Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Don't Know What Is Wrong


Googles

Recommended Posts

Googles Community Regular

I will have been gluten free for two years in June.

I have been having digestive issues for a couple of weeks. Diarrhea, nausea, intermittent vomiting. I went to the doctor and first they suggested that it was a stomach virus and should go away in 7-10 days. But it didn't. I went back and they took blood and stool samples (bacteria and parasites). The only finding was that I was slightly anemic. I am going back this week hopefully. I was thinking that maybe it is lactose intolerance, until I ate a kiwi and it came through with parts of it undigested a couple hours after eating. Any guesses as what this could be? I know people say that people can become lactose intolerant after going gluten free, but two years later? What specifically should I ask to be tested for when I go see the doctor this week?

Thanks.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

I would get your celiac panel redone just to see. I did well for the first year gluten free then I started having issues again. Diarrhea, heartburn/reflux, belching, pale stools and pain in my right upper abdomen. I thought it was my gallbladder. Had tests and did find I had a underfunctioning gallbladder but not bad enough for surgery. It was still functioning at 48% at the time. I ended up a few months later having a repeat EGD and the doctor found esophagitis (expected because of the reflux), gastritis, small stomach ulcer, and inflammation in the duodenum. According to the path reoprt there was no villi blunting though. So.. I went on zantac for a few months to heal the ulcer but the other symptoms were getting worse. My doctor wanted to lable me with refractory celiac and put me on steroids. I refused them and told him I would look for other things to eliminate in my diet. He put me on creon also. I found out that I was reacting to all Bobs Red Mill products from the gluten free oat contamination. I had almost exclusively ate BRM products from day one of diagnosis. I knew I couldn't tolerate gluten free oats when I ate them 7 months into the gluten free diet but never gave the cc from them a thought. It really took awhile to bother me. I solidified my theory by eating some gluten free bakery products made from BRM products at Disney in Jan. It took about three days but all heck broke loose. So my point is maybe you are reacting to a gluten free product and you are not aware. I thought I was doing everything right then that popped into play. I also don't eat anything processed on shared equipment. I only eat some processed stuff now and I am much better. Not 100% though, because I think the celiac flare up caused more damage to my gallbladder. It gives me problems more than it did before. I also think the other findings from my last scope were caused by the gluten free oat/gluten contamination.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,182
    • Most Online (within 30 mins)
      7,748

    KarolRmz
    Newest Member
    KarolRmz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
    • awright24
      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
    • Eldene
      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
×
×
  • Create New...