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ilookthetype

Happy To Be Celiac?

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Surely I can't be the only one to have grown to truly love their diagnosis? I'm trying to get fit and I'm using an site to help me maintain and track everything (myfitnesspal.com) and I love it, but often people will complain about cravings. After finding out I was lactose intolerant in addition to my Celiac I realize I'm pretty much on the Paleo diet and have begun to shift to eating Paleo. I have noticed on both Paleo forums, fitness blogs, and MFP in general people will talk about the cravings for whatever baked good, ice cream, candy and I...can't really relate to that. Sure sometimes I'll walk by a bakery and see beautiful cupcakes or muffins and just want to cry because I'll never be able to have that luxery again, but if I hang out for to long looking at whatever baked good I'll actually start to feel the beginnings of glutening (it'll stop as soon as I walk away). I finally realized that I was infact lactose intolerant (my mom knew from when I was a kid but thought I grew out of it) so I don't even get the cravings for cheese or ice cream anymore (its as if my body has just coaxed my brain into not wanting things it can't handle). I have to catch myself or else I'll get a bit vain, 'Oh, I don't ever cave and eat cupcakes brought in for a coworkers birthday' and I'll mentally prance around in my finest gown. It's true, I won't, but a year ago, before I knew I totally would have. But, my celiac has taught me self-control. I know how to avoid foods that make me sick, I know to avoid soy, and how to check for it in foods. It taught me so much about myself, namely that I can simply not eat foods even if I really want to and I can find a healthy alternative.

Has anyone else had a similar experience? Starting to see what had been a curse as a total blessing?


Gluten Intolerant 07/10, who knew that wheat didn't make everyone sick...

Run Mad as often as you choose but do not faint. (Fanny Price)

"Its a sacred time when two roommates nap together."

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I do. My reason is that needing to read the ingredients list of everything I buy or put near my mouth gets me so sick of seeing ingredients I can't pronounce, or even more so, ones I can pronounce but can't believe I was actually eating them (high fructose corn syrup, etc.). So I've been eating a lot healthier and I prefer the simplest of ingredients. If I can avoid it, I won't eat anything that has unnecessary preservatives, enhancers or other chemicals. I make my own toothpaste out of coconut oil and baking soda, and I wash my hair with baking soda and rinse it with diluted vinegar. My body loves all of this, and I feel so much healthier when I am aware of what I'm eating, drinking, and intentionally applying to my body.


Celiac diagnosed October-November 2010 (blood test negative, biopsy inconclusive after gluten-free for 6 weeks, miraculous diet results).

October 2010: Gluten free.

November 2010: No HFCS or artificial sweeteners.

March 2011: Gradually fading out soy.

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I do. My reason is that needing to read the ingredients list of everything I buy or put near my mouth gets me so sick of seeing ingredients I can't pronounce, or even more so, ones I can pronounce but can't believe I was actually eating them (high fructose corn syrup, etc.). So I've been eating a lot healthier and I prefer the simplest of ingredients. If I can avoid it, I won't eat anything that has unnecessary preservatives, enhancers or other chemicals. I make my own toothpaste out of coconut oil and baking soda, and I wash my hair with baking soda and rinse it with diluted vinegar. My body loves all of this, and I feel so much healthier when I am aware of what I'm eating, drinking, and intentionally applying to my body.

Exactly, I recently told my friend that I find my diet restrictions to be freeing. I don't actually have to read ingredients most of the time because 90% of what I eat is from the farmer's market near my house. I've tried since to even go back and eat gluten-free prepackaged food (which is better than a lot prepackaged foods) and it made me feel sluggish. I never would have noticed this if I hadn't started reading the ingredient lists!


Gluten Intolerant 07/10, who knew that wheat didn't make everyone sick...

Run Mad as often as you choose but do not faint. (Fanny Price)

"Its a sacred time when two roommates nap together."

