• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
MEH

So Far.......so....weird?

Rate this topic

Recommended Posts

I was once diagnosed with Multiple Sclerosis and for years believed I had MS. I have B-12 deficiency, too, and must do monthly injections. I have asmthma. And acid reflux. I have been to every doctor and had every test. I've had aches and pains, blood sugar issues, brain fog, irritability, bloating, fatigue and insomnia for so long that I don't know what life is like without it.

It only occcured to me a few weeks ago that this could ALL be wheat related when I realized on a few separate occassions that sandwich bread and pizza made me brain fogged, sick and gassy.

So, as an experiment, I gave up wheat for a few days. And my whole life changed. Over night. Maybe instantly. No more brain fog. No more gas. No more bloating. More energy. Reduced acid reflux. I'm breathing better. I'm not feeling crazy and moody! The list goes on.

I was on the Montel Williams show once for a piece I wrote on MS! I was very active in the MS community. But I started to realize after several years that it must be something else...my issues didn't seem to follow an MS-like pattern.

Why did not ONE doctor in the last twenty years mention wheat sensitivity? And with all the research I've done, why didn't it occur to me? I literally had no idea this might be a problem, and yet everything I look up in regards to wheat sensitivity, I see my own symptoms time after time.

I haven't felt well my whole life! And now, at the age of 48, I am suddenly getting it?

I plan to continue to be gluten-free for two months..and by then, I am sure I will be able to self-diagnose to some degree. I am not sure that I want to be gluten-challenged because even after a week without gluten, I know I never want to feel the way I used to!

But, right now I am feeling mad.

If I could only recount the hours I spent, the money I spent, the time and effort and tears and difficulty...and the whole time....it was an allergy, maybe?

I have lost years here.

Days when I couldn't think straight and then the next day I'd be better.

Weeks lost. Months lost. Years lost, when I add them up.

If this indeed is what is wrong with me.... I vow to spend the rest of my life educating doctors!

For now, I can't tell you how nice it is to look down at my stomach and not look four months pregnant!

Lighter on my feet today.

Lighter in my life.

  • Upvote 2

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


CONGRATULATIONS!!! MEH. It is an amazing experience when the light bulb suddenly illuminates the room, isn't it? And so frustratingly maddening to think of all that lost time, all that darkness, all that suffering, all those wasted doctors' visits, grrrr... but yes, lighter on your feet, lighter in your life, let's focus on the joy of discovering the true nature of your malady, and the easy cure for it :rolleyes::D

But good luck on the educating doctors bit :o ; I know you're only 48, but I really don't think you have enough years left :lol:

  • Upvote 2

Share this post


Link to post
Share on other sites

Oh I know how you feel. Believe me. There are days when I want my childhood back. I was sick all the time, had the same doctor for 4 years and he never once bothered to do his job. Just kept saying "eat more fiber." or yelling at me to stop throwing my Metamucil down the drain when my Mom wasn't looking. :angry:

He's dead now or I'd have more than a few choice words for him I can tell you.

MS is caused by gluten. As are all auto-immune disorders as near as I can tell from my many, many months of arduous research. I can only conclude that Doctors don't want to hear it because it isn't a pill and it goes against the mantra of wheat being the staff of life.

Don't give up on the MS community! If you were active go there and spread the word about how they can get well. Tell them your story and help to get them off the drugs and the poison!

Check out this blog by the Gluten Doctors for more on this.

And here she postulates as to why it is so commonly overlooked.

I really think gluten is poisoning all of us, some just take longer to show symptoms than others. Depends on how stressed the body is and your genetics. Cancer and Heart Disease are now being linked to this stuff too.

Congrats on figuring out gluten was killing you. Now for the fun part of watching yourself age backwards. B) Pretty nifty.

I know you're only 48, but I really don't think you have enough years left :lol:

Mushroom that cracked me up. :lol:

  • Upvote 2

Share this post


Link to post
Share on other sites

I am glad you figured it out. I was thought to have MS and a slew of other things also. I was the about same age as you when I was finally diagnosed. I would love to write to all my old doctors but as of yet, over 8 years later, I am still to angry to do so. Be sure you are avoiding wheat, rye, barley and oats and not just wheat. If you still have contact with Montel you might want to clue him in on the possiblity also. Ask any questions you need to here and do be aware that some ups and downs are common in the first weeks.

  • Upvote 1

Share this post


Link to post
Share on other sites

it was suspected at one time that I had early signs of MS too. It is crazy all the things gluten can do to your body!

Share this post


Link to post
Share on other sites
Ads by Google:


Yiu have a wonderful story,but I agree doctors just don't understand or maybe don't care to. Please continue to educate anyone who will listen. You are proof that happy endings do happen but everyone must take charge of their own being. We are the ones who know how we feel not the doctor...

You are so blessed & I wish you continued health...Itoo was given a very negative result from alot of testing & illness through the years ALS. I went gluten-free & have never been better but the other autoimmune goodies are catching up with me from the wrong dx years ago...

Blessings to you

  • Upvote 1

Share this post


Link to post
Share on other sites

Oh, I heard that also, more than once, that it was likely MS. :angry: It was on one of the MS alternate natural therapy type boards (you know, the ones the medical and pharma professions really hate) that said some forms of it seemed to respond to a grain free diet. Unfortunately I lost the bookmark a few years ago and can't find the blog again, there are a lot of other supposedly good for MS diets out there now and of course they are all different and all "controversial."

The same thing with the sero negative arthritis boards. What the two diseases have in common is that both patient populations seem to come from peoples who descend from those living closer to the Arctic circle in the past - Northern Europeans and the like - introduce them to the standard westernized, high wheat diet and things tend to go to hash with the auto immune problems.

Share this post


Link to post
Share on other sites

I can so relate to this post. I was through the 'wringer' so to speak for years, sick as a child all the time. I thought everyone had nausea all the time when they ate so I didn't complain. I'm 53 years old and was diagnosed 3 months ago. I haven't felt this good in my entire life. I would love to rant and rave at the doctors too but have decided that I have a whole life to live and things to do that I couldn't do before. No more muscle pain, no more nausea, stomach pain or bowel issues. I can go where I want and do what I want and this is precious to me as it is to you too.

We should have a 'Diagnosed Later in Life' club and go on an annual gluten free cruise to celebrate getting our lives back (or starting them finally pain and sickness free). :P

Glad you finally found something that works for you... hang in there it gets better every day!

