Jump to content
Celiac Disease FAQ | This site uses cookies GDPR notice. Read more... ×
  • Sign Up
0
L Ceezy

New From Nyc

Rate this topic

Recommended Posts

Hello, my name is Lauren and I actually live over in Hoboken, NJ, but work and play in Manhattan. I'm 28 and was self-diagnosed and them confirm one year ago. I've had Celiac since I was 17 and I missed 55 days of school my senior year from just being too tired to get up. I had a really tough next 10 years. I kept trying everything to figure out what was wrong with me and wouldn't give up. Everyone else said I was crazy, I was just depressed, I was a hypochondriac, I'm fine, etc., including many doctors. By the last few years I was having bathroom issues about 8 times a day and could barely eat. But apparently that's IBS and I'm supposed to live with? It wasn't possible.

2 summers ago I went to my doctor in tears because I could not get out of bed at all. It was such a struggle to get to the doctors. I told him I seriously cannot go on like this. He said okay, so I might as well give you everything. He put me on testosterone cream, cortisol, and a supplement called Travacor, which contains 5-HTP. These helped enough to get me moving somewhat, and in April I had enough energy to plan a trip to Kripalu (a yoga retreat center) for a week long workshop on nutrition and cooking. I had been trying to eat healthier for a while, but of course that included lots of whole grains. I was worried about sharing a bathroom at the retreat space, but I decided it was too important and I just had to deal.

While there, I learned about Celiac. I had heard of gluten-free and stuff before, but decided I didn't want to be one of those people, lol. Well once I really learned about it I was like holy s$#&! This is it!!

I had always described my pain and difficulty in eating with "it feels like I have a sunburn inside my stomach" and once I saw a picture of a Celiac small intestine, I knew why! Everything was explained, the 8 billion cavities I've had, the severe acne, the diarrhea immediately after eating, even the odd result on a liver test that prompted a doctor to call for a liver biopsy.

So that's my story before knowing. Well, obviously some other crappy things happened as a result of being sick too, but figured it was long enough. Now that I've known, I am SO happy, all the time! I just can't even get that upset about anything, as long as I don't feel how I did before. I mean, I've only known for a year, and I've made a lot of mistakes like anyone else, but even when I get glutened at least I know what it is and that IT WILL GO AWAY!! :D

Now I just want to work on my health, and help others. I'm applying to go back to school full-time for nutrition in the fall, after I get my two A's in the classes I took this semester on Friday :) The things I'm doing these days are blowing my mind, I never thought I'd be able to. Like going to Bali for the month of August to finally get certified in yoga. I've been doing yoga since I was 18, and it's really the thread that held me together all those years. I was always too afraid to make the commitment to go to yoga school before though, because I knew one day I'd be too tired to make it, and would disappoint everyone and myself again. Now I KNOW I can do it! :)

Alright well thanks for reading this all, much love <3

Share this post


Link to post
Share on other sites

Welcome to the board LC! It's great that you are feeling better. Congratz on your new activities. Feel free to ask questions and hang around the threads. Nice to have you here!

Share this post


Link to post
Share on other sites

Hi, welcome to the board! It sounds like you have a really great attitude - way to go! Keep trucking ahead! By the way, I'm a certified yoga teacher, and that really helped me a lot as well. :)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Top Posters +

  • Upcoming Events

    • February 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×