Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


  • You've found your Celiac Tribe! Join our like-minded, private community and share your story, get encouragement and connect with others.

    💬

    • Sign In
    • Sign Up

Archived

This topic is now archived and is closed to further replies.

Menqet

Anyone With An Unsupportive Spouse / Family Members / Friends?

Recommended Posts

I've just been so fatigued lately, and it's so hard to even think straight. It's even affecting my speech. I've always had a little bit of a stammer, but now I sometimes struggle to even come up with the word I want to say. I just draw a blank!

This hits the nail on the head for me -- that's exactly what I went through for most of my life, like clockwork, every afternoon.

Anyway, I think the board tends to act protectively of disrespected celiacs, which is very sweet of everyone, but a little tricky when it's about someone you love. I hope your husband has started to learn a little bit about this disease and see how serious it is since you first posted. It does sound ridiculous the first time you hear of it. I know I've jumped on a lot of quick-fix solutions in my search to not feel sick all the time, and my husband considered most of the ludicrous, and they were. (Like, the kitchen looked like a science lab sometimes.) But he caught on that this was different, probably because he's type 1 diabetic and knows how serious autoimmune stuff is. Without that experience, it can take a little while to get on board.


celiac, hypothyroid, hereditary hemochromatosis
 

Share this post


Link to post
Share on other sites

I'm also getting my hearing check, because I've had awful tinnitus for the past year or two. I just wish I could have some "peace and quiet".

There's a variety of things that can cause ringing in the ears and not everyone is the same. Mine finally went away when I went off all grains and sugar. I currently allow a little grain and a little sugar but I have to be very careful or the ringing comes back.

It is not always easy not getting support especially from a spouse. When I was first diagnosed it was not by tests, it was by a doc who decided to call it celiac based on symptoms, going off wheat and then going back on and getting terribly sick. So husband would tell people "we weren't sure it was celiac, that maybe my system just needs time to heal."

After reading so much about how bad wheat is for you I convinced my teen daughter to go off and my husband even gave it a try. My daughter noticed a difference, said she felt so much better. Husband said it made no difference to him and went back to his gluten stuffing. I still have a hard time watching him fill his mouth and plate with gluten as I truly it is bad for people in general.

I used to tell everyone my story and I used to hard about wheat but I have finally gave up, people don't want to hear it, they don't want to try it and they don't think it applies to them. One of my last straws was with my husband not that long ago. He said, "I am sure glad I don't have issues with wheat." I didn't do well with that statement. I really don't think he gave a real good honest try so how would he know and that was the last for me to talk about gluten.

My friends have been great, my daughters wonderful.


Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

Share this post


Link to post
Share on other sites

My husband is my rock. Is it possible to be too supportive? If so, that is him. He is hyper alert and aware and does everything he possibly can to protect me. Our families, though not everyone "gets" it, are extremely supportive so I am very fortunate and grateful. When my husband eats gluten it is at work when I am absent, then he is careful not to kiss me until he brushes his teeth.


<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

Share this post


Link to post
Share on other sites

Listen to your body, first. Now as to the hubby...mine was so unsupportive in the beginning (yours sounds like mine) but the longer I stayed gluten free, the more he cared (guess he realized how sick it made me when I had no trouble passing up my favorites and he started researching cross contamination and telling me about). Fully supportive now, although he says he would never let his body win like that. I just said it must not make you sick enough. Extremely supportive since anaphylactic reaction (testing for allergy Jan11, had neg celiac blood panel before going gluten free) Wednesday and ending up in ER unable to breath when reaction started the normal gluten exposure way.

So long story, short. Give him time, hold your ground and follow what the doctor and your body tells you. No one has to give permission for gluten free lifestyle except you.


Gluten Free since October 2012

Negative blood work, positive dietary response

Endocrinologist offered referral to GI if I needed formal diagnosis to follow the diet, otherwise just pass on wheat, barley & rye

and save my money

Share this post


Link to post
Share on other sites

My husband is my rock. Is it possible to be too supportive? If so, that is him. He is hyper alert and aware and does everything he possibly can to protect me. Our families, though not everyone "gets" it, are extremely supportive so I am very fortunate and grateful. When my husband eats gluten it is at work when I am absent, then he is careful not to kiss me until he brushes his teeth.

Awwww he sounds just like my hubby. I don't know what I'd do if he wasn't supportive.

Share this post


Link to post
Share on other sites

Awwww he sounds just like my hubby. I don't know what I'd do if he wasn't supportive.

That's so great to hear. It certainly makes things easier to bear and deal with! :wub:


<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

Share this post


Link to post
Share on other sites

hi Guys.

Just so you know--

the original poster, Menquet

has not been active on the board since July 2011

and may not see your responses to her.

But you can still talk with each other, of course. :)

Just wanted you to know (in case she does not reply to your helpful responses).


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

Share this post


Link to post
Share on other sites