  • Upvote 1

Share this post


Link to post
Share on other sites

We should have a 'Diagnosed Later in Life' club and go on an annual gluten free cruise to celebrate getting our lives back (or starting them finally pain and sickness free). :P

Sign me up, especially if there are some older unattached nice guys that are going. ;):D

  • Upvote 2

Share this post


Link to post
Share on other sites

I so relate. A year before I finally figured out I needed to be off all trace gluten, I was diagnosed with having reduced myelin sheath (down to 50% of what is normal). Before I went off trace gluten I thought I just had a gluten "allergy." I experimented by going off all trace gluten that I could think of that I might be in contact with, and soon discovered I felt so much better!! Of course this in itself was a learning curve.

Soon I also discovered that when I got "cross contaminated" (CC) with gluten, it gave me diarrhea and migraines, and if often enough, it made me weak and more prone to get bacterial infections. After a rocky first six months, I now rarely if ever get ill except again if I get CC'd. Unless I am with my family, or around certain building materials or go to the wrong restaurant, I am fine--and actually more than fine, in peak health!!

So yes it is so very worth it. Like so many of us here I had a life of constant lingering illnesses and weak, achy joints and nerves.

I also recently discovered that I am intolerant of salicylic acid found in many fruits, vegetables and herbs. Being off salicylic acid as well as gluten etc. is making a huge difference in healing my nervous system. Others here have similar sensitivities to casein or soy etc. It is again so very worth finding out about these sensitivities as well as the gluten problem. I applaud your realization and wish you a wonderful journey towards increased health.

The more of us that spread the word meanwhile, the better. And yes do tell Montel!! Plus yes it would be fantastic idea for many of us to celebrate our renewed health together somehow, whether on a cruise ship or some other venue, perhaps in many parts of the country. I think t here a re more of us now who know about this road towards health than there were just five years ago. We should start to think of ways to become more visible to each other just because its a life affirming idea!

Bea

  • Upvote 1

Share this post


Link to post
Share on other sites


Ads by Google:


We should have a 'Diagnosed Later in Life' club and go on an annual gluten free cruise to celebrate getting our lives back (or starting them finally pain and sickness free). :P

I'm already packed - let's go!

  • Upvote 1

Share this post


Link to post
Share on other sites

WOW! What a wonderful post - if this is truly what is causing your poor health and you get organized to educate doctors PLEASE sign me up! I had an oncologist that was convinced I had lymphoma, scared the bejezzus out of me and my family. I even asked her if it could be Celiacs, asked her to run the tests TWICE! She refused, she was so sure I had cancer and started the chemo process. I went to another oncologist who listened to me and it turned out to be Celiacs!! I would love to help educate the medical community. My new GI doctor even said that most of his Celiac patients know more about it than he does, just the nature of people with a gluten sensitivity I suppose!

  • Upvote 1

Share this post


Link to post
Share on other sites

The more of us that spread the word meanwhile, the better.

So, so true. I've had this thing since I was in my teens and wasn't diagnosed until I was 38. Then my daughter wouldn't have been diagnosed except we insisted she be tested after my diagnosis. Add on to that the kids of numerous cousins of mine who are all having stomach pain and their doctors ALL have told the parents that their kids are just suffering from 'stress' about school. :angry:

22 years and the doctors are STILL screwing this up!

I think the only way I cope with the anger sometimes is that I decided to be completely overly-chatty and spread the word. constantly. Any time I hear someone talking about aches and pains, stomach pain, exhaustion, depression, etc... I mention celiac disease. I don't say they have it, but I mention it as something they might like to look into. I have brief 'advocacy moments' on blogs that have nothing to do with health or personal stuff. I talk to cashiers about it when they see me buying specialized products for the kids.

Every chance I get, I'm spouting off about this. And I'm sure I annoy the heck out of some people. Sure of it.

But I've also had a number of people come back and say thank you, because gluten WAS their problem. One woman had essentially given up, she'd been so sick for so long and every last test came back negative. She figured she would just die fairly young. And going gluten free was all it took to suddenly feel alive again.

I figure even if it's only a few people, it's still something. It's the rest of their LIFE, and that life is not going to end prematurely because now they finally have a fighting chance. And sometimes, it STILL makes me mad, because it's obvious that doctors failed these other folks, too.

But at least I can think: the docs failed them, but the celiac community didn't. That's something, and it's a good something.

  • Upvote 3

Share this post


Link to post
Share on other sites

I've had "possible MS" mentioned to me, by doctors and other MS patients. I had the "walk", stiff and shuffling of feet. I have a borderline-Chiari malformation, which can cause symptoms that are similar to Celiac/gluten-intolerance, and if I hadn't gone gluten-free, I would have probably had surgery by now. I'm so glad that I had others in my life talk about their own issues with gluten, and eventually convince me to try it, just try it for a few weeks, and see what happens. And I am NOT going back on gluten, not on purpose (I've been cc'ed yesterday... oh I forgot how much the stomach pain SUCKED!)

I have been talking about Celiac and gluten-sensitivity to others. I know my parents could benefit greatly from a gluten-free diet... plus they wouldn't be as likely to cc me. My best friend has gone gluten-free, and he hasn't felt better in years. He is also trying to convince his parents to do so, as they are VERY addicted to the stuff. I'm sure I annoy people... "Oh no, it's the "gluten-free" girl again! Run, HIDE!" But I hope to at least plant seeds, like others who have had Celiac/gluten-sensitivity have done for me in the past.

  • Upvote 3

Share this post


Link to post
Share on other sites

I was diagnosed 2 weeks ago by my new internist. She actually LISTENED to my loooooong history and immediately said "I'm going to test you for Celiac/Sprue." Came back positive and I am now on a gluten free adventure!

Talk about being misdiagnosed for years? I will be 72 years old in a few weeks and have been sick much of my life!!!!

Hindsight is 20/20.

Thanks for all the support and answers I've already found on this site! I'll be around a lot!

Gentle hugs around the room!

Mary Ellen

  • Upvote 1

Share this post


Link to post
Share on other sites

I was diagnosed 2 weeks ago by my new internist. She actually LISTENED to my loooooong history and immediately said "I'm going to test you for Celiac/Sprue." Came back positive and I am now on a gluten free adventure!

Talk about being misdiagnosed for years? I will be 72 years old in a few weeks and have been sick much of my life!!!!

Hindsight is 20/20.

Thanks for all the support and answers I've already found on this site! I'll be around a lot!

Gentle hugs around the room!

