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CourtneyLee

Bad Knee And Shin Pain Since Being Diagnosed?

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hi guys! i've tried to research it but since i was diagnosed i've had the WORST knee pains. i have bad knees from playing netball but these leave me in TEARS.

i had ''growing pains'' when i was growing up but these are worse, and last longer :(


courtney xo

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Oh boy.... do my knees hurt!! :blink: And my hips, ankles, elbows too....joint, bone and muscle pain is an unfortunate symptom of celiac disease and I am told, connective tissues and ligaments are impacted as well.

I had "growing pains" really bad growing up. My Mom blew those off by calling them that. Now, I know better.

Many people on here report a huge decrease in this pain--some eliminated totally-- after being gluten-free for some time. I am encouraged by these stories and hope my excruciating pain will lighten up in time.

You may notice improvement quicker as I imagine you are MUCH younger than I am if you are playing netball :)

Hopefully, you will get relief soon! :)


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Hi Courtney, I can remember having growing pains in childhood as well as all through my adulthood too. They are miserable aren't they?

It took me almost a year before my shin and leg pains went away. But part of my problem wasn't just gluten but the nightshade vegetables. Potatoes, tomatoes, all bell peppers, eggplant, okra and paprika.

They have a toxin that affects some of us. Try kicking those out for about 6 weeks and then reintroduce. I believe you'll have your answer on that.

Good luck.


Lupus, Connective Tissue Disease with Fibro type symptoms, Anemia, Anxiety, Depression, RA, Rynauds Syndrome, Chronic Fatigue Syndrome, Erosive Gastritis, Osteoporosis, Degenerative Disc Disease, Scoliosis, Bulging discs in lower back and neck, Pinched Nerves.

 

Soy free, MSG free, mostly Dairy free. Endoscopy shows blunted Villi which dr states as gluten sensitivity, so goin back to being gluten free

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I just had this problem this week! My left knee (my "good" one) was so achy and sore and it has never hurt at all before. I hurt my right one running, but the left was always fine. I was just diagnosed about 2 months ago, and since then I have been eating so much more fat. I eat alot more nuts and cheeses, when I used to eat more crackers and bread. I don't know if this has anything to do with anything, but I thought the pain seemed kind of like a gout-type pain, so I cut down the fat drastically over the last couple of days and that has corresponded with pain relief in my knee. I haven't had any pain at all since then. Again, I don't know if this is related, but thought I'd put it out there.

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I had terrible iliotibial band pain (runner's knee) for years, even after going to physical therapy.

It got to the point of hurting even when I walked, and after PT I still couldn't run more than a 1/4 before I was out of commission.

After going gluten free for maybe six months, my IT band pain disappeared completely. Now I can run for miles and have no sign of pain.

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I had terrible iliotibial band pain (runner's knee) for years, even after going to physical therapy.

It got to the point of hurting even when I walked, and after PT I still couldn't run more than a 1/4 before I was out of commission.

After going gluten free for maybe six months, my IT band pain disappeared completely. Now I can run for miles and have no sign of pain.

Your post made me laugh, freeclimber, because when I went to a doctor complaining about the pain in my IT bands (after much PT), his response was," Well, you sure have those terms down pat" in a most disparaging tone, like implying I shouldn't know this term as an ordinary patient - as if one wouldn't want to know what it was that was so painful :o Anyway, I WAS no ordinary patient. :)


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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thankyou so much guys! it's amazing because i had growing pains ever since i can remember and now i know it was because of celiac!

hopefully the pain subsides because i'm kind of over it haha


courtney xo

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Your post made me laugh, freeclimber, because when I went to a doctor complaining about the pain in my IT bands (after much PT), his response was," Well, you sure have those terms down pat" in a most disparaging tone, like implying I shouldn't know this term as an ordinary patient - as if one wouldn't want to know what it was that was so painful :o Anyway, I WAS no ordinary patient. :)

and your post made me laugh too, Shroom... because I get that same "condescending tone" whenever I tell PTs or other medical personnel that my iliopsoas is so tight and causing pain or my suboccipitals and traps or my ischial tuberosity is strained rendering me unable to sit comfortably.. :lol: ...of course we know what we are talking about!---we are proactive about our health and know more about the human body than some medical professionals.

Granted, until I got ill and developed so much musculoskeletal pain, I did not know that much about the human body at all. But I sure as heck do now!

Knowledge is power. :D

Courtney, I hope your knees feel better soon!! :)


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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