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uruguaya1193

Losing Weight

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I was recently self-diagnosed by elimination with a gluten intolerance and am waiting for the results from my blood tests for celiac. I have been gluten free for almost a month now and have lost a lot of weight very quickly (12 pounds to be exact). Is it normal to lose so much weight in the beginning of switching to a gluten free diet?

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I was recently self-diagnosed by elimination with a gluten intolerance and am waiting for the results from my blood tests for celiac. I have been gluten free for almost a month now and have lost a lot of weight very quickly (12 pounds to be exact). Is it normal to lose so much weight in the beginning of switching to a gluten free diet?

Hi that is a good question that i have trying to find out for 2 years and what to do about it. i have posted on this forum and lots of different forums also and dont get an answer. I have lost 30 pounds and loss of muscle mass...really just a bag of bones. i eat all the time and dont gain a ounce. drs are no help. have had 3 endoscopes and nothing except ulcers. been to two gastro drs and four endocrinologists and they dont why i am wasting away. i think i am dying and nobody to help. hope you find the answer and God bless

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Hi that is a good question that i have trying to find out for 2 years and what to do about it. i have posted on this forum and lots of different forums also and dont get an answer. I have lost 30 pounds and loss of muscle mass...really just a bag of bones. i eat all the time and dont gain a ounce. drs are no help. have had 3 endoscopes and nothing except ulcers. been to two gastro drs and four endocrinologists and they dont why i am wasting away. i think i am dying and nobody to help. hope you find the answer and God bless

Leiana, I am sorry that no one has offered to help. I have the opposite problem and I'm not a trained nutritionist but here are some ideas for you and uraguaya.

Have you talked to a dietitian? Get one of the docs to refer you and your insurance should pay for it.

Eat lots of avocados, olive oil. Full fat cheese and milk if you can tolerate milk/dairy. Eat three meals a day plus 2-3 snacks of 300-400 calories.

How about smoothies with protein powder added?

Perhaps drink 2-3 Ensure or Boost drinks a day: Last I saw they are gluten-free (but check anyway for yourself).

Snack on almonds and other nuts instead of chips.

Good luck!


Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

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Hi and thank you for your kind reply. yes i have tried all the foods you suggested and then some. and every protein drink on the market. Eat a full meal every two hrs for i am starving and if i dont get to eat i get really dizzy and feel like i am going to pass out. i tried the ensure and boost and i end up on the toilet. i have even tried the prescription nutritional drinks from nestle nutrition store (200.00 a case) and Abbott pharmacy and that dont help either. i have been to two dietiticians at two major hospitals and i had to tell them about celiac.they tried to tell me things to do that dont work also. now i have been trying to tell my current gastro to give me a feeding tube or nutritional IVS but he wont listen. i dont know what else to do. i am going for my third endoscope this wednesday and if they dont find SOMETHING i give up. went from 130 lbs to 100 and size 12 to size four. there is no time left to waste. i just cannot do this any more. there is really no help out there. i know i am ranting but scared out of my mind. i go from one forum to another and cannot find an answer and if i think i do have answer the drs shoot it down. after wednesday i will just stay in bed. i give up. sooooo desperate for a answer.

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Have you been tested for parasites?


...Muffy

Grain-free

Dairy-free

Soy-free

Canola Oil-free

Refined Fructose-lite

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Hi Leiana.

First of all, don't give up.

Did the Dr. find evidence of celiac before? Are you sure that all your meds are gluten-free? Is your house gluten-free?

Have you had extensive thyroid testing? http://thyroid.about.com/od/gettestedanddiagnosed/a/bloodtests.htm

Have you had these tests done?

I do not know anything about thyroid issues but my aunt went through a rough time and ended up she had a major thyroid problem. She had been to several Dr.s and finally one that listened and helped her.

This is a great place for support. I hope and pray that you will find your answers soon.


Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.

2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.

Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.

So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!

My adult daughter also has been helped by eating gluten-free.

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Hi that is a good question that i have trying to find out for 2 years and what to do about it.

What ARE you eating? Post a couple days worth of meals and maybe people can make better suggestions.


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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