Mary Ellen

Welcome to the board. Gee I thought I had the record for misdiagnosis at over 40 years! :blink: I am soooo glad they finally figured this out for you. It is a big change but it will be so worth it. Ask any questions you need to and I hope you heal quickly.

  • Upvote 1

Share this post


Link to post
Share on other sites

Yup, for every person who scoffs and thinks you are a nut-case there is another who listens and gets their life back.

Worth annoying a few folks I think. :) I'm sure glad my cousin talked to me, even when I did not immediately want to hear it. It did sink in and life is so much better now. B)

Share this post


Link to post
Share on other sites

I am really enjoying reading the recent comments on this thread. Sometimes I feel a little overwhelmed since a number of my siblings are in denial about their likely gluten intolerance -- and my mother is adamant in insisting she outgrew celiac/sprue when she was 18. I just can't change them. They would have to want to and they don't and won't. however there are plenty of other people I have helped--including my boyfriend and by extension several members of his family as well as some of his associates. His symptoms were more migraines and ADHD. His father had DH and treated his symptoms by drinking too much alcohol.

The lesson is those who listen will and those who won't won't--however the benefits of the crowd that listens far outweighs those that think we're nuts. And honestly the proof is in who is healthier and happier after all.

Bea

  • Upvote 2

Share this post


Link to post
Share on other sites

Add me to the group! :D

A lifetime of clueless doctors, horrible pain, illness, miscarriages, surgeries, "oh, it's JUST IBS--take these drugs", "oh, it's probably fibro--take these drugs"...severe sudden weight loss, hair loss, lost muscle mass, teeth yellowing decaying rapidly, osteoarthritis...on and on...one doctor put me on METHOTREXATE because he insisted I needed it to feel better(despite no RA or lupus ) I was so desperate for relief from the pain, and at my family's urging, I reluctantly tried it and was sick and lived in the bathroom for a week. Another wrong road.There's more-- but why preach to the choir?--you have all LIVED it!

I aged ten years in 2. No one could explain why I was deteriorating in front of their eyes?

THOUSANDS of $$$ spent on treatments, doctors, supplements, MRIs, XRAYs, Scans, scopes,pain clinics, ANYTHING to get well....nothing worked.

I've been poked, prodded and given dangerous drugs that did nothing except cause MORE pain and suffering.

Nothing changed...I got worse!!... until I couldn't think straight or sit, lie down or stand without searing pain...I was in hell.

Until I diagnosed myself and had a GP doc confirm. (this is after asking repeatedly for 1 year for someone to hear my pleas about celiac and having a NEG panel)

gluten-free and 6 weeks later, and I no longer have raging anxiety or brain fog that scared me to death. I have so much HOPE now!! :D

ANGRY at the medical profession for years of misdiagnosis? YOU betcha!

But I offset that anger by educating others on the dangers of gluten. My own family has been the hardest to convince and they are all burdened with autoimmune diseases. They are all in denial. When I am truly healed, maybe they will see the light.

Fortunately, despite the pain, illness and fear, I had a great husband to support me. I know how blessed I am, believe me!! And above all else, I never lost my desire to get my life back or my sense of humor...although most days, it wasn't very funny at all. Some days were very dark. When I say I will write a book, I mean it. People need to know what's killing us all.

All of you are my inspiration!

When you arrange that cruise, please count me in!! LOL

hugs to all!!

  • Upvote 2

Share this post


Link to post
Share on other sites

congratulations :) to everybody! i just turned 48 last week (misdiagnosed for 25 years) and have been gluten free since july - i feel *awesome*!!! i can't tell you how many people have come up to me and told me how wonderful i look! (now, i'm taking this as a compliment lol i must have looked awful before) people ask me "did you color your hair?" "what's different??" etc - sunday my daughter told me i look 10 years younger :) yes, i missed alot of time being sick for no apparent reason... but i'm better now so i'm not going to be wasting any more time pining or being angry - woohooo i feel great!! :D ps - didn't notice how bloated i was until it disappeared.... pps - i can go on that cruise if it's FREE lol

  • Upvote 3

Share this post


Link to post
Share on other sites


Ads by Google:


I was once diagnosed with Multiple Sclerosis and for years believed I had MS. I have B-12 deficiency, too, and must do monthly injections. I have asmthma. And acid reflux. I have been to every doctor and had every test. I've had aches and pains, blood sugar issues, brain fog, irritability, bloating, fatigue and insomnia for so long that I don't know what life is like without it.

It only occcured to me a few weeks ago that this could ALL be wheat related when I realized on a few separate occassions that sandwich bread and pizza made me brain fogged, sick and gassy.

So, as an experiment, I gave up wheat for a few days. And my whole life changed. Over night. Maybe instantly. No more brain fog. No more gas. No more bloating. More energy. Reduced acid reflux. I'm breathing better. I'm not feeling crazy and moody! The list goes on.

I was on the Montel Williams show once for a piece I wrote on MS! I was very active in the MS community. But I started to realize after several years that it must be something else...my issues didn't seem to follow an MS-like pattern.

Why did not ONE doctor in the last twenty years mention wheat sensitivity? And with all the research I've done, why didn't it occur to me? I literally had no idea this might be a problem, and yet everything I look up in regards to wheat sensitivity, I see my own symptoms time after time.

I haven't felt well my whole life! And now, at the age of 48, I am suddenly getting it?

I plan to continue to be gluten-free for two months..and by then, I am sure I will be able to self-diagnose to some degree. I am not sure that I want to be gluten-challenged because even after a week without gluten, I know I never want to feel the way I used to!

But, right now I am feeling mad.

If I could only recount the hours I spent, the money I spent, the time and effort and tears and difficulty...and the whole time....it was an allergy, maybe?

I have lost years here.

Days when I couldn't think straight and then the next day I'd be better.

Weeks lost. Months lost. Years lost, when I add them up.

If this indeed is what is wrong with me.... I vow to spend the rest of my life educating doctors!

For now, I can't tell you how nice it is to look down at my stomach and not look four months pregnant!

Lighter on my feet today.

Lighter in my life.

Your story hits a nerve for a lot of people. It takes a long time for most of us to get the right diagnosis because Celiac (wheat sensitivity) presents itself so differently in everyone. There was a time when I was also thought to have MS and that was one of the hardest for me to emotionally cope with. I has so many specialist doctors, and no one talked to each other. But I was taught that doctors know best and to follow their orders. Finally, in 2007 I had to get a new pcp for insurance reasons and she reviewed all of my history and immediately suspected Celiac... I'd never heard of it before. I no longer see any specialists, just my lovely pcp. I've also learned to question diagnoses and to research everything. I admire your passion to educate doctors - it sounds like you have the background to be able to do that well.

