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    Do you have questions about celiac disease or the gluten-free diet?

Dee777

I Might Be An Idiot, But I Am Desperate...

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I will find out for you Irish! A bit of a setback today, just a bit more D than the past few days. I was wondering do you think it was because I was a bit late in taking my probiotic? And do you know how long before I can expect the D to "bulk up"? Sorry to sound so descriptive but its still somewhat watery :-) Oh my I so never expected to ever have so many poop conversations lol

:lol: talking about poop doesn't bother me anymore....it is what it is... B) I'm cool with it....LOL!!

Well, I am interested in what type of anemia they are treating you for , but honey..... do not find out for ME, find out for YOU! ;) YOU need to know what the heck is going in your body. You need to know what anemia was created by the celiac..... so you can monitor your progress and know what needs to be done in the future for good health. It's overwhelming right now because you feel like crap (yup, I said it!) and so, I am helping you because I was in your shoes just a short time ago and had to figure it all out myself. I read a LOT and that's how I came to be on here!

Dee, One of the many (thousands) of things I have learned during my 3 year odyssey with the dozens of "health professionals" I met is.....

ASK questions.

Get COPIES of your tests results (you have a right to them and your medical files)

DO NOT leave an office until you are SATISFIED that all of your questions have been answered and concerns have been met.

I was so sick and out of it, I blindly followed everyone's "advice" and it set me back in ways you cannot imagine. I was misdiagnosed so many times and took drugs that made things WORSE! Someday, I am going to write a book about it all.

Secondly, Probiotics do not work quickly. They work cumulatively and in time. They do not work on the system like fiber or anti-diarrheals. Plus, You can't take them "too late" so do not worry about that. Just take them daily, on an empty stomach (which shouldn't be hard given your fast flush response :unsure: ).... They replenish the gut with good bacteria, balancing out the bad ones and reduce the gut inflammation, which is what celiacs have BIG TIME! In TIME, the gut walls heal and absorption will return and food will be digested properly and the big D will stop. I promise.

To "bulk you up", you need FIBER and water. Water bulks up the fiber and makes "good stools"...You need to EAT. The trick is which fiber-filled foods can you eat? Apple? Rice? Starchy vegetables? sweet potatoes? baked potatoes? "Google" Foods high in fiber and look at the list of foods. Gradually add them into your diet. I personally used psyllium husk to bulk up but you HAVE to drink a LOT of water for it to bind and make good stools.

Oh dear Gawd :lol: ...I cannot believe I am saying all this. :blink: I was an English prof. (LOL) and now, I am lecturing about poop...LOL LOL LOL

Be patient, Dee. As others told me, this is a rocky up- and- down road to healing BUT it happens. Water, fiber, probiotics and take your supplements. Find out what is in those intravenous bags--I am guessing either B-12 or iron. If it is iron, I am stunned you are not backed-up as that causes, hard dark stools......

okay, let me know!!!

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:lol: talking about poop doesn't bother me anymore....it is what it is... B) I'm cool with it....LOL!!

Well, I am interested in what type of anemia they are treating you for , but honey..... do not find out for ME, find out for YOU! ;) YOU need to know what the heck is going in your body. You need to know what anemia was created by the celiac..... so you can monitor your progress and know what needs to be done in the future for good health. It's overwhelming right now because you feel like crap (yup, I said it!) and so, I am helping you because I was in your shoes just a short time ago and had to figure it all out myself. I read a LOT and that's how I came to be on here!

Dee, One of the many (thousands) of things I have learned during my 3 year odyssey with the dozens of "health professionals" I met is.....

ASK questions.

Get COPIES of your tests results (you have a right to them and your medical files)

DO NOT leave an office until you are SATISFIED that all of your questions have been answered and concerns have been met.

I was so sick and out of it, I blindly followed everyone's "advice" and it set me back in ways you cannot imagine. I was misdiagnosed so many times and took drugs that made things WORSE! Someday, I am going to write a book about it all.

Secondly, Probiotics do not work quickly. They work cumulatively and in time. They do not work on the system like fiber or anti-diarrheals. Plus, You can't take them "too late" so do not worry about that. Just take them daily, on an empty stomach (which shouldn't be hard given your fast flush response :unsure: ).... They replenish the gut with good bacteria, balancing out the bad ones and reduce the gut inflammation, which is what celiacs have BIG TIME! In TIME, the gut walls heal and absorption will return and food will be digested properly and the big D will stop. I promise.

