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mushroom

Gluten Free Labeling Summit

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1in133.org - Support Gluten-Free Food Labeling

It's Time For A Labeling Summit

On May 4th, the American Celiac Disease Alliance and other community leaders will gather for a gluten-free labeling summit in Washington, DC. And to kick-off National Celiac Disease Awareness Month, gluten-free chefs will be constructing the world's tallest gluten-free cake! To learn how you can get involved and support this event go to 1in133.org .

Gluten Free Standards Needed More Than Ever

Since Congress passed the Food Allergen Labeling and Consumer Protection Act (FALCPA) in 2004, the celiac community has waited anxiously for the FDA to complete the gluten free labeling standards. Days have turned to months and then to years.

Our patience is gone. Parents, patients, food manufacturers, and health care professionals are frustrated and concerned about companies placing 'gluten-free' stickers on all sorts of products, including bottled water. Without gluten-free standards, companies aren't testing or verifying ingredients, they are free to put 'Gluten-Free' on products without regard to the health and safety of the end consumer.

Lawmakers need to know FDA hasn't finished the gluten-free rules and they need to hear it from you!

Take Action Today -- Tell Congress . . . . and tell a friend

http://www.1in133.org/

The table you will find at this link of the incidence of gluten sensitivity in the U.S. population, as compared to things that get lots of attention like diabetes and epilepsy, will amaze you.

Find a way to help force the FDA to do something constructive for the gluten intolerant/celiac community.


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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Celiac.com Sponsor (A8):

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This is awesome! It is such an encouragement to know people are fighting for us!


Gluten Free since November 2010 and feeling fantastic!

(Mis)diagnosis with IBS in 2004

MSG and caffeine free since 2001

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Shroom!

Thank you for posting this.

I signed, sent and then, spread the word to my email list.

Let's hope we are heard!

IH


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Jules Shepard stand beside the world's tallest gluten-free cake 4-May-11 a the Gluten Free labeling summit in Washington, DC.

World Tallest gluten-free cake 4-May-11


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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Jules Shepard stand beside the world's tallest gluten-free cake 4-May-11 a the Gluten Free labeling summit in Washington, DC.

World Tallest gluten-free cake 4-May-11

Did you get a bite?

Now the important info my 15 year old son wants to know:

How tall? How many pounds?

What flavor? Was it yummy?


 

 

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Did you get a bite?

Now the important info my 15 year old son wants to know:

How tall? How many pounds?

What flavor? Was it yummy?

How tall?

It wuz big, I mean realrry big! It wuz taller than 2 Jules Shepards on top of each other. Certainly over 12 feet. But not as high as the moon. Kind of in-between. There wuz a 2nd floor balcony behind it in the pic. The wood in the top right side of the pic.

How many pounds?

Not sure, I heard something about 700 pounds of flour. And they were bringing out icing in 5 gallon buckets to cover it, many times over with the buckets of icing. There were kids helping with the icing and I saw some of them doing little taste tests. They didn't stop afer the first try... Kad bids!

What flavor? Wuz it yummy?

I didn't stay around to taste it. Some congressmen were supposed to show up at 5:30 but didn't so I left around 6 PM. They didn't cut the cake before I left. Since I didn't taste it, I just have to make a best guess. I am guessing it wuz a peanut butter rum cake.

There were several all-thread bolts and nutz used in the construction of the cake. Also some plywood and aluminum foil. Several ladders were needed to reach the top for adding new layers.


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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How tall?

It wuz big, I mean realrry big! It wuz taller than 2 Jules Shepards on top of each other. Certainly over 12 feet. But not as high as the moon. Kind of in-between. There wuz a 2nd floor balcony behind it in the pic. The wood in the top right side of the pic.

How many pounds?

Not sure, I heard something about 700 pounds of flour. And they were bringing out icing in 5 gallon buckets to cover it, many times over with the buckets of icing. There were kids helping with the icing and I saw some of them doing little taste tests. They didn't stop afer the first try... Kad bids!

What flavor? Wuz it yummy?

I didn't stay around to taste it.

There were several all-thread bolts and nutz used in the construction of the cake. Also some plywood and aluminum foil. Several ladders were needed to reach the top for adding new layers.

Thanks for the on- site reporting. M was thrilled to hear about this. J, my HS senior, heard and was intrigued. Because they like to build stuff, there was much speculation about how to make a sound, yet edible, structure ( one has watched Cake Boss).

J decided to do his current events report on the summit. He said this one he actually read the whole report and learned something. He came to me with questions. I have very little info an 18 yr old wants to ask about. :)

thanks, Paul. The fact that you are an artist in DC made my oldest more interested. Being an artist gives you credibility for him. :)


 

 

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Here is an interview with Jule Shepard about the event:

Having your (gluten-free) cake and eating it too

Karen, you got one smart kid there! :D


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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Here is an interview with Jule Shepard about the event:

Having your (gluten-free) cake and eating it too

Karen, you got one smart kid there! :D

Apparently, the gluten-free diet became quite a conversation in his History class. One of the girls has Celiac & she & J talked about it to the class. He said they usually don't discuss the current events articles except the most interesting.


 

 

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Any truth ot the rumor that is just the cake from Chelsea Clinton's wedding?

Check the photos...it shows them making it in the Whole Foods bakery in NC.

http://www.flickr.com/photos/1in133/


Sylvia

Positive Celiac Blood Panel - Dec., 2009

Endoscopy with Positive Biopsy - April 9, 2010

Gluten Free - April 9, 2010

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