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jasonD2

My Mother Is Off The gluten-free Diet

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i went thru hell to get her tested and she was somewhat strict but now shes back on gluten, although she claims not as much. im so exhausted from it all and just dont have the energy to worry about what she eats anymore. is there anything else I can do? she tested negative for celiac but she is still overweight and complains how she cant loose it. when she started the diet she lost 10 lbs and then got it all back when she went off the diet.


Endoscopy & blood panel all negative 12/09 after being strict w/ gluten free diet

As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's

Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon

Had negative celiac blood work in 02

Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008

Positive for DQ8- 2008

Tested high positive for egg, dairy, soy, ginger, mustard - 2008

Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability

Improved with gluten free diet but still have spastic constipation

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Jason, I think you have been a really dutiful son and have done your best for you mom, but ultimately it has to be her decision how she lives her life. You cannot make her do something she chooses not to do. She does know the facts, she just chooses to ignore that gluten free makes her feel better - maybe it doesn't make her feel enough better to justify (to her) the sacrifice of things she loves. There is nothing you can do about this.


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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