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I totally get what you are saying, and in my head I know I am the lucky one....but my heart has not caught up hey...I still cry walking the grocery store...no really I physically cry!!!


celiac blood test positve 11/10

stool test postive 2009

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Surely I can't be the only one to have grown to truly love their diagnosis? I'm trying to get fit and I'm using an site to help me maintain and track everything (myfitnesspal.com) and I love it, but often people will complain about cravings. After finding out I was lactose intolerant in addition to my Celiac I realize I'm pretty much on the Paleo diet and have begun to shift to eating Paleo. I have noticed on both Paleo forums, fitness blogs, and MFP in general people will talk about the cravings for whatever baked good, ice cream, candy and I...can't really relate to that. Sure sometimes I'll walk by a bakery and see beautiful cupcakes or muffins and just want to cry because I'll never be able to have that luxery again, but if I hang out for to long looking at whatever baked good I'll actually start to feel the beginnings of glutening (it'll stop as soon as I walk away). I finally realized that I was infact lactose intolerant (my mom knew from when I was a kid but thought I grew out of it) so I don't even get the cravings for cheese or ice cream anymore (its as if my body has just coaxed my brain into not wanting things it can't handle). I have to catch myself or else I'll get a bit vain, 'Oh, I don't ever cave and eat cupcakes brought in for a coworkers birthday' and I'll mentally prance around in my finest gown. It's true, I won't, but a year ago, before I knew I totally would have. But, my celiac has taught me self-control. I know how to avoid foods that make me sick, I know to avoid soy, and how to check for it in foods. It taught me so much about myself, namely that I can simply not eat foods even if I really want to and I can find a healthy alternative.

Has anyone else had a similar experience? Starting to see what had been a curse as a total blessing?

I'm starting to. I've only been gluten-free for a week, but when I started, I was just shy of having lost 30 lbs. I thought, "Well, I'll just not worry about my calorie intake just now and lose the rest after I figure out this gluten thing." But I weighed myself yesterday and I'm still losing the weight after all! I've reached my 30 lb loss so far and I've got another 5-10 for my goal weight. Since a lot of the gluten-free prepackaged stuff is so expensive, I've been sticking to mostly fresh fruits and veggies, which is more difficult to count calorie-wise. I've just been reading about the Paleo Diet today, and I'm thinking about going that route, because I'd rather not have to worry about calories anyway let alone label checking, and I never realized how nice it is to eat fresh food all the time.

The only exception I'd probably make is to carry around SoyJoy or Larabars in my bag. I've got 2 boys under the age of 4 and it always help to have a quick non-perishable snack when I really need it!


Gluten free 6/10/11

Negative blood test for celiac 7/7/11

History, genetics, and response to diet point to celiac anyway.

Sy

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I understand completely. This former pizza & pasta chow hound/donut junkie who went years feeling dizzy and scared, thanks her lucky stars every day that all I had to do was give up gluten, casein and soy. It's been a year and I feel incredibly lucky that I found this out in time to have a life. I truly wish that everyone could feel this way. I know it's harder for some. And I send positive thoughts their way every day I read this forum.


K Wylee

Gluten Intolerant, Positive test, June 2010

Casein sensitivity, Positive test, June 2010

Reactive to soy, most processed foods & preservatives, June 2010

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I don't love being Celiac. I would love to be eating french bread with my brie instead of rice crackers or eating my bacon and eggs with real thick flaky wheat biscuit instead of rice flour biscuits. I want to eat street food and enjoy a potluck. I hate that I am cross reactive with coffee.

On the other hand I am eternally grateful that I have found what was making me sick all my life. I love that I wake up with optimism and energy instead of waking up sore, nauseated and depressed. I can do things I never though possible, my life has changed so much in the last few months. At the beginning of April I found it difficult and painful to do the grocery shopping and tomorrow I am taking an 8 hour Kayaking course with my husband. On Sunday I am planning a 10km hike with my teenager. That's more physical activity in one weekend than I used to undertake in 2 months.

I love my life now but I will always be a bit sad about the things I can never have.


Sara

Busy mom to 3 great kids (4, 8 and 18)

Gluten free since April 6, 2011 ~ Also sensitive to coconut, coffee and food dyes

Joint pain, mouth sores, back and neck pain, migraines, stomach pain, chronic fatigue, ADD and depression are all gone.
Wishing I had been diagnosed before celiac robbed me of the cartilage in my toes and the 3 babies we lost to miscarriages.

