Jump to content
  • Sign Up

Rate this topic

Recommended Posts

While further investigating me for celiac my doc ordered some tests for nutrient levels. My potassium level scored low, low enough to have me eating lots of bananas and OJ before re-testing me next week.

Interestingly, for quite some time before going gluten-free I would wake up with very stiff and achy muscles and joints (not normal for 36, in hindsight!). It would take about 45 minutes of moving around the house before I felt normal. This vanished after less than a week being gluten-free.

How common is low K in celiac? I loathe oranges, although I am cool with eating lots of bananas. Is this something that should improve over time?

Share this post


Link to post
Share on other sites

I think it will take more than bananas to bring your potassium levels up. You need a prescription potassium supplement. However, it is not easy in U.S. to find one guaranteed gluten free as I found out last summer. I went the bananas route over a three-day weekend because I couldn't get the supplement, was practically swinging from trees I ate so many, and it was enough to get my blood levels up a bit above low, but there was no potassium in my cells and I went into atrial fibrillation due to low potassium anyway. It took me 24 hours in ICU to convince the doctors I needed potassium.

Share this post


Link to post
Share on other sites

I have that problem myself. Orange juice helps a lot as well as bananas. Not sure if you can have milk but milk has the same amount of potassium as orange juice. I have the achy muscles and stiff joints too. In the morning, I have coffee and OJ and a banana and rice chex with milk. It helps a lot. If I skip this meal, I feel it.

Share this post


Link to post
Share on other sites

I think it will take more than bananas to bring your potassium levels up. You need a prescription potassium supplement. However, it is not easy in U.S. to find one guaranteed gluten free as I found out last summer.

I didn't realize there was an Rx version, although I guess that's not too surprising. My local pharmacy is very good (little indy place, not giant chain) so if there's a gluten-free version on the market they'll find it. Do you know what brand it was? I'm due for my new blood work in 5 or 6 days and I'll see if bananas (yum) and OJ (ick) do the trick. the lab failed to mail me my actual blood test numbers so I need to call them about that too. I'm also waiting on the result of the gene testing for celiac which is expected to be positive.

Share this post


Link to post
Share on other sites

also, coconut water has lots of potassium - 670 mg for 11.2 oz :)

Share this post


Link to post
Share on other sites

Got the numbers today and they were below normal. But I had the same blood test last fall as part of a physical and the potassium is down 8% in 6 months. Last fall it was on the lowest level for the "normal" range.

And I'm positive for the celiac gene. I still don't have a single lab test that is 100% unambiguous for celiac, but all signs are pointing in that direction, basically my doc thinks we happened across it in the early stages during the biopsies investigating reflux. Since going gluten free I've been able to quit Prilosec and I think I'm almost done with the acid rebound problem associated with that kind of drug.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

×