Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Getting Info On Fructose Malabsoption/intolerance


gary'sgirl

Recommended Posts

gary'sgirl Explorer

Hi All,

I was wondering if anyone would be willing to help me with finding sources of good information about fructose malabsorption. My natural practitioner thinks that I may have this and I would like to request that my midwife order the hydrogen breath test, but she thinks that all my symptoms are just related to depression and not actual physical symptoms. So, I was hoping to be able to print out some legitimate research that I could bring in to her when I have my appointment on Wednesday.

I have been diagnosed with Celiac for about 20 months now and have tried eliminating all of the most common foods that other celiac sufferers tend to have a hard time with. I also have been on the SCD diet for 9 months and I have had very little - if any - improvement. I know that it's not from CC, because my house is completely gluten free and I call on all my products including toiletries to make sure they are gluten free.

Thanks in advance for any help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Simona19 Collaborator

Hi All,

I was wondering if anyone would be willing to help me with finding sources of good information about fructose malabsorption. My natural practitioner thinks that I may have this and I would like to request that my midwife order the hydrogen breath test, but she thinks that all my symptoms are just related to depression and not actual physical symptoms. So, I was hoping to be able to print out some legitimate research that I could bring in to her when I have my appointment on Wednesday.

I have been diagnosed with Celiac for about 20 months now and have tried eliminating all of the most common foods that other celiac sufferers tend to have a hard time with. I also have been on the SCD diet for 9 months and I have had very little - if any - improvement. I know that it's not from CC, because my house is completely gluten free and I call on all my products including toiletries to make sure they are gluten free.

Thanks in advance for any help!

Hi!

I have fructose intolerance and I had fructose intolerance breathing test. It was positive for me. The technician tested two gases, not just one. She tested me for methanol too. I had only methanol readings high. The technician gave me to drink 1 cup some special liquid and checked my breath every 20 minutes. I asked her how she will know if I have it. She told me that normal people will have spike in readings only ones at the beginning and fructose intolerant will have twice- Second time after 2-3 hours. Which is the truth. I tried to eat apple and I will have bloating twice, second time ( after 2-3 hours) stronger then ever. Maybe you can try to do the same. Or eat pear, or watermelon. You can find out by yourself, if you have it. With fructose malnutrition you can have bloating, gas, even diarrhea which is similar to celiac disease. When I went gluten free I started to react very strongly to fructose. It is possible that you have it too.

I dont have any material about fructose malnutrition or intolerance. I found all information on internet.

Open Original Shared Link

and I found this: Open Original Shared Link which is scary. This is just for heriditery fructose malabsorption.

Newtoitall Enthusiast

Open Original Shared Link (Helpfull Blog)

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link (Girl with FM's Blog)

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link ( some comments on High fructose corn syurp free candy)

Open Original Shared Link (Info on the rare hereditary version, if you by chance were curious)

Open Original Shared Link (really well laid out guide of good and bad foods for FM)

Open Original Shared Link (Facebook topic on FM lol)

Open Original Shared Link (Guide to FM and IBS and dealing with it)

Open Original Shared Link (Support grp that had a section on FM)

Open Original Shared Link (pretty detailed site of IBS relating to FM and diet)

ok I actually had more believe it or not,when I first started dealing with all of this I was just sensitive to EVERYthing so I assumed the worst lol

anywhoo I hope something here is what you need, and helps I know dealing with FM isn't easy, the diet sucks at first, sugar withdrawl is a BITCH xD

gary'sgirl Explorer

Thanks you guys! I'll check out those links. :)

Simona19 Collaborator

I found one more thing : Open Original Shared Link

Check the list on the right side.

gf-soph Apprentice

Thanks you guys! I'll check out those links. :)

The single best thing is to join the 'fructose malabsoprtion australia' yahoo group. There you can get access to some recent research papers, including ones that involve scientific explanations of the process and research studies.

The best lists of fructose and fodmap content come from Monash University in Australia, as they are the ones actually testing food. Authors to look out for include Shepderd and Gibson. If there's conflicting info, always go with Monash and Shepherd first, as they are testing and publishing right now. Some of the other information on the net is old and incorrect.

Also, if you search fructose malabsorption here at celiac.com you will find posts from others looking in to the topic.

Kim69 Apprentice

Yes, look at shepherd works - I happen to live near sues practice in Melbourne Australia. I got dietary advice from her dietitians when I was diagnosed Coeliac and then later with fructose malabsorption and lactose intolerance. Sue was diagnosed with celiac disease when she was studying her masters degree in Dietics.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748

    Rockette47
    Newest Member
    Rockette47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.