  • Upvote 1

Share this post


Link to post
Share on other sites

congratulations :) to everybody! i just turned 48 last week (misdiagnosed for 25 years) and have been gluten free since july - i feel *awesome*!!! i can't tell you how many people have come up to me and told me how wonderful i look! (now, i'm taking this as a compliment lol i must have looked awful before) people ask me "did you color your hair?" "what's different??" etc - sunday my daughter told me i look 10 years younger :) yes, i missed alot of time being sick for no apparent reason... but i'm better now so i'm not going to be wasting any more time pining or being angry - woohooo i feel great!! :D ps - didn't notice how bloated i was until it disappeared.... pps - i can go on that cruise if it's FREE lol

Hi NOT ME!

Thank you for this post!! I look and feel dreadful (nothing like I did just 2 years ago) BUT every time I read someone's post that says they feel "Awesome" , I am INCREDIBLY encouraged!! Good for you!! I agree---I missed 3 years of my life -- and once I feel better, I am going to take hubby and just TRAVEL and do whatever we feel like!! I guess I hold a bit of anger because my primary care doctor's own children have celiac and he didn't see what was right in front of him for so long. I was in his office repeatedly for so many horrible symptoms, but he kept sending me to specialists.....and I consulted a few on my own. If I had not been my own best advocate, endlessly researching, I wonder if the +scooter" one smug doctor suggested I get wouldn't be under my butt right now.

And the PC doc? I forgave him. I need my energy for healing. ;)

Not sure I can afford the cruise either, but it IS a great idea!! LOL

Enjoy your new good health!!

Share this post


Link to post
Share on other sites

Thank you all so much for these amazing replies. I am just flabergasted by how much everyone has gone through in their lives.

It's so wonderful to be potentially on the road to healing!

I look forward to being a part of this community....and to feeling better once again...

  • Upvote 2

Share this post


Link to post
Share on other sites

congratulations :) to everybody! i just turned 48 last week (misdiagnosed for 25 years) and have been gluten free since july - i feel *awesome*!!! i can't tell you how many people have come up to me and told me how wonderful i look! (now, i'm taking this as a compliment lol i must have looked awful before) people ask me "did you color your hair?" "what's different??" etc - sunday my daughter told me i look 10 years younger :)

Amazing isn't it. I ran into someone I hadn't seen in years a few days ago. Her nickname for me was 'Bones' her first comment after a big hug was 'Your not bones anymore you look great!!!'. The funny thing is I actually weighed more back then but it was all bloat. :)

  • Upvote 1

Share this post


Link to post
Share on other sites

Sign me up, especially if there are some older unattached nice guys that are going. ;):D

Hey I'm all for the older unattached nice guys!!! :P

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Who's Online   8 Members, 2 Anonymous, 528 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Celiac.com 04/26/2018 - Emily Dickson is one of Canada’s top athletes. As a world-class competitor in the biathlon, the event that combines cross-country skiing with shooting marksmanship, Emily Dickson was familiar with a demanding routine of training and competition. After discovering she had celiac disease, Dickson is using her diagnosis and gluten-free diet a fuel to help her get her mojo back.
    Just a few years ago, Dickson dominated her peers nationally and won a gold medal at Canada Games for both pursuit and team relay. She also won silver in the sprint and bronze in the individual race. But just as she was set to reach her peak, Dickson found herself in an agonizing battle. She was suffering a mysterious loss of strength and endurance, which itself caused huge anxiety for Dickson. As a result of these physical and mental pressures, Dickson slipped from her perch as one of Canada's most promising young biathletes.
    Eventually, in September 2016, she was diagnosed with celiac disease. Before the diagnosis, Dickson said, she had “a lot of fatigue, I just felt tired in training all the time and I wasn't responding to my training and I wasn't recovering well and I had a few things going on, but nothing that pointed to celiac.”
    It took a little over a year for Dickson to eliminate gluten, and begin to heal her body. She still hasn’t fully recovered, which makes competing more of a challenge, but, she says improving steadily, and expects to be fully recovered in the next few months. Dickson’s diagnosis was prompted when her older sister Kate tested positive for celiac, which carries a hereditary component. "Once we figured out it was celiac and we looked at all the symptoms it all made sense,” said Dickson.
    Dickson’s own positive test proved to be both a revelation and a catalyst for her own goals as an athlete. Armed with there new diagnosis, a gluten-free diet, and a body that is steadily healing, Dickson is looking to reap the benefits of improved strength, recovery and endurance to ramp up her training and competition results.
    Keep your eyes open for the 20-year-old native of Burns Lake, British Columbia. Next season, she will be competing internationally, making a big jump to the senior ranks, and hopefully a regular next on the IBU Cup tour.
    Read more at princegeorgecitizen.com

    Jefferson Adams
    Celiac.com 04/25/2018 - A team of Yale University researchers discovered that bacteria in the small intestine can travel to other organs and trigger an autoimmune response. In this case, they looked at Enterococcus gallinarum, which can travel beyond the gut to the spleen, lymph nodes, and liver. The research could be helpful for treating type 1 diabetes, lupus, and celiac disease.
    In autoimmune diseases, such as type 1 diabetes, lupus, and celiac disease, the body’s immune system mistakenly attacks healthy cells and tissues. Autoimmune disease affects nearly 24 million people in the United States. 
    In their study, a team of Yale University researchers discovered that bacteria in the small intestine can travel to other organs and trigger an autoimmune response. In this case, they looked at Enterococcus gallinarum, which can travel beyond the gut to the spleen, lymph nodes, and liver. They found that E. gallinarum triggered an autoimmune response in the mice when it traveled beyond the gut.
    They also found that the response can be countered by using antibiotics or vaccines to suppress the autoimmune reaction and prevent the bacterium from growing. The researchers were able to duplicate this mechanism using cultured human liver cells, and they also found the bacteria E. gallinarum in the livers of people with autoimmune disease.
    The team found that administering an antibiotic or vaccine to target E. gallinarum suppressed the autoimmune reaction in the mice and prevented the bacterium from growing. "When we blocked the pathway leading to inflammation," says senior study author Martin Kriegel, "we could reverse the effect of this bug on autoimmunity."
    Team research team plans to further investigate the biological mechanisms that are associated with E. gallinarum, along with the potential implications for systemic lupus and autoimmune liver disease.
    This study indicates that gut bacteria may be the key to treating chronic autoimmune conditions such as systemic lupus and autoimmune liver disease. Numerous autoimmune conditions have been linked to gut bacteria.
    Read the full study in Science.

