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thleensd

#*@($ !#*^% Doctor!

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Speaking of "safe" and clean...We make our bread and the only place we eat out is in an entirely gluten-free cafe. I got lucky-- there is one about 45 minutes away. Just awesome. The first time I ate there, I started to cry....I knew I would be able to eat and not get sick :D

Been there, done that! "You mean I can eat *everything* here?" *tear* .... if I had the energy and money I'd totally open up a cafe!

Can I ask what state/country you're in?

JER due to BDA ... being dicked around? :lol: We kill me. :lol:

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Been there, done that! "You mean I can eat *everything* here?" *tear* .... if I had the energy and money I'd totally open up a cafe!

Can I ask what state/country you're in?

JER due to BDA ... being dicked around? :lol: We kill me. :lol:

:lol: :lol: :lol:

I am in upstate NY! :)

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No, no - you have to let someone in the family be well treated :P

Oh wait.... haha... I guess I should've been more specific. I wish that my cat's vet (who is awesome) was my doctor, too! lol! :P

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Me, too...that's when they reach for the pad to write antidepressants and anti-anxiety scripts :rolleyes: ....like that's the answer.

And I totally agree about the whole foods approach. Helped me immensely.

omg TOTALLY!!!!! when i broke down in front of my PCP, telling her that i KNEW that Synthroid was not the right medication for me, she was like " uh... i think there's something else going on here"... she wanted to explore antidepressants!!!!! <_<

i went into a walk in clinic months ago, sobbing- i was in so much pain- my stomach muscles were spasming- it was a STABBING pain.... i told the doc i wanted muscle relaxers.... he was resistant, but instead wanted to push Percocet or Lortab on me- maybe 10 years ago i would have jumped on that- but i was like "NOOOOOOO i dont need to mask the pain and i DONT NEED CONSTIPATION... i NEED MY MUSCLES TO RELAXXXXX" haha turns out i needed Vitamin D, which my doc never explained.

now im almost out of my Xanax .25 that i take twice a week after ive been gasping for air all day- and my Endo doesnt want to give me any, and wants to send me to a pulmonologist- I DONT NEED A PULMONOLOGIST!!!!!! i NEED some relief when im suffering panic attacks from swinging to hyper to hypo and back again... GEEZZZZZZZZ... nurse said i could have meds for palpitation- i said "i CAN HANDLE THE PALPITATIONS, i CANNOT HANDLE THE SUFFOCATING " :angry::angry::angry:

uh.. can u tell im suffering from JER today?

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OMGGGG "BDA"????? u guys are HILARIOUS!!!!! i love it... yes i sometimes suffer from JER & BDA :lol:

someone please send this thread to all of our doctors LOL

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I buy bob's red mill gluten-free flours. I do consider myself one of the super-sensitives, though. I feel special? :P

>>

Just thought I would throw something out there for you to chew on. I went 8 months chasing down what my problem was starting in Jan. 2010. From every aspect I was gluten free. I was suffering from epigastric/RUQ pain, diarrhea, reflux, fat malabsorption, etc. I didn't think it was gluten cc because that wasn't what my symptoms were before. Many tests later my GI wanted to put me on steriods since my gliadin Igg was still positive. I refused and told him that I would look again at what I was eating and pretty much start from scratch. He did give me a RX for creon which I took for about 3 months during the time I decided to do this. It helped a lot (the RX). What did I discover? I am sensitive to ANY Bob's Red Mill gluten free products. Why? I believe that there is a low level of gluten free oat cc and that was getting me. I knew at 7 months into the gluten free diet I couldn't handle gluten free oats. I reacted so bad, but never gave the cc from then any thought until Aug. 2010. I also found that some main stream products that I previously ate I was no longer able to. I tested out the Bob's again in Jan. of this year and ate some gluten free baked goods from a dedicated gluten free bakery in FL where they used Bob's flours. Within 2-4 days all my symptoms came back and I didn't get over it for a good week later. Just a week ago I caved and ate a few cool ranch doritos with my youngest son. We both paid the price for that one. I started feeling bad the next day but the big D and bloating started 2 days later. My little boy was complaining of a tummy ache too that day and he was having bad mood swings. We are both on the mend now a week later. My reactions have changed. Before I would just get horrible reflux, bloating and constipation. I never thought I would say this but, the former reactions were easier to deal with.. :unsure::P:lol:

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OMGGGG "BDA"????? u guys are HILARIOUS!!!!! i love it... yes i sometimes suffer from JER & BDA :lol:

someone please send this thread to all of our doctors LOL

I don't know, Cass....I met some pretty humorless jerkwads the past few years...I don't think they would get it!! :lol: :lol: :lol: :lol:

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i NEED some relief when im suffering panic attacks from swinging to hyper to hypo and back again... GEEZZZZZZZZ... nurse said i could have meds for palpitation- i said "i CAN HANDLE THE PALPITATIONS, i CANNOT HANDLE THE SUFFOCATING " :angry::angry::angry:

uh.. can u tell im suffering from JER today?

CASS! This is what happened to me for 2 years. I am not saying you are the same as I am, but I just want to tell you...I was put on Synthroid for "hypo" (I was exhausted, losing hair and FAT and puffy. My TSH was 5.3 one day 4.3 the next week....) then, I zoomed to HYPER and jumping out of my skin...my brain buzzing with anxiety and trembling. Heart bursting out of my chest. Insomnia. RAPID weight loss (90 lbs.) plus all the celiac symptoms..It took me a long time to convince another doctor to check my thyroid antibodies...LOW. I was on meds for NO GOOD REASON!!...for 2 years. Turns out, the unDxed celiac was bouncing my TSH all around...but 2 endos could not agree with ME that I was WORSE for taking the meds. :blink:

I went off the meds a year ago and my thryoid functions normally..a steady 2.4 TSH and T3 and T4...normal..

Just my experience but anytime someone posts with this hyper-hypo fluctation, palpitations and feeling of suffocating...I just feel so bad because I had it too. Hope you level off and soon!

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