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Documentary About Celiac Disease


celiacstudent

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celiacstudent Newbie

Hello Dear Members

I just recently finished this documentary about Celiac Disease. And I want to share it with the world. There are very few documentary's out there and that's the reason I made one. LETS SPREAD OUR STORIES

Let me know what you think about it :)

Click on the link to watch it in high definition on youtube if you want :)

Thanks


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celiacstudent Newbie

Did anybody like it? No Feedback?

Greetings

Marilyn R Community Regular

I absolutely loved it!

You produced a wonderful documentary, and I'm going to share it with everyone I know, most importantly relatives. Well done! I think your documentary will make a difference in their understanding of the disease.

Fire Fairy Enthusiast

I think it's great. I was just diagnosed in November so I'm not a very informative critic. I must say you could add Migraines to your list of symptoms. And you could mention other problems that are linked to celiac besides thyroid. For example some people develop type 1 diabetes from years of untreated celiac disease. Many women have miscarriages. Etc.

Sometimes you have to give posts on this forum time for everyone to read them. Give it more time and I suspect you will have more feedback.

PS I too will share it with the world.

Kimbalou Enthusiast

Thank you for your post...great video. Do you have Celiac too?

SaraKat Contributor

I just watched it- very nice! I'd be interested to hear more about the vaccine they are working on! Interesting at the end asking random people if they have heard of it! I ask people that question a lot and surprisingly a lot of people have heard of it.

I hadn't heard of it until I got diagnosed though (well, I should say until I started researching what could be wrong with me)!

Mama Melissa Enthusiast

Great Job!!!!!Very informative,i must say it feels good to have someone acknowledge our disease as a serious medical problem than just a minor allergy! 2 thumbs up


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Terri O Rookie

Great Job!!!!!Very informative,i must say it feels good to have someone acknowledge our disease as a serious medical problem than just a minor allergy! 2 thumbs up

I liked it too...I will definitely send it to my family! Thanks!

celiacstudent Newbie

Thanks for your responses :)

I really appreciate your feedback. I could add some more information about the symptoms...

The important thing now, is to make our issue popular! I am right now in Malaga Spain and it is really nice hear to eat gluten-free ( lots of stuff has label on it "sin gluten") but however in the restaurants nobody has a real appreciation for it..

Thank you for your post...great video. Do you have Celiac too?

Yes i am a celiac as well.

Thanks again :)

Camp Laffalot Newbie

Thanks for your responses :)

I really appreciate your feedback. I could add some more information about the symptoms...

The important thing now, is to make our issue popular! I am right now in Malaga Spain and it is really nice hear to eat gluten-free ( lots of stuff has label on it "sin gluten") but however in the restaurants nobody has a real appreciation for it..

Yes i am a celiac as well.

Thanks again :)

BRAVO! If I could give you an Oscar for this, I would! Well done....and thank you!

GFinDC Veteran

Really well done video! I just have one little nit-pick. In the narration at about 6 minutes and 20 seconds is is stated that "when gluten is eaten the bowel will get infected". It is in the section where the body outline is shown. We don't get infected by gluten though, as it is not a living organism. Gluten does trigger an immune system reaction that creates antibodies that damage the small intestine.

celiacstudent Newbie

Really well done video! I just have one little nit-pick. In the narration at about 6 minutes and 20 seconds is is stated that "when gluten is eaten the bowel will get infected". It is in the section where the body outline is shown. We don't get infected by gluten though, as it is not a living organism. Gluten does trigger an immune system reaction that creates antibodies that damage the small intestine.

Thanks your are absolutely right my interviewed specialist already noticed that. In 10 Minutes time I didn't want to go too deep in the medical aspect. Though it is wrong, but an infection may have a similar effect. Anyway I might correct this.

Thanks

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    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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