    Tammy Rhodes
    Celiac.com 04/24/2018 - Did you know in 2017 alone, the United States had OVER TENS OF THOUSANDS of people evacuate their homes due to natural disasters such as fires, floods, hurricanes, tornadoes and tsunamis? Most evacuation sites are not equipped to feed your family the safe gluten free foods that are required to stay healthy.  Are you prepared in case of an emergency? Do you have your Gluten Free Emergency Food Bag ready to grab and go?  
    I have already lived through two natural disasters. Neither of which I ever want to experience again, but they taught me a very valuable lesson, which is why I created a Gluten Free Emergency Food Bag (see link below). Here’s my story. If you’ve ever lived in or visited the Los Angeles area, you’re probably familiar with the Santa Ana winds and how bitter sweet they are. Sweet for cleaning the air and leaving the skies a brilliant crystal blue, and bitter for the power outages and potential brush fires that might ensue.  It was one of those bitter nights where the Santa Ana winds were howling, and we had subsequently lost our power. We had to drive over an hour just to find a restaurant so we could eat dinner. I remember vividly seeing the glow of a brush fire on the upper hillside of the San Gabriel Mountains, a good distance from our neighborhood. I really didn’t think much of it, given that it seemed so far from where we lived, and I was hungry! After we ate, we headed back home to a very dark house and called it a night. 
    That’s where the story takes a dangerous turn….about 3:15am. I awoke to the TV blaring loudly, along with the lights shining brightly. Our power was back on! I proceeded to walk throughout the house turning everything off at exactly the same time our neighbor, who was told to evacuate our street, saw me through our window, assuming I knew that our hillside was ablaze with flames. Flames that were shooting 50 feet into the air. I went back to bed and fell fast asleep. The fire department was assured we had left because our house was dark and quiet again. Two hours had passed.  I suddenly awoke to screams coming from a family member yelling, “fire, fire, fire”! Flames were shooting straight up into the sky, just blocks from our house. We lived on a private drive with only one way in and one way out.  The entrance to our street was full of smoke and the fire fighters were doing their best to save our neighbors homes. We literally had enough time to grab our dogs, pile into the car, and speed to safety. As we were coming down our street, fire trucks passed us with sirens blaring, and I wondered if I would ever see my house and our possessions ever again. Where do we go? Who do we turn to? Are shelters a safe option? 
    When our daughter was almost three years old, we left the West Coast and relocated to Northern Illinois. A place where severe weather is a common occurrence. Since the age of two, I noticed that my daughter appeared gaunt, had an incredibly distended belly, along with gas, stomach pain, low weight, slow growth, unusual looking stool, and a dislike for pizza, hotdog buns, crackers, Toast, etc. The phone call from our doctor overwhelmed me.  She was diagnosed with Celiac Disease. I broke down into tears sobbing. What am I going to feed my child? Gluten is everywhere.
    After being scoped at Children's Hospital of Chicago, and my daughters Celiac Disease officially confirmed, I worried about her getting all the nutrients her under nourished body so desperately needed. I already knew she had a peanut allergy from blood tests, but just assumed she would be safe with other nuts. I was so horribly wrong. After feeding her a small bite of a pistachio, which she immediately spit out, nuts would become her enemy. Her anaphylactic reaction came within minutes of taking a bite of that pistachio. She was complaining of horrible stomach cramps when the vomiting set in. She then went limp and starting welting. We called 911.
    Now we never leave home without our Epipens and our gluten free food supplies. We analyze every food label. We are hyper vigilant about cross contamination. We are constantly looking for welts and praying for no stomach pain. We are always prepared and on guard. It's just what we do now. Anything to protect our child, our love...like so many other parents out there have to do every moment of ever day!  
    Then, my second brush with a natural disaster happened, without any notice, leaving us once again scrambling to find a safe place to shelter. It was a warm and muggy summer morning, and my husband was away on a business trip leaving my young daughter and me to enjoy our summer day. Our Severe Weather Alert Radio was going off, again, as I continued getting our daughter ready for gymnastics.  Having gotten used to the (what seemed to be daily) “Severe Thunderstorm warning,” I didn’t pay much attention to it. I continued downstairs with my daughter and our dog, when I caught a glimpse out the window of an incredibly black looking cloud. By the time I got downstairs, I saw the cover to our grill literally shoot straight up into the air. Because we didn’t have a fenced in yard, I quickly ran outside and chased the cover, when subsequently, I saw my neighbor’s lawn furniture blow pass me. I quickly realized I made a big mistake going outside. As I ran back inside, I heard debris hitting the front of our home.  Our dog was the first one to the basement door! As we sat huddled in the dark corner of our basement, I was once again thinking where are we going to go if our house is destroyed. I was not prepared, and I should have been. I should have learned my lesson the first time. Once the storm passed, we quickly realized we were without power and most of our trees were destroyed. We were lucky that our house had minimal damage, but that wasn’t true for most of the area surrounding us.  We were without power for five days. We lost most of our food - our gluten free food.
    That is when I knew we had to be prepared. No more winging it. We couldn’t take a chance like that ever again. We were “lucky” one too many times. We were very fortunate that we did not lose our home to the Los Angeles wildfire, and only had minimal damage from the severe storm which hit our home in Illinois.
      
    In 2017 alone, FEMA (Federal Emergency Management Agency) had 137 natural disasters declared within the United States. According to FEMA, around 50% of the United States population isn’t prepared for a natural disaster. These disasters can happen anywhere, anytime and some without notice. It’s hard enough being a parent, let alone being a parent of a gluten free family member. Now, add a natural disaster on top of that. Are you prepared?
    You can find my Gluten Free Emergency Food Bags and other useful products at www.allergynavigator.com.  