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Not there yet...but I did EMBRACE/WELCOME the diagnosis... as it has saved my life.

In the end, I'll be grateful for the good health, but I plunged into sickness, weight loss, massive lost muscle mass, neuro issues, insomnia and horrible chronic pain for 3.5 years, so I'm not particularly "Happy " I am a celiac...just happy that I'm healing. :)

One day, I may look back on all this as something other than my time in hell (and a lifetime of ill health, miscarriages and lost time)--but it may take me a while. :unsure:

I am thinking when I am feeling better, I will be able to say "I'm happy " too :)


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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It's funny ... I was talking to my former boss and good friend today and she has a miserable summer cold. She said she came down with it last weekend and is starting to feel better, and that she only coughs when she's talking.

I mentioned that I haven't had a cold in two years, and used to catch one every 4-6 months. (Work in medical, get exposed to everything.) She was shocked and said she thought with my comprimised auto-immune system I'd catch everything. I told her my system is armed and dangerous and fighting everything.

GFGirl, Harpgirl and Sara, the cravings and saddness go away with time. We're a resiliant breed. :D


Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.

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I definitely love it! I feel so much better. I didn't realize how bad I felt till I started to feel better! Even my mom said I'm not as b%$@#y anymore. I asked my hubby and he agreed that I was a little cantankerous before. He didn't realize that I was crabby cause it was so gradual but now that I'm dx, I'm different. It's so crazy to me too!


Molly

dx: celiac sprue 6/7/2011 via blood test and biopsy

gluten-free: 6/7/2011

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I understand completely. This former pizza & pasta chow hound/donut junkie who went years feeling dizzy and scared, thanks her lucky stars every day that all I had to do was give up gluten, casein and soy. It's been a year and I feel incredibly lucky that I found this out in time to have a life. I truly wish that everyone could feel this way. I know it's harder for some. And I send positive thoughts their way every day I read this forum.

My sentiments exactly...!! I know I have my days where I curse this disease but in the end, We are the lucky ones because we HAVE to eat healthy!! My friends that are not gluten free always say "We should all eat like you do and we'd be better off' But they don't because they don't have a 'reason'. Having a reason makes it easier and I'm not sick anymore YAY!! :D


*Judy
Food allergies to fish, seafood, tree nuts, aspartame(Equal),flax seed, and many drugs RE-TESTED ALL FOOD ALLERGIES IN JUNE 2015 AND THEY ARE ALL NEGATIVE NOW!  TIME TO RE-INTRODUCE FISH AND NUTS!!! 
Stomach issues since childhood
Hypoglycemia (low blood sugar) age 6-44
Diabetes age 44 to present now going back to Hypoglycemia since gluten free.
Diagnosed with Fibromyalgia in 2005 and it's gone now that I'm aspartame and gluten free. c
Celiac disease- negative test in 2009, positive tests in Nov. 2010
Gluten free started 11/08/2010
Genetic tests positive- DQ2, positive -DQ6 (?) negative- DQ8 11/15/2010 

Hyperthyroid 2013 - benign tumors and entire thyroid removed

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and I wash my hair with baking soda and rinse it with diluted vinegar.

I was wondering how you make this wash/rinse? I have issues with hair loss and am wondering if this may help.


Gluten free 6/10/11

Negative blood test for celiac 7/7/11

History, genetics, and response to diet point to celiac anyway.

Sy

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It's funny ... I was talking to my former boss and good friend today and she has a miserable summer cold. She said she came down with it last weekend and is starting to feel better, and that she only coughs when she's talking.

I mentioned that I haven't had a cold in two years, and used to catch one every 4-6 months. (Work in medical, get exposed to everything.) She was shocked and said she thought with my comprimised auto-immune system I'd catch everything. I told her my system is armed and dangerous and fighting everything.

