Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

SLB5757

Can Gluten Inflame Intestines To The Point Of Severe Pain

Rate this topic

Recommended Posts

Hello All!

I feel like I am forever going through this cycle of "could it be a gluten intolerance", or not. I have had bloodwork done a few different times, but have never really gotten a positive reading. The closest my numbers came to being positive was having a TTG Iga of 16 when it said that weak positive/reference range was 20-30. My total IGA at the time was around 300, so I know I am not Iga deficient.

My symptoms are numerous, and I constantly wonder if my issue is gluten. I have been trying to continue eating gluten until someone is actually able to diagnose it as the problem. Six months ago, I tried a gluten free trial for 3-4 months. I had little improvement. It seems like bloating went away, but I was still having some issues. Could have been my lactose intolerance or another intolerance though since I was told I have many food allergies.It is just very difficult to stick with a gluten free diet without knowing if it is helping.

Recently, my main concern is a sharp right sided pain that has yet to be diagnosed. On 2/2/11, I got a sharp pain that wouldn't go away. It was knife-like. Sent me to the ER, and after a Cat Scan, bloodwork, and urine they sent me home saying I may have strained a muscle in my abdomen. fast forward almost a month later, I still have this sharp pain and swelling in my abdomen. They have ruled out gynecolocial problems such as a cyst by doing a pelvic ultrasound, They also did an abdominal wall ultrasound on that side, and found nothing. So....here I am, with a sharp pain and no explanation. It just feels as if something in there is inflamed or twisted or swollen. I cannot describe it any better than that.

My question, is can your intestines become so swollen and inflamed from an undiagnosed gluten intolerance that it would cause continued unrelenting pain? It is daily, and it does not go away. I called my Clevelend Clinic doc, and she ordered another round of celiac testing through QUEST, as long as a Vitamin B6, B12, and a Vitamin D. Ive never had vitamin levels checked, so maybe the celiac tests along with vitamin levels will help them see something??

I really do not hear complaints of knife-like side pain on here, so I just wondered if this was a possibility. I have had bloating, constipation, indigestion for about 5 years - they just say it is IBS. I can deal with that - just not the sharp stuff :/

Share this post


Link to post
Share on other sites

Hello All!

I feel like I am forever going through this cycle of "could it be a gluten intolerance", or not. I have had bloodwork done a few different times, but have never really gotten a positive reading. The closest my numbers came to being positive was having a TTG Iga of 16 when it said that weak positive/reference range was 20-30. My total IGA at the time was around 300, so I know I am not Iga deficient.

My symptoms are numerous, and I constantly wonder if my issue is gluten. I have been trying to continue eating gluten until someone is actually able to diagnose it as the problem. Six months ago, I tried a gluten free trial for 3-4 months. I had little improvement. It seems like bloating went away, but I was still having some issues. Could have been my lactose intolerance or another intolerance though since I was told I have many food allergies.It is just very difficult to stick with a gluten free diet without knowing if it is helping.

Recently, my main concern is a sharp right sided pain that has yet to be diagnosed. On 2/2/11, I got a sharp pain that wouldn't go away. It was knife-like. Sent me to the ER, and after a Cat Scan, bloodwork, and urine they sent me home saying I may have strained a muscle in my abdomen. They ruled out appendecitis and kidney stone by the Cat Scan that was performed and of coure the labwork. Fast forward almost a month later, I still have this sharp pain and swelling in my abdomen. They have ruled out gynecolocial problems such as a cyst by doing a pelvic ultrasound, They also did an abdominal wall ultrasound on that side, and found nothing. I only wonder about it being gluten related because that particular night, my dinner right before the incident was spaghetti noodles with butter and parmesean, and garlic bread. I always go without the sauce so that it may lessen symptoms of indigestion, but it really seems to not matter. It just feels as if something in there is inflamed or twisted or swollen. If I push on a certain area, it is a sharp sharp pain. I cannot describe it any better than that.

My question, is can your intestines become so swollen and inflamed from an undiagnosed gluten intolerance that it would cause continued unrelenting pain? It is daily, and it does not go away. I called my Clevelend Clinic doc, and she ordered another round of celiac testing through QUEST, as long as a Vitamin B6, B12, and a Vitamin D. Ive never had vitamin levels checked, so maybe the celiac tests along with vitamin levels will help them see something??

