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#*@($ !#*^% Doctor!


thleensd

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thleensd Enthusiast

Speaking of "safe" and clean...We make our bread and the only place we eat out is in an entirely gluten-free cafe. I got lucky-- there is one about 45 minutes away. Just awesome. The first time I ate there, I started to cry....I knew I would be able to eat and not get sick :D

Been there, done that! "You mean I can eat *everything* here?" *tear* .... if I had the energy and money I'd totally open up a cafe!

Can I ask what state/country you're in?

JER due to BDA ... being dicked around? :lol: We kill me. :lol:


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thleensd Enthusiast

My dog's veterinarian spends more time with her than most of the doctors have spent with me.

Yep, JER.

HA! Totally. I wish my doc was my cat's vet!!

IrishHeart Veteran

Been there, done that! "You mean I can eat *everything* here?" *tear* .... if I had the energy and money I'd totally open up a cafe!

Can I ask what state/country you're in?

JER due to BDA ... being dicked around? :lol: We kill me. :lol:

:lol: :lol: :lol:

I am in upstate NY! :)

mushroom Proficient

HA! Totally. I wish my doc was my cat's vet!!

No, no - you have to let someone in the family be well treated :P

IrishHeart Veteran

You know...my cat's Vet is so loving and caring and leaves no stone unturned when figuring out what ails her....I want her to be MY doctor... :lol:

thleensd Enthusiast

No, no - you have to let someone in the family be well treated :P

Oh wait.... haha... I guess I should've been more specific. I wish that my cat's vet (who is awesome) was my doctor, too! lol! :P

IrishHeart Veteran

Oh wait.... haha... I guess I should've been more specific. I wish that my cat's vet (who is awesome) was my doctor, too! lol! :P

I thought that was what you meant...! :lol: :lol:


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Marilyn R Community Regular

No, no - you have to let someone in the family be well treated :P

Thank you for a good belly laugh! Love your sense of humor. :D

cassP Contributor

Me, too...that's when they reach for the pad to write antidepressants and anti-anxiety scripts :rolleyes: ....like that's the answer.

And I totally agree about the whole foods approach. Helped me immensely.

omg TOTALLY!!!!! when i broke down in front of my PCP, telling her that i KNEW that Synthroid was not the right medication for me, she was like " uh... i think there's something else going on here"... she wanted to explore antidepressants!!!!! <_<

i went into a walk in clinic months ago, sobbing- i was in so much pain- my stomach muscles were spasming- it was a STABBING pain.... i told the doc i wanted muscle relaxers.... he was resistant, but instead wanted to push Percocet or Lortab on me- maybe 10 years ago i would have jumped on that- but i was like "NOOOOOOO i dont need to mask the pain and i DONT NEED CONSTIPATION... i NEED MY MUSCLES TO RELAXXXXX" haha turns out i needed Vitamin D, which my doc never explained.

now im almost out of my Xanax .25 that i take twice a week after ive been gasping for air all day- and my Endo doesnt want to give me any, and wants to send me to a pulmonologist- I DONT NEED A PULMONOLOGIST!!!!!! i NEED some relief when im suffering panic attacks from swinging to hyper to hypo and back again... GEEZZZZZZZZ... nurse said i could have meds for palpitation- i said "i CAN HANDLE THE PALPITATIONS, i CANNOT HANDLE THE SUFFOCATING " :angry::angry::angry:

uh.. can u tell im suffering from JER today?

cassP Contributor

OMGGGG "BDA"????? u guys are HILARIOUS!!!!! i love it... yes i sometimes suffer from JER & BDA :lol:

someone please send this thread to all of our doctors LOL

Roda Rising Star

I buy bob's red mill gluten-free flours. I do consider myself one of the super-sensitives, though. I feel special? :P

>>

Just thought I would throw something out there for you to chew on. I went 8 months chasing down what my problem was starting in Jan. 2010. From every aspect I was gluten free. I was suffering from epigastric/RUQ pain, diarrhea, reflux, fat malabsorption, etc. I didn't think it was gluten cc because that wasn't what my symptoms were before. Many tests later my GI wanted to put me on steriods since my gliadin Igg was still positive. I refused and told him that I would look again at what I was eating and pretty much start from scratch. He did give me a RX for creon which I took for about 3 months during the time I decided to do this. It helped a lot (the RX). What did I discover? I am sensitive to ANY Bob's Red Mill gluten free products. Why? I believe that there is a low level of gluten free oat cc and that was getting me. I knew at 7 months into the gluten free diet I couldn't handle gluten free oats. I reacted so bad, but never gave the cc from then any thought until Aug. 2010. I also found that some main stream products that I previously ate I was no longer able to. I tested out the Bob's again in Jan. of this year and ate some gluten free baked goods from a dedicated gluten free bakery in FL where they used Bob's flours. Within 2-4 days all my symptoms came back and I didn't get over it for a good week later. Just a week ago I caved and ate a few cool ranch doritos with my youngest son. We both paid the price for that one. I started feeling bad the next day but the big D and bloating started 2 days later. My little boy was complaining of a tummy ache too that day and he was having bad mood swings. We are both on the mend now a week later. My reactions have changed. Before I would just get horrible reflux, bloating and constipation. I never thought I would say this but, the former reactions were easier to deal with.. :unsure::P:lol:

IrishHeart Veteran

OMGGGG "BDA"????? u guys are HILARIOUS!!!!! i love it... yes i sometimes suffer from JER & BDA :lol:

someone please send this thread to all of our doctors LOL

I don't know, Cass....I met some pretty humorless jerkwads the past few years...I don't think they would get it!! :lol: :lol: :lol: :lol:

IrishHeart Veteran

i NEED some relief when im suffering panic attacks from swinging to hyper to hypo and back again... GEEZZZZZZZZ... nurse said i could have meds for palpitation- i said "i CAN HANDLE THE PALPITATIONS, i CANNOT HANDLE THE SUFFOCATING " :angry::angry::angry:

uh.. can u tell im suffering from JER today?

CASS! This is what happened to me for 2 years. I am not saying you are the same as I am, but I just want to tell you...I was put on Synthroid for "hypo" (I was exhausted, losing hair and FAT and puffy. My TSH was 5.3 one day 4.3 the next week....) then, I zoomed to HYPER and jumping out of my skin...my brain buzzing with anxiety and trembling. Heart bursting out of my chest. Insomnia. RAPID weight loss (90 lbs.) plus all the celiac symptoms..It took me a long time to convince another doctor to check my thyroid antibodies...LOW. I was on meds for NO GOOD REASON!!...for 2 years. Turns out, the unDxed celiac was bouncing my TSH all around...but 2 endos could not agree with ME that I was WORSE for taking the meds. :blink:

I went off the meds a year ago and my thryoid functions normally..a steady 2.4 TSH and T3 and T4...normal..

Just my experience but anytime someone posts with this hyper-hypo fluctation, palpitations and feeling of suffocating...I just feel so bad because I had it too. Hope you level off and soon!

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    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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