seem to have symptoms or not. Some folks have organs other than the GI system effected first, like joints, gallbladder, liver etc. It might be helpful to make your home gluten free or at least restrict gluten items. Whole unprocessed naturally gluten free foods will help her heal the quickest.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,226
    • Most Online (within 30 mins)
      7,748

    NYKaren
    Newest Member
    NYKaren
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...