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shayre

You Guys Were All Right About So Many Things...potato, Mixed gluten-free Household, Etc!

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Hi all! I find it hard to stay connected on this site with my small children, so thanks for being here when I need you!

Okay, so I asked my whole family to be gluten free. It took a while to get all of the gluten out of the house. I'd still say that there are a few things to get rid of (ie. cat food, chec...litter, toothepaste etc), but most of it is gone. I DO absolutely feel better! Man, I hated asking my family to do that, but it has paid off. When we are out and about and my kids want to eat an icecream cone, or "normal" pizza, or cookies that we pass by...it feels like a knife in the heart to say no, but I may suffer for it. It sucks! I still am not normal yet, so I am still trying to work through other issues. Doctors are not helping. I am still trying to figure out contamination, airborn exposure, other allergies, possible Lupus, etc. I am really hoping that it will just take time to get better and that I will! I haven't been able to eat breads from Udi's or any other source without problems, so I don't know if it's allowable ppm gluten or just other ingredients? Does anyone know about cat litter? I am using Arm and Hammer brand. Obviously, my cat has it on her feet and walks everywhere, and licks herself. FYI...I went to order a gluten free cake for my son's bday party, and I started feeling flushed and foggy after just standing in the bakery for less than 5 minutes. I think that it took a couple of hours to go away.

Does any one else have non-lupus sun-sensitivity that is related to celiac disease, or am I looking at Lupus issues with this? Maybe I'll post this seperately. One rhuem doc says that I'm borderline, while the next says no lupus. I alot of symptoms.

Also, you were right about the potatoes. I have read your posts, and didn't really believe that potatoes were a source of pain for ME. I decided to quit them for a couple of weeks to see if I noticed anything. I wasn't sure what I noticed after 2 weeks. So...I had some potato chips and a big baked potato one night. My legs were in so much pain that night...that I could not sleep. I waited another week, and had some potato chips. About 2 hours later...started feeling some pain. Unbelievable. So now I have no starches, but rice. I just found Quinoa hot cereal that I tried this morning...not bad. Too much rice also give me digestive issues, so now I will have to start experimenting.

Thank you so much for helping me get this far:) I hope to get farther and be a normal mother and wife!

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I tested negative for Lupus 3 times but had terrible sun sensitivity. I thought it would never go away. I am 8 months gluten free and I can now tolerate the sun enough to go from place to place in the car during the day. It was that bad before going gluten free that I couldn't be in the sun for 5 seconds without feeling like I would pass out. So in my case it got better but it took some time. I still won't spend any time in the sun, but whatever that was that was causing it seems to be resolving. I don't eat potatoes either and my pain is much more manageable. I think you made a good decidion to take your house gluten free. You will feel much better. The bakery probably made you sick from suspended flour in the air there. I've read about that and I avoid bakeries now.

Best of luck and thanks for posting your progress.

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Glad you are doing better. As a super sensitive I would recommend that you don't eat any processed foods. Keep a journal of what you eat and how you feel so that you can know what bothers you. Don't eat any spices, juice, oil etc.,anything processed for a couple of weeks. Try to get your produce from the farmer's market so that it is less likely to have coatings. Get your meat packaged in the meat processor so that it is less likely to have cc from cutting up in the same place as gluten containing breaded stuff, sausage etc. Then you can add things one per week and see what you can tolerate.

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