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ValeriaZ

Oats - Any Statistics?

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Hello, I am new here, could not find recent discussions of the topic

I read so many contradictory info on oats RE: gluten free.

Could you please give me feedback to build some kind of statistics - can you / do you eat oats? If yes - occasionally or regularily?

And also if yes - if you could say (optionally of course) if you have any autoimmune disorder associated to gluten intolerance?

Question because of my kid who has nephrotic syndrome (autoimmune) and I found out he is allergic to so many kinds of food that it is a real nightmare to feed him at all.

Eliminating oats would be tough - basically nothing to eat except rice and buckwheats :( So I really would like to have a better idea on how risky could be oats... I mean - not because of contamination with other cereals, but oats as themselves, with their avenin as protein...

Thank you in advance!

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I've eaten them regularly and intermittently. I use Bob's Red Mill Gluten Free Oats, and I've never had a problem. I have Celiac's Disease (not gluten intolerance or anything otherwise.) Hope that is helpful!


Gluten free: Nov. 2009

Peanut and dairy free: Dec. 2009

Rediscovered dairy: March 2010 (in small quantities)

Peanuts added back: June 2010 (in small quantities)

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I've eaten them regularly and intermittently. I use Bob's Red Mill Gluten Free Oats, and I've never had a problem. I have Celiac's Disease (not gluten intolerance or anything otherwise.) Hope that is helpful!

Thank you!

I am new to it all and still cannot find a lot of answers to my questions. May be you could explain what is the difference between celiac and gluten intolerance?

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I'm self diagnosed gluten intolerant with definite reactions to just a few crumbs of gluten products.. I eat gluten free oats as well. I get them in bulk.. but they are definitely gluten free. I make cookies and have it as cereal sometimes.


Anemia and IBS through my life

2005 Joint pain, exhaustion, general feeling of not being well 2006 Beginning of testing for everything but Celiac 2008 Bloating, more muscle stiffness, feeling sicker, more exhausted-testing 'normal' 2010 March insides begin to shut down, cough that won't go away 2010 June Colonoscopy, Endoscopy, biopsy - all show no problems

Self diagnosed gluten intolerant - went gluten free. Within 3 days feeling better.

After 5 days - insides began to move

Now - feel better than I have felt for 15 years (except when I gluten myself.. which I'm good at)

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Gluten intolerance is the allergy form, I believe, and Celiac's disease is an autoimmune disease. Someone PLEASE correct me if I'm wrong.


Gluten free: Nov. 2009

Peanut and dairy free: Dec. 2009

Rediscovered dairy: March 2010 (in small quantities)

Peanuts added back: June 2010 (in small quantities)

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I call myself self diagnosed gluten intolerant because I haven't been tested for genetics or for antibodies... just had a biopsy that came back normal. However I cannot eat gluten. I found that out by changing my diet and I am not willing to eat gluten to have any other tests done now. It wouldn't change anything for me anyway. Perhaps there is a better definition than mine.... :unsure: that someone will post.

This is the definition.. I think

https://www.celiac.com/articles/30/1/What-is-the-difference-between-celiac-disease-and-gluten-intolerance/Page1.html

Is it not that (to the doctors).. Celiac is a definite positive test results for blood work or biopsy or genetics and gluten intolerance doesn't return the positive results that the doctors want..but still could be Celiac?


Anemia and IBS through my life

2005 Joint pain, exhaustion, general feeling of not being well 2006 Beginning of testing for everything but Celiac 2008 Bloating, more muscle stiffness, feeling sicker, more exhausted-testing 'normal' 2010 March insides begin to shut down, cough that won't go away 2010 June Colonoscopy, Endoscopy, biopsy - all show no problems

Self diagnosed gluten intolerant - went gluten free. Within 3 days feeling better.

After 5 days - insides began to move

Now - feel better than I have felt for 15 years (except when I gluten myself.. which I'm good at)

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:)

Anemia and IBS through my life

2005 Joint pain, exhaustion, general feeling of not being well 2006 Beginning of testing for everything but Celiac 2008 Bloating, more muscle stiffness, feeling sicker, more exhausted-testing 'normal' 2010 March insides begin to shut down, cough that won't go away 2010 June Colonoscopy, Endoscopy, biopsy - all show no problems

Self diagnosed gluten intolerant - went gluten free. Within 3 days feeling better.

After 5 days - insides began to move

Now - feel better than I have felt for 15 years (except when I gluten myself.. which I'm good at)

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I call myself self diagnosed gluten intolerant because I haven't been tested for genetics or for antibodies... just had a biopsy that came back normal. However I cannot eat gluten. I found that out by changing my diet and I am not willing to eat gluten to have any other tests done now. It wouldn't change anything for me anyway. Perhaps there is a better definition than mine.... :unsure: that someone will post.

This is the definition.. I think

https://www.celiac.com/articles/30/1/What-is-the-difference-between-celiac-disease-and-gluten-intolerance/Page1.html

Is it not that (to the doctors).. Celiac is a definite positive test results for blood work or biopsy or genetics and gluten intolerance doesn't return the positive results that the doctors want..but still could be Celiac?

Thank you!

The definitions are confusing, true.

We are also self-diagnosed

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10% of celiacs react to gluten free oats. non-specialty oats are almost universally contaminated at levels too high for celiacs.

what about amaranth, quinoa, and teff (even sorgum as a flour)?


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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ValeriaZ, I found this article that is very much easier to understand, I think and thought you might like to read it. I'm still trying to get this clear in my head too.

https://www.celiac.com/articles/759/1/Early-Diagnosis-of-Gluten-Sensitivity-Before-the-Villi-are-Gone-by-By-Kenneth-Fine-MD/Page1.html


Anemia and IBS through my life

2005 Joint pain, exhaustion, general feeling of not being well 2006 Beginning of testing for everything but Celiac 2008 Bloating, more muscle stiffness, feeling sicker, more exhausted-testing 'normal' 2010 March insides begin to shut down, cough that won't go away 2010 June Colonoscopy, Endoscopy, biopsy - all show no problems

Self diagnosed gluten intolerant - went gluten free. Within 3 days feeling better.

After 5 days - insides began to move

Now - feel better than I have felt for 15 years (except when I gluten myself.. which I'm good at)

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ValeriaZ, I found this article that is very much easier to understand, I think and thought you might like to read it. I'm still trying to get this clear in my head too.

https://www.celiac.com/articles/759/1/Early-Diagnosis-of-Gluten-Sensitivity-Before-the-Villi-are-Gone-by-By-Kenneth-Fine-MD/Page1.html

Thank you!

Very informative article.

No need anymore to convince me to go gluten-free - we are already wheat, rye and barley free with my kid for appr 2 months (he additionally dairy, soy, and (long list) free).

My main concern is oats. In this article it says oats also bad. :( Other articles on this site say no

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If you go to pubmed and look at the research on oats in celiacs, you'll see that, on average, 10% of the particpants eating gluten free oats experience intestinal damage. I don't have time to link the studies for you (10 month old crawling around and all), but you may find it informative to look them up yourself.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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