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mtcross

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mtcross Rookie

I just found out the other day that a recent um.. camera procedure indicated that I may be celiac, and am going in for the blood test tomorrow. But this possible diagnosis does make quite a bit of sense and answers a few questions.

With that in mind I really don't want to ask a bunch of questions that have been asked by every person with this diagnosis.. So is there a list of FAQs or something along that line that can help me start making good choices/decisions/purchases?

Thanks in adavance


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Fire Fairy Enthusiast

I just found out the other day that a recent um.. camera procedure indicated that I may be celiac, and am going in for the blood test tomorrow. But this possible diagnosis does make quite a bit of sense and answers a few questions.

With that in mind I really don't want to ask a bunch of questions that have been asked by every person with this diagnosis.. So is there a list of FAQs or something along that line that can help me start making good choices/decisions/purchases?

Thanks in adavance

Did you know you can search the forums? Also, look on the top of the page and there is a button that says Celiac Disease Info, click it. It's the 5th button. I'm new too so I'll let the people who have been on here longer give you more info.

CeliacMom2008 Enthusiast

Do searches for specific questions and then don't be afraid to ask questions you don't find answers to - do watch the dates on your search results. So much as been learned about Celiac. The internet doesn't forget though, so there is a lot of mis-information out there still.

GlutenFreeManna Rising Star

as the pp said you can do searches, but also please feel free to ask questions. Even though the same questions get asked again and again the regulars here are super friendly and helpful. They will answer your questions or point you towards a thread with a similar question if it has been asked recently. There are no dumb questions and who knows you might ask something that others haven't asked before. I've been reading here for almost a year and I still learn new things from people asking questions and the answers given by different posters.

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    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
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