    Jefferson Adams
    Celiac.com 04/23/2018 - A team of researchers recently set out to learn whether celiac disease patients commonly suffer cognitive impairment at the time they are diagnosed, and to compare their cognitive performance with non-celiac subjects with similar chronic symptoms and to a group of healthy control subjects.
    The research team included G Longarini, P Richly, MP Temprano, AF Costa, H Vázquez, ML Moreno, S Niveloni, P López, E Smecuol, R Mazure, A González, E Mauriño, and JC Bai. They are variously associated with the Small Bowel Section, Department of Medicine, Dr. C. Bonorino Udaondo Gastroenterology Hospital; Neurocience Cognitive and Traslational Institute (INECO), Favaloro Fundation, CONICET, Buenos Aires; the Brain Health Center (CESAL), Quilmes, Argentina; the Research Council, MSAL, CABA; and with the Research Institute, School of Medicine, Universidad del Salvador.
    The team enrolled fifty adults with symptoms and indications of celiac disease in a prospective cohort without regard to the final diagnosis.  At baseline, all individuals underwent cognitive functional and psychological evaluation. The team then compared celiac disease patients with subjects without celiac disease, and with healthy controls matched by sex, age, and education.
    Celiac disease patients had similar cognitive performance and anxiety, but no significant differences in depression scores compared with disease controls.
    A total of thirty-three subjects were diagnosed with celiac disease. Compared with the 26 healthy control subjects, the 17 celiac disease subjects, and the 17 disease control subjects, who mostly had irritable bowel syndrome, showed impaired cognitive performance (P=0.02 and P=0.04, respectively), functional impairment (P<0.01), and higher depression (P<0.01). 
    From their data, the team noted that any abnormal cognitive functions they saw in adults with newly diagnosed celiac disease did not seem not to be a result of the disease itself. 
    Their results indicate that cognitive dysfunction in celiac patients could be related to long-term symptoms from chronic disease, in general.
    Source:
    J Clin Gastroenterol. 2018 Mar 1. doi: 10.1097/MCG.0000000000001018.

    Connie Sarros
    Celiac.com 04/21/2018 - Dear Friends and Readers,
    I have been writing articles for Scott Adams since the 2002 Summer Issue of the Scott-Free Press. The Scott-Free Press evolved into the Journal of Gluten Sensitivity. I felt honored when Scott asked me ten years ago to contribute to his quarterly journal and it's been a privilege to write articles for his publication ever since.
    Due to personal health reasons and restrictions, I find that I need to retire. My husband and I can no longer travel the country speaking at conferences and to support groups (which we dearly loved to do) nor can I commit to writing more books, articles, or menus. Consequently, I will no longer be contributing articles to the Journal of Gluten Sensitivity. 
    My following books will still be available at Amazon.com:
    Gluten-free Cooking for Dummies Student's Vegetarian Cookbook for Dummies Wheat-free Gluten-free Dessert Cookbook Wheat-free Gluten-free Reduced Calorie Cookbook Wheat-free Gluten-free Cookbook for Kids and Busy Adults (revised version) My first book was published in 1996. My journey since then has been incredible. I have met so many in the celiac community and I feel blessed to be able to call you friends. Many of you have told me that I helped to change your life – let me assure you that your kind words, your phone calls, your thoughtful notes, and your feedback throughout the years have had a vital impact on my life, too. Thank you for all of your support through these years.

  • Forum Statistics

    • Total Topics
      109,749
    • Total Posts
      947,461
  • Member Statistics

