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kimtn

How Long To Try Gluten Free?

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Hi Everyone!

My daughter has sensory processing difficulties and some signs of allergies so I am trying gluten-free with her. She just turned four. How long should I try a gluten free diet? The doctor said 2 weeks but that just doesn't seem long enough to me.

Thanks for your help!

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I saw some improvement pretty good improvemnets in 2 weeks(severe stomach aches gone), but 3 months was really the true marker for US.( no more digestive issues, behaviour back to near normal )

Everyone is different sorry to say. But really, for only 2 wks, you will be questioning yourself if it was truly the diet or did you catch a lucky 2 wks.

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A good 2 to 3 months being really strict.


Lupus, Connective Tissue Disease with Fibro type symptoms, Anemia, Anxiety, Depression, RA, Rynauds Syndrome, Chronic Fatigue Syndrome, Erosive Gastritis, Osteoporosis, Degenerative Disc Disease, Scoliosis, Bulging discs in lower back and neck, Pinched Nerves.

 

Soy free, MSG free, mostly Dairy free. Endoscopy shows blunted Villi which dr states as gluten sensitivity, so goin back to being gluten free

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I would doubt you would notice much in 2 weeks, especially if her symptoms are mild.

Hi Everyone!

My daughter has sensory processing difficulties and some signs of allergies so I am trying gluten-free with her. She just turned four. How long should I try a gluten free diet? The doctor said 2 weeks but that just doesn't seem long enough to me.

Thanks for your help!

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We are going to give it 4 months (my son is autistic). Our logic is that we wanted to give it long enough to know for sure and that it is easiest for us now while he is young - our son is 2 - since we have more control over his diet. I've read that it can take several months for gluten to leave your system.

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My daughter's villi were so damaged that she did not have a pain-free day for five months on the gluten free diet. We were told that pathology said her villi were completely flattened to the point that her small intestine interior walls looked smooth- no visible villi upon examination.

Gluten free gets easier as you go along and learn the ropes. When in doubt, call drug and food companies to double check that their product is gluten free.

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I just don't know if I'm making the right decision by trying this food trial. My husband isn't totally on board but what I say goes! He wonders if her symptoms warrant this kind of trial. What do you guys think? Her symptoms are sensory processing disorder, apraxia, aggressive, she's been sick all winter (but then again, so has my son!), dark circles under her eyes, frequent BMs -- sometimes randomly loose with lots of gas, fatigues more easily than used to but she's also pretty capable of high energy play. Her weight and height are normal although her hair doesn't really grow -- not sure if that indicates anything. I'm not saying she has celiac but maybe a sensitivity? She's 4. What do you think?

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Have you had her vitamin and mineral levels checked? Low levels can cause many problems.


Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.

2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.

Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.

So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!

My adult daughter also has been helped by eating gluten-free.

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A,E,D,K,B12, Calcium, Potassium, Iron and Folic acid. There might be more.


Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.

2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.

Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.

So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!

My adult daughter also has been helped by eating gluten-free.

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I just don't know if I'm making the right decision by trying this food trial. My husband isn't totally on board but what I say goes! He wonders if her symptoms warrant this kind of trial. What do you guys think? Her symptoms are sensory processing disorder, apraxia, aggressive, she's been sick all winter (but then again, so has my son!), dark circles under her eyes, frequent BMs -- sometimes randomly loose with lots of gas, fatigues more easily than used to but she's also pretty capable of high energy play. Her weight and height are normal although her hair doesn't really grow -- not sure if that indicates anything. I'm not saying she has celiac but maybe a sensitivity? She's 4. What do you think?

Did you consider going dairy free as well? I just know a lot of cases where the dairy is also a big issue.


2 year old daughter and myself with Celiac gene, negative blood work, yet positive response to glutenfree diet. Will do gluten challenge and endoscopy when daughter goes to preschool.

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Also check zinc levels. I do think the symptoms warrant a trial. OT helped my daughter's SPD quite a bit, but even when she "graduated", she couldn't stand dress-up clothes. Yet several months after being truly gluten-free (she needed a clean-out to reboot her system), she was able to prance around the house in princess dresses.


Older child dx with gluten sensitivity via high IGG gluten

Also very high IGG to milk, eggs, tomatoes, some other fruit and veg

Low vitamins and minerals (vitamin malabsorption)

Neg. celiac panel EXCEPT low total IGA

22 AGA IGA on Enterolab

Younger child with 118 AGA IGA and 26 TTG on Enterolab

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Two weeks isn't enough time to make sure that everything she gets into her mouth is completely gluten free. It's about enough time to realize that you can't share a toaster, or wooden cutting boards, or wooden spoons. Enough time to realize that playdoh has wheat and can cause a problem, and that the toys at preschool are all covered in crumbs from snack time goldfish.

Two to three months is a better way to go, so you can find all of those hidden sources, remove them, and THEN have at least a month or two on the gluten free diet.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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oh gosh, how could i ask her to stop playing with the playdough at school? she's having a very rough time at school but i think she's improved a good bit in her home life. how many "crumbs" of gluten would cause a problem?

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you can get/make gluten free playdoh and ask the school to use that instead.

it takes a VERY small amount of gluten to cause a reaction, and if she plays with playdoh, and then puts her hands in her mouth (or gets crumbs from elsewhere), she is getting contaminated and her body isn't ever getting a real chance to heal.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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