GFGirl, Harpgirl and Sara, the cravings and saddness go away with time. We're a resiliant breed. :D

This is so right! I never get sick anymore either--except for the occasional CC with gluten and now sometimes with high to medium salicylic acid foods. My teeth no longer get caries either and my gums are beautiful rather than sickly. Hair ditto--now shine, body and curl. People comment on how great my skin looks, and like another poster said, mosquitos etc. no longer find me to be a tasty meal... I also don't have anxiety attacks etc. My mind and memory are so much clearer. And my old fibro just went away as long as I take minerals

Etc.!!


Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

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Perhaps it is because I have only been gluten-free for four months that I am not happy to have Celiac. I am a foodie to the highest degree. Or maybe it is because I did not get sick from gluten (have no idea whether I would now!) prior to going gluten-free. However, I've accepted it and am happy that my little villi are growing more upright as I speak. Perhaps as I am gluten-free longer I will notice things that I did not previously associate with celiac disease. The thing I am happiest about is that my diagnosis likely saved my life (or at least is improving my future health). Since I did not have outward symptoms I likely would never have discovered it (found out through screening) and perhaps would have related illnesses down the road. I now scrutinize every single morsel of food that enters my mouth and eat a more balanced diet. :)


<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

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I love that it forces me to cook almost all of my own food. And food is also something that really binds my husband and I together. We both love to cook. And he's an amazing baker. And there's nothing I love more than spending time in the kitchen together cooking and creating. Oh, and eating too :)

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I'm starting to. I've only been gluten-free for a week, but when I started, I was just shy of having lost 30 lbs. I thought, "Well, I'll just not worry about my calorie intake just now and lose the rest after I figure out this gluten thing." But I weighed myself yesterday and I'm still losing the weight after all! I've reached my 30 lb loss so far and I've got another 5-10 for my goal weight. Since a lot of the gluten-free prepackaged stuff is so expensive, I've been sticking to mostly fresh fruits and veggies, which is more difficult to count calorie-wise. I've just been reading about the Paleo Diet today, and I'm thinking about going that route, because I'd rather not have to worry about calories anyway let alone label checking, and I never realized how nice it is to eat fresh food all the time.

The only exception I'd probably make is to carry around SoyJoy or Larabars in my bag. I've got 2 boys under the age of 4 and it always help to have a quick non-perishable snack when I really need it!

Myfitnesspal.com has a free calorie counter, so as long as you know how MUCH of the fresh veggies you're eating it'll tell you what the calories are.

My energy level initial dropped from when I went to fresh veggies, a week later I was jittery to go for my run because I looked forward to it so much. I realized I was getting a ton of sugar from the processed foods.


Gluten Intolerant 07/10, who knew that wheat didn't make everyone sick...

Run Mad as often as you choose but do not faint. (Fanny Price)

"Its a sacred time when two roommates nap together."

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Myfitnesspal.com has a free calorie counter, so as long as you know how MUCH of the fresh veggies you're eating it'll tell you what the calories are.

My energy level initial dropped from when I went to fresh veggies, a week later I was jittery to go for my run because I looked forward to it so much. I realized I was getting a ton of sugar from the processed foods.

Cool, thanks! :D


Gluten free 6/10/11

Negative blood test for celiac 7/7/11

History, genetics, and response to diet point to celiac anyway.

Sy

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To the original question, yes, I'm happy to be celiac. And for basically the same reasons, it would seem. :)

I, too, ended up going Paleo basically, once I was diagnosed with Crohn's a few months ago. When it turned out to be celiac, my diet stayed the same, but my prognosis improved. ;)

I feel SOOO much better when I'm completely off grains and dairy. I wouldn't have tried it if I didn't "have" to. I'm glad I had to.


--'00 lithotripsy for kidney stones

--'01 removal of gall bladder and stone the size of a golf ball

--hypothyroidism, obesity and other minor maladies in the interim

--'11 hospitalized with severe gut bacteria overgrowth and inflammation in ilium and colon

Diagnosis--"You have Crohn's disease! You say grain-free makes it better? Oh...You have celiac! Are any of the above connected? Highly unlikely."

*sigh* Much as I love my doc, there are days I think we send them to med school and all they do is eat the books...

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