    • Total Members
      72,311
    • Most Online
      3,093

    Newest Member
    Judeh
    Joined
  • Popular Now

  • Topics

  • Posts

    • hi All, I had been getting so gradually sick that I don't know when it started, (but I am now assuming 1994).  In 2008, I succumbed to pressure from my insurance rep to get more insurance, and they would even come to my house to test my blood.  I was denied insurance and recommended to see my doctor, who told me I had the liver of a severe alcoholic.  I very rarely drink. I went for tests and the doctor was baffled.  He said I should lose weight.  He said it was likely fatty liver disease. That was 2008.  For the next few years I got tests, tried to eat healthy, and every so often I would see if it was helping my liver numbers. I got stomach aches when I ate toast or a sandwich, but didnt link it to the toast except later, in hindsight.  How could toast give me a stomach ache?  Anyway, on the advice of my doctor, I tried very hard to lose weight, so went lo-carb.  One day, I had had no breakfast and at church 'goodie-time' was unable to resist all the carbs.  Later that afternoon, I felt like someone had literally poisoned me. This was now 2011.  I decided to not eat or drink anything but almonds and organic cold pressed  apple juice in a glass jar, and ate only those things for the next 3-4 days while I looked for symptoms on the Internet. I narrowed it down to celiac disease and went to the doctor.  I refused to eat gluten to get the test.  I decided not to eat gluten and I got better. I then started a job in China.  I learned how to say things like "no soy sauce" since it's made from wheat.  I got so much better.  I knew what my reactions were to gluten, especially the one that happened first: I would get a shakiness inside, like my blood system was micro-vibrating. i got the flu and was in bed for three days straight eating only mandarin oranges and water.  After a couple of days, I got that shakiness, suddenly, lying in bed.  I was astounded, cause I had only water and oranges.  Then I remembered that I had taken two Advil, in the gel cap form.  I looked on the Internet, and sure enough, the gel caps contained gluten.  Wow.  Even that small amount in two gel caps set it off. I was very vigilant.  Then one day, back in Canada, I was making hot dogs for a four-year-old and I had fresh bakery buns.  I couldn't resist.  I guess I thought, well, it's been a couple of years gluten free, let's see what happens.  I ate one and a half huge bakery hot dog buns on impulse.  Big mistake. I got so, so sick.  I was sick for 6 weeks with various symptoms.  Spleen pain, liver pain, kidney pain, migraine headaches, stomach issues, constipation, dizziness, brain fog, irritability, etc.  This was 2013. After one week of still being sick, I thought it's probably too late, but I should get that celiac test to see if there are detectable antibodies.  I went to the doctor, who didn't think it was necessary and insisted it was fatty liver disease and not celiac.  He humoured me and gave me the requisition anyway.  It wasn't too late!  One week later. i was shocked to see that my antibody level was 99. ( If you have less than 20 you don't have Celiac. It is called tTg test).  If you have 100, they say you don't really need a biopsy and it's pretty much confirmed celiac.  The doctor was a little bit embarrassed and said, "looks like you've diagnosed yourself". So finally he shut up about fatty liver disease.   I got so much better living in China.  I occasionally slipped. I  then went back to canada for a year.  I developed DH, as I got these lesions starting on my thumb and then on my fingers and palms.  Finally after 6 months I cut out dairy.  I had heard it was also somehow bad for Celiacs from the Internet but I really didn't want to cut out dairy as it was bad enough without gluten.  I finally did and the DH cleared up.   Then back to China.  I would go back to Canada twice a year for the time off from spring and summer holidays.  It was really hard to be around western food temptations and I would get "glutened" even though I tried hard. I began to get a strange pain in my leg and the doctor in canada said it was likely arthritis in my hip.  i went for an xray but it didnt show anything.  it really killed me to get that pain in my leg and then in my hip.  i would cry out and have to sit down.  i started riding my bike to work in china cause it was painful to walk very far.  I had started to reintroduce dairy while in China and found that I could eat yogurt, which I love. I had heard that people blamed their gluten reactions on Roundup, or glyphosate, because they could eat flour products in other countries but not North America.  One day about six months ago I made cookies for my students.  I wore gloves and was very careful.  Before this, I wouldn't even be in the same room with flour.  But nothing happened.  Then I tasted a cookie.  Nothing happened!!  The next day, I ate a whole cookie. Nothing happened!!  I began to think there was something to the theory of North America and roundup.  I still avoided flour in general cause I didn't want to push it, but I started eating soy sauce and relaxed a bit - started going to restaurants in china, etc. instead of micromanaging food in my kitchen, cause I was evidently not reacting to gluten in China.  I then realized that the only episodes of pain I had had were when I was in Canada the previous summer and spring.  Very strange.  So.  I got back to Canada, last spring, had my usual gluten free meal on the airplane, and then visited my mother.  I ate only organic yogurt.  Nothing else, and a few hours later I was attacked by almost every gluten related pain I had ever had.  My hip was suddenly shooting pain and I cried out and limped to the couch.  My mother asked, what did you eat?  I said, nothing!  Only organic yogurt!   Of course after any glutening, it takes weeks for these pains to subside, and I endured pain stabs in my spleen for a while.  Then back to China, where I was able to eat normally.  No pains, nothing.  I ate yogurt, made myself with uht milk imported from Germany or Australia, and I was fine.     Until the day when I ate one of the chocolate bars I had brought from Canada as prizes for my students.  Instant reaction! Spleen pain!  I had heard that sugar cane was as bad as flour for being drenched in roundup.  Now I was convinced. It was definitely stuff from Canada that was the culprit.  Only farm products.  Yes, they say the yogurt is organic, but I'm sure they feed the milk cows hay that has been exposed to roundup.   Now I know exactly what I can eat and where.  I love the food here, and it's safe.  There are exceptions.  They use pesticides on fruit, cause I get a stomach ache when I eat certain fruits, but it's a different reaction that the gluten reaction,  I can eat flour products without a huge reaction, but I still have celiac, because I do get reactions even from Chinese flour, just not as bad as I did before.  A mild sick feeling, like something is off, kind of unbalanced, and of course the inevitable shakiness.  I react much worse to Canadian chocolate.  But there is a huge difference between food here and food there.  A very painful difference.  Hard to figure out, but I think I have. so here's my theory,  roundup actually causes the celiac disease, or whatever disease you might happen to be genetically susceptible to. (My uncle has arthritis in his hip). If you keep ingesting it, you will get gradually sicker and sicker and get some kind of disease.  If you stop eating roundup completely, you will heal with a healthy diet.  If you already have a disease like celiac or DH you can manage it and stay healthy if you are totally roundup free. My dad died of nonHodgkins lymphoma and he insisted it was the roundup the neighbor had been spraying on his farm, right next to my dads organic hobby farm.  Now I believe him. I wish I'd been able to piece this together a bit earlier.  Since 1994, many diseases have hugely increased.  That's when they started with the roundup and there is a one on one correspondence on the graphs with roundup use and  many diseases. sorry for the novel but I just can't keep this all to myself,  I'm like the canary in the mine.  But roundup is everywhere so I don't know if you can really avoid it in North America, sadly. My advice is to move elsewhere and figure it out like I did. i saw a youtube video by an MIT researcher that they are now figuring out that glyphosate actually takes up the place of the essential amino acid glycine in your body.  Because they are molecularly similar, glyphosate gets in there and stops glycine from being able to do it's job in your body.  So it causes all sorts of problems in a gradual way and eventually you will have trouble. i hope this helps!  Stay away from farm products!  I hope it's not true what the conspiracy theorists say (that they are spraying chemicals, chemtrails etc.  I don't know if they are spraying roundup) but if it is, that's the end of the world as we know it.  I don't really want to go there,  I just know what I know and I'm sharing it.   this is just the short version  but I've tried to include important info.  Anyone else have a similar story in any way?