I really do not hear complaints of knife-like side pain on here, so I just wondered if this was a possibility. I have had bloating, constipation, indigestion for about 5 years - they just say it is IBS. I can deal with that - just not the sharp stuff :/

Share this post


Link to post
Share on other sites

Have you ever had any scopes done or been seen by a GI doctor?

Share this post


Link to post
Share on other sites

My only celiac symptom is that exact pain you describe, except mine is on the left side. I had CT scans, U/S, XRAYs, tons of blood work and then finally a year later a rheumatologist did the celiac panel and it was positive. I was told by many different doctors I had costochondritis.

Good luck!

Share this post


Link to post
Share on other sites

Have you ever had any scopes done or been seen by a GI doctor?

I had a scope done in 2006. At the time when my tummy upset symptoms all started. About 6 mos. After my son was born - everything went downhill for me. I had diarrhea that lasted for about 6 weeks. Lost 10 lbs - went down to 92 lbs...etc. That is when they did a scope. By the time they did it I was only really consuming the meal replacement drinks and occasionally grilled chicken or rice. The doctor has since left teh practice and I wasn't ever able to follow up with her.

In August 10' I let them do a colonoscopy where they just said it was normal and I have IBS. I have has a Hida Scan done twice in the past two years, as well as had a barium follow through and a gastric emptying Scan. The GI doc is no longer seeing me, and if I call with any pain -he says to "follow up with my regular doctor" because I just have IBS and lactose intolerance:/

It is a very frustrating situation to say the least. I have a full-time job, as well as two little guys (11 and 5). I just feel like something isn't being caught, and it is very difficult to continue on with daily pain. I understand that IBS is a valid disease, and is unpredictable, however this current pain is sharp and unrelenting. It isn't "Spasm'ing" or cramping. And I certainly do not have any diarrhea, so I know it isn't a queasy tummy or anything like that.

My general family physician thought it was a deep muscle strain, until I had a few follow ups in the past week and the pain is still present. He has referred me to a surgeon to see if it may be a hernia (Although two doctors in his practice examined me and couldn't feel a hernia, and CT Scan and Ultrasound are clear).

I do not want to have any surgery if it is merely severely inflamed intestines from a food intolerance. That would be just my luck :(

Share this post


Link to post
Share on other sites

My only celiac symptom is that exact pain you describe, except mine is on the left side. I had CT scans, U/S, XRAYs, tons of blood work and then finally a year later a rheumatologist did the celiac panel and it was positive. I was told by many different doctors I had costochondritis.

Good luck!

I am glad you got an answer :) I know I cannot give up on figuring things out - for my little ones benefit. Sooner or later, something will pan out. It is just getting to that day! If it is just "IBS", I pity anyone who has to live with this on a daily basis :( It's truly a disease that they will not/can not treat, yet affects your life to an extreme extent on a daily basis.

I am just hoping that my blood work shows something this time around. There is a possibility that my previous 3-4 mos of gluten free lowered my levels too much to show positive.

Share this post


Link to post
Share on other sites

Hello All!

I feel like I am forever going through this cycle of "could it be a gluten intolerance", or not. I have had bloodwork done a few different times, but have never really gotten a positive reading. The closest my numbers came to being positive was having a TTG Iga of 16 when it said that weak positive/reference range was 20-30. My total IGA at the time was around 300, so I know I am not Iga deficient.

My symptoms are numerous, and I constantly wonder if my issue is gluten. I have been trying to continue eating gluten until someone is actually able to diagnose it as the problem. Six months ago, I tried a gluten free trial for 3-4 months. I had little improvement. It seems like bloating went away, but I was still having some issues. Could have been my lactose intolerance or another intolerance though since I was told I have many food allergies.It is just very difficult to stick with a gluten free diet without knowing if it is helping.

Recently, my main concern is a sharp right sided pain that has yet to be diagnosed. On 2/2/11, I got a sharp pain that wouldn't go away. It was knife-like. Sent me to the ER, and after a Cat Scan, bloodwork, and urine they sent me home saying I may have strained a muscle in my abdomen. fast forward almost a month later, I still have this sharp pain and swelling in my abdomen. They have ruled out gynecolocial problems such as a cyst by doing a pelvic ultrasound, They also did an abdominal wall ultrasound on that side, and found nothing. So....here I am, with a sharp pain and no explanation. It just feels as if something in there is inflamed or twisted or swollen. I cannot describe it any better than that.