To "bulk you up", you need FIBER and water. Water bulks up the fiber and makes "good stools"...You need to EAT. The trick is which fiber-filled foods can you eat? Apple? Rice? Starchy vegetables? sweet potatoes? baked potatoes? "Google" Foods high in fiber and look at the list of foods. Gradually add them into your diet. I personally used psyllium husk to bulk up but you HAVE to drink a LOT of water for it to bind and make good stools.

Oh dear Gawd :lol: ...I cannot believe I am saying all this. :blink: I was an English prof. (LOL) and now, I am lecturing about poop...LOL LOL LOL

Be patient, Dee. As others told me, this is a rocky up- and- down road to healing BUT it happens. Water, fiber, probiotics and take your supplements. Find out what is in those intravenous bags--I am guessing either B-12 or iron. If it is iron, I am stunned you are not backed-up as that causes, hard dark stools......

okay, let me know!!!

Good day to you, Irish.

The goods in the bags are potassium. I received an injection of B-12 apparently, I don't remember this but usually when I have been prone on the hospital bed I tend to sleep and haven't really paid a whole lot of attention to what they have been doing. I asked the nurse about the iron issue and she looked on my file and said that the levels are borderline low and not low enough apparently to warrant intravenous intervention. So, potassium because those levels are apparently low. BUT, I am feeling ever so much better. Eating three small meals a day and a few snacks in between, and for the most part keeping that in. I believe the probiotics are what are making all the difference. I ran out of them yesterday as the pharmacy couldn't get them in as soon as I needed them so was without for 24 hours. I managed to get some today from another place (same brand) and things really preked up considerably from yesterday. Who would have thought a few hundred billion bacteria would make such a difference?

My husband tells me we must have a contingency plan in place in case this happens again, bless his heart. I am so lucky he is such a supportive man. I am so lucky to have such supportive friends in here to help me through these tough times, I give you most of the credit for my recovery thus far. I seriously doubt I would be feeling this well if it weren't for your knowledge and advice, so thank you SO much!

Irish, you are an English prof with a degree in gastroenterology lol

Dee

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Good day to you, Irish.

The goods in the bags are potassium. I received an injection of B-12 apparently, I don't remember this but usually when I have been prone on the hospital bed I tend to sleep and haven't really paid a whole lot of attention to what they have been doing. I asked the nurse about the iron issue and she looked on my file and said that the levels are borderline low and not low enough apparently to warrant intravenous intervention. So, potassium because those levels are apparently low. BUT, I am feeling ever so much better. Eating three small meals a day and a few snacks in between, and for the most part keeping that in. I believe the probiotics are what are making all the difference. I ran out of them yesterday as the pharmacy couldn't get them in as soon as I needed them so was without for 24 hours. I managed to get some today from another place (same brand) and things really preked up considerably from yesterday. Who would have thought a few hundred billion bacteria would make such a difference?

My husband tells me we must have a contingency plan in place in case this happens again, bless his heart. I am so lucky he is such a supportive man. I am so lucky to have such supportive friends in here to help me through these tough times, I give you most of the credit for my recovery thus far. I seriously doubt I would be feeling this well if it weren't for your knowledge and advice, so thank you SO much!

Irish, you are an English prof with a degree in gastroenterology lol

Dee

Oh DEE!!

I am so happy you are feeling better--gimme a cyber-space high five, girl!! yeehaw!

I have the most amazing husband, too. :) I simply would have gone stark raving mad had it not been for his unconditional love and support these past 3 horrifying years. He even went gluten-free with me and bakes our gluten-free bread and knows how to read labels!! (I know, he's a doll!)

Potassium--aha..one of the things affected by celiac disease. Your doctor is on top of things!

Doctors do not suggest probiotics, which is too bad because they are ESSENTIAL to gut repair and reducing inflammation. Good bacteria is crowded out by the bad in leaky guts and that's NOT good. I would not have known it myself had I not had the stool testing. Yuck and oh, the things we do to get well :blink:

Here's a great article (written in fact, by the doctor who started this website!) that explains why we need probiotics to heal our leaky guts. Very interesting!!!!

http://www.thefooddoc.com/probiotic_facts

I am so happy for you!! :D Keep me posted on your progress!

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