    • First, about 35% of the population carries the genes that could (rare) develop into celiac disease.  The genetic test just simply rules out celiac disease.  I guess he could develop it....some day or never.   Baby?  Get your daughter to your Ped.  Babies can develop rashes (e.g. eczema)  for so many things.  It could be a wheat allergy and not even celiac disease which is an autoimmune disorder.  Celiac disease in the form of dermatitis herpetiformis (aka celiac rash)  is pretty unheard of in infants.  It is SUPER rare — like one case discovered back in 1966!   Just curious.  The old method of grain (cereal) introduction was to give rice cereal.  Is that old outdated advice?   Kudos for you for breastfeeding!    It was my fondest aspect of early motherhood.  So easy and convenient.   Get to the doctor.  Do not try to diagnose an infant!  Trust your good mommy instincts.  Hopefully your baby just is not ready for wheat.  I recall that when introducing new foods you were to give a little and wait a few days for reactions.  Sounds like it might be as simple as too much of a good thing.    
    • hi Bananababy, I had been getting so gradually sick that I don't know when it started, (but I am now assuming 1994).  In 2008, I succumbed to pressure from my insurance rep to get more insurance, and they would even come to my house to test my blood.  I was denied insurance and recommended to see my doctor, who told me I had the liver of a severe alcoholic.  I very rarely drink. I went for tests and the doctor was baffled.  He said I should lose weight.  He said it was likely fatty liver disease. That was 2008.  For the next few years I got tests, tried to eat healthy, and every so often I would see if it was helping my liver numbers. I got stomach aches when I ate toast or a sandwich, but didnt link it to the toast except later, in hindsight.  How could toast give me a stomach ache?  Anyway, on the advice of my doctor, I tried very hard to lose weight, so went lo-carb.  One day, I had had no breakfast and at church 'goodie-time' was unable to resist all the carbs.  Later that afternoon, I felt like someone had literally poisoned me. This was now 2011.  I decided to not eat or drink anything but almonds and organic cold pressed  apple juice in a glass jar, and ate only those things for the next 3-4 days while I looked for symptoms on the Internet. I narrowed it down to celiac disease and went to the doctor.  I refused to eat gluten to get the test.  I decided not to eat gluten and I got better. I then started a job in China.  I learned how to say things like "no soy sauce" since it's made from wheat.  I got so much better.  I knew what my reactions were to gluten, especially the one that happened first: I would get a shakiness inside, like my blood system was micro-vibrating. i got the flu and was in bed for three days straight eating only mandarin oranges and water.  After a couple of days, I got that shakiness, suddenly, lying in bed.  I was astounded, cause I had only water and oranges.  Then I remembered that I had taken two Advil, in the gel cap form.  I looked on the Internet, and sure enough, the gel caps contained gluten.  Wow.  Even that small amount in two gel caps set it off. I was very vigilant.  Then one day, back in Canada, I was making hot dogs for a four-year-old and I had fresh bakery buns.  I couldn't resist.  I guess I thought, well, it's been a couple of years gluten free, let's see what happens.  I ate one and a half huge bakery hot dog buns on impulse.  Big mistake. I got so, so sick.  I was sick for 6 weeks with various symptoms.  Spleen pain, liver pain, kidney pain, migraine headaches, stomach issues, constipation, dizziness, brain fog, irritability, etc.  This was 2013. After one week of still being sick, I thought it's probably too late, but I should get that celiac test to see if there are detectable antibodies.  I went to the doctor, who didn't think it was necessary and insisted it was fatty liver disease and not celiac.  He humoured me and gave me the requisition anyway. i was shocked to see that my antibody level was 99. ( If you have less than 20 you don't have Celiac. It is called tTg test).  If you have 100, they say you don't really need a biopsy and it's pretty much confirmed celiac.  The doctor was a little bit embarrassed and said, "looks like you've diagnosed yourself". So finally he shut up about fatty liver disease.   I got so much better living in China.  I occasionally slipped. I  then went back to canada for a year.  I developed DH, as I got these lesions starting on my thumb and then on my fingers and palms.  Finally after 6 months I cut out dairy.  I had heard it was also somehow bad for Celiacs from the Internet but I really didn't want to cut out dairy as it was bad enough without gluten.  I finally did and the DH cleared up.   Then back to China.  I would go back to Canada twice a year for the time off from spring and summer holidays.  It was really hard to be around western food temptations and I would get "glutened" even though I tried hard. I began to get a strange pain in my leg and the doctor in canada said it was likely arthritis in my hip.  i went for an xray but it didnt show anything.  it really killed me to get that pain in my leg and then in my hip.  i would cry out and have to sit down.  i started riding my bike to work in china cause it was painful to walk very far.  I had started to reintroduce dairy while in China and found that I could eat yogurt, which I love. I had heard that people blamed their gluten reactions on Roundup, or glyphosate, because they could eat flour products in other countries but not North America.  One day about six months ago I made cookies for my students.  I wore gloves and was very careful.  Before this, I wouldn't even be in the same room with flour.  But nothing happened.  Then I tasted a cookie.  Nothing happened!!  The next day, I ate a whole cookie. Nothing happened!!  I began to think there was something to the theory of North America and roundup.  I still avoided flour in general cause I didn't want to push it, but I started eating soy sauce and relaxed a bit - started going to restaurants in china, etc. instead of micromanaging food in my kitchen, cause I was evidently not reacting to gluten in China.  I then realized that the only episodes of pain I had had were when I was in Canada the previous summer and spring.  Very strange. So.  I got back to Canada, last spring, had my usual gluten free meal on the airplane, and then visited my mother.  I ate only organic yogurt.  Nothing else, and a few hours later I was attacked by almost every gluten related pain I had ever had.  My hip was suddenly shooting pain and I cried out and limped to the couch.  My mother asked, what did you eat?  I said, nothing!  Only organic yogurt!   Of course after any glutening, it takes weeks for these pains to subside, and I endured pain stabs in my spleen for a while.  Then back to China, where I was able to eat normally.  No pains, nothing.  I ate yogurt, made myself with uht milk imported from Germany or Australia, and I was fine.     Until the day when I ate one of the chocolate bars I had brought from Canada as prizes for my students.  Instant reaction! Spleen pain!  I had heard that sugar cane was as bad as flour for being drenched in roundup.  Now I was convinced. It was definitely stuff from Canada that was the culprit.  Only farm products.  Yes, they say the yogurt is organic, but I'm sure they feed the milk cows hay that has been exposed to roundup.   Now I know exactly what I can eat and where.  I love the food here, and it's safe.  There are exceptions.  They use pesticides on fruit, cause I get a stomach ache when I eat certain fruits, but it's a different reaction that the gluten reaction,  I can eat flour products without a huge reaction, but I still have celiac, because I do get reactions even from Chinese flour, just not as bad as I did before.  A mild sick feeling, like something is off, kind of unbalanced, and of course the inevitable shakiness.  I react much worse to Canadian chocolate.  But there is a huge difference between food here and food there.  A very painful difference.  Hard to figure out, but I think I have. so here's my theory,  roundup actually causes the celiac disease, or whatever disease you might happen to be genetically susceptible to. (My uncle has arthritis in his hip). If you keep ingesting it, you will get gradually sicker and sicker and get some kind of disease.  If you stop eating roundup completely, you will heal with a healthy diet.  If you already have a disease like celiac or DH you can manage it and stay healthy if you are totally roundup free. My dad died of nonHodgkins lymphoma and he insisted it was the roundup the neighbor had been spraying on his farm, right next to my dads organic hobby farm.  Now I believe him. I wish I'd been able to piece this together a bit earlier.  Since 1994, many diseases have hugely increased.  That's when they started with the roundup and there is a one on one correspondence on the graphs with roundup use and  many diseases. sorry for the novel but I just can't keep this all to myself,  I'm like the canary in the mine.  But roundup is everywhere so I don't know if you can really avoid it in North America, sadly. My advice is to move elsewhere and figure it out like I did. i saw a youtube video by an MIT researcher that they are now figuring out that glyphosate actually takes up the place of the essential amino acid glycine in your body.  Because they are molecularly similar, glyphosate gets in there and stops glycine from being able to do it's job in your body.  So it causes all sorts of problems in a gradual way and eventually you will have trouble. i hope this helps!  Stay away from farm products!  I hope it's not true what the conspiracy theorists say (that they are spraying chemicals, chemtrails etc.  I don't know if they are spraying roundup) but if it is, that's the end of the world as we know it.  I don't really want to go there,  I just know what I know and I'm sharing it.  Be blessed.  
    • Also not that it matters, but have had low iron on and off last 2 years. Just another reason why I’m testing. 
    • Every lab has different ranges.  Post the ranges and we might be able to help.
  • Blog Entries

  • Upcoming Events