My question, is can your intestines become so swollen and inflamed from an undiagnosed gluten intolerance that it would cause continued unrelenting pain? It is daily, and it does not go away. I called my Clevelend Clinic doc, and she ordered another round of celiac testing through QUEST, as long as a Vitamin B6, B12, and a Vitamin D. Ive never had vitamin levels checked, so maybe the celiac tests along with vitamin levels will help them see something??

I really do not hear complaints of knife-like side pain on here, so I just wondered if this was a possibility. I have had bloating, constipation, indigestion for about 5 years - they just say it is IBS. I can deal with that - just not the sharp stuff :/

i think i had this a couple of times, but now i don't remember. but i could FEEL the inflammation in my intestines. they were ALWAYS hurting. i didn't test positive medically but my doctor said he could see the inflammation damage. i have now been gluten-free for 10 months. after a week or two of following the diet i no longer could feel that inflammation.

Share this post


Link to post
Share on other sites

I had pain in my left side below my rib cage for years. And all over pain in my abdomen. And that stuff hurts!

Anyhow, whine on, whine off. There are some people who have celiac but refuse to test positive on the official doctors tests. We call them RavenwoodGlass. So you have to decide at some point if you are going to believe a doctor and a test result or take a chance on the gluten-free diet. I know you tried it before, but trying it again doesn't hurt anything.

There are plenty of other intolerances around, so consider eliminating them to start with also. The simpler your diet is to start out the better. You can always add food to your diet slowly after you have gotten stabilized.

Share this post


Link to post
Share on other sites

I had multiple inexplicable intestinal pains for years. The right side one was a sharp, stabbing pain that would come out of nowhere and double me over. The left one would be a duller pain that would wax and wane. Not long before my diagnosis both pains were pretty much present all the time. I was diagnosed with IBS prior, then also diverticulosus, and a small hernia after a CT. Within a couple months of STRICT (I'm super sensitive) gluten-free/CF diet both pains were GONE.

Share this post


Link to post
Share on other sites

I was paleo/gluten-free for four years.  For some reason, I got lazy and went back to gluten/wheat products.  At about the same time, I got a really bad case of heartburn from a trip through Taco Bell.  It lasted for several days so I went to my GP who prescribed Cipro because he thought I got a bug that was creating an ulcer.  The heartburn went away, but I immediately started to get diarrhea, gut pain, gas, bloating, etc.  This lasted for a year, then in morphed into non-stop constipation, CONSTANT, SHARP, RIGHT SIDE GUT PAIN, fatigue, depression, gas, and bloating.  I have had this for 3-1/2 years and have been diagnosed by two gastroenterologists with IBS-C but will be going to the Mayo Clinic in August because I don't respond to treatment and it only seems to be getting worse.  I have been tested for celiac disease and came up negative.  

I am currently wondering if, since I was gluten free for four years, is it possible that the combination of the stomach bug, Cipro, and returning to gluten has created a severe gluten sensitivity?  I stopped all gluten/wheat two days ago I it seems to be very slightly better. 

These are the first stories I have read that are almost identical to my own.  My life has been a living hell for 3-1/2 years.  

                 

Share this post


Link to post
Share on other sites

Hi, I was just diagnosed last week with Celiac. In addition to the traditional daily symptoms I kept getting stomach flu every 3 months for the last 2 years and it seemed to get more severe every time. Extreme pain in lower right abdomen, fever, chills, and diarrhea(which I was having daily anyway not knowing it was Celiac). I did have a Abdominal CT scan which said no signs of IBS or Chron's and nothing came up that would relate to the stomach flu I kept getting. Since I'm new to this I have yet to find out if going gluten free will stop the stomach flu-like symptoms.

Are you in a position to see a different GI? I know I had Kaiser a few years back and went through multiple Primary Care doctors until I found one I liked. My mom went through years of being told nothing is wrong with her until a Dr diagnosed Sjogren's syndrome. Not sure if any of that helps but best of luck in getting it nailed down.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
All of Schars products are gluten-free.  They don’t make any that are not.
  • Blog Entries

  • ×
    ×
    • Create New...