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CruiseWriter

Delaware Doctors Suck

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Here's my experience with doctors----bad all across the board. It all started in 1999, when I was diagnosed with asthma from second-hand smoke after working in a casino where everyone seemed to smoke all the time. I was put on steroids. Weight gain,depression,anxiety soon followed. More weight gain. More weight gain. 2 doctors guessed I was bipolar so I was put on meds for that. Shrink says no,you're not bipolar. More weight gain. Mouth ulcers appeared several years ago,which doctor said it's from stress. Still have the ulcers,must be super stressed out. Thyroid issues and hormones refuse to balance themselves out. More weight gain. Underwent brain/pituitary MRI for possible tumors. No tumors. Went through 3 endos,couldn't find one that I liked. Went through 4 PCPs,couldn't find one that I liked. One considered me to be a mental case and said I needed "therapy and Weight Watchers." Took myself off the steroids last summer,thinking that was the cause of said weight gain. Have not lost a pound,continue to gain. Current primary finally referred me to an allergist,who concluded I never had asthma in the first place,that I have acid reflux that mimicked the signs of asthma. No asthma. At all. I'm pissed as now I have more meds to take. Referred myself to gastro, who guessed IBS. Recent endoscopy showed acid reflux as well as mild stomach erosion. Still no Celiac diagnosis. My brother said I should sue for being misdiagnosed all the time,but I've been seen by so many doctors.....pick a doctor. Which one is to blame for my downfall? :angry:;)

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Sorry you had that experience it really sucks when you are sick and no one believes you. I had Neurological, Dermatological, and Gastrological symptoms as well as Thyroid problems. The Dr. sent me to a Psychiatrist for depression, the Psychiatrist said, you need a Dr. The Dr. said go to a Dermatologist, the Dermatologist said you have neurotic excoriation, you need a Psychiatrist.The Psychiatrist said it's probably IBS and Fibromyalgia and said go to a Rheumatologist, the Rheumatologist said, you need a Dermatologist there is nothing I can do for you. (without ordering tests mind you) I had an internist accuse me of being alcoholic due to vitamin problems and sores and ketones in my urine. I don't even drink alcohol. I was diagnosed with Fibromyalgia but was so anxious and depressed that I kept going back to the Dr. who said, If you don't take a Yoga class or go to therapy, I'm not going to see you anymore. Absolutely true. After 7 years of this with 25 Dr.'s who did not believe me, I finally found Celiac.com. After I told him the diagnosis and the response on the Gluten free diet. Now my vitamin levels are important, and my thyroid is important, and my secondary autoimmune disease is important. But I wasn't very important nor were my symptoms until I told them the diagnosis. This Doc still wants me to see a Rheumatologist and a Dermatologist but no way...I have paid them so much money and got nothing but humiliation while I was absolutely totally and completely ill mentally and physically.

I love Celiac.com. I wouldn't have medical care now if it weren't for the information here. Nor would I be well. I am thrilled with my progress but where do you go to get those lost years back? Or where do you lay down the Anger? All of it could have been avoided if even one of the twenty five had even a clue about Celiac. It was a nightmare. But now I am awake...and healing.

How did you find out about Celiac? How long have you been healing?

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How did you find out about Celiac? How long have you been healing?

I pretty much diagnosed myself as the dozens of other doctors couldn't diagnose me with their years of medical school and advanced training. Hmmm, maybe I should go to med school? I spent hours online researching my symptoms, never thought it was Celiac due to the 100 pound weight gain. For weeks did nothing but research, then told my primary about my suspicions for food allergies and possible Celiac and she sent me to an allergist,who didn't do anything but confirm I never had asthma in the first place. I referred myself to the gastro,who tested me for Celiac,but I was negative. Still,after my endosopy two weeks ago,I decided to go gluten-free this past weekend.

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I had 100 lb weight gain too! You will be feeling so much better in just a few weeks. I lost 80 of it in 7 months. Whew! And yes, you should go to medical school! We need Dr.'s like you.

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