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      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Sibo Treatment - What Worked For You?

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Hi,

After being gluten, dairy and corn free for years, I had a decent digestive system. But then last year, I STUPIDELY took some antibiotics and haven't been the same. It was June of 2010. No matter what I do I have horrible gas and C (yes, I'm on good probiotics and have tried them all in large quantities). I've tried so many things over this past year and nothing has worked (practically eliminated everything). Finally broke down and went to a GI (I normally do naturopaths) and he said it sounds just like SIBO. He didn't offer any testing but wanted to put me on some potent antibiotics.

Since that time I've done my research and want to treat it myself with grapefruit seed extract, oil of oregano, probiotics, HCL, glutamine and dietary changes. The good news is that my bloating and gas seems so much better when I take the GSE. However, I'm super confused with the last part. It seems like most people with SIBO follow FODMAP diet, but the lists out on the internet are inconsistent and I can't find a book to purchase on it (they're all unavailable). I took one list I found to Wholefoods last night and stocked up, just to return home and find another list with conflicting information. Then there's Specific Carb. Diet....I wonder if that's better....I don't know and I need your help.

Anyone who had successfully treated SIBO, please share your story with me. I'm currently following the Eat Right for Your Blood Type Diet, and while my energy is much better, I think SIBO is loving all the fiber I'm eating. I'm getting worse and worse. There are many nights when the gas is so bad that my husband has to sleep on the couch. It makes me want to cry.

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Sorry for your pain. I have had that and sympathise...

You are not going to like what you hear about my treatment for SIBO but it was antibiotics. Mine was neomycin as C was my symptom...Only a normal course I think.. http://www.medicinenet.com/small_intestinal_bacterial_overgrowth/page6.htm

I then did strict FODMAP. http://shepherdworks.com.au/disease-information/low-fodmap-diet

Onions are my worst trigger food and then apples. I never touch artificial sweeteners anyway and rarely ate fruit but you have to watch for hidden fructose everywhere... I also went yeast free. And had to change things like white rice instead of brown rice...

After 12 months - symptoms are much better...I can have a dash of onion occasionally now :)

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I don't have SIBO but wanted to put it out there that GAPS might be looking into for you. The whole point of the diet is to starve out the bad critters in your gut and to introduce the good guys, restoring your gut flora balance. If you've got the good guys in the wrong part of your digestive tract I'm not sure if that makes a difference.

I have a couple posts on GAPS on my blog. The original posts (on the blog linked from my profile, not the mirrored site hosted here on celiac.com) have links to the books and products mentioned.

GAPS Resources

Starting GAPS

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I don't have SIBO but wanted to put it out there that GAPS might be looking into for you. The whole point of the diet is to starve out the bad critters in your gut and to introduce the good guys, restoring your gut flora balance. If you've got the good guys in the wrong part of your digestive tract I'm not sure if that makes a difference.

I have a couple posts on GAPS on my blog. The original posts (on the blog linked from my profile, not the mirrored site hosted here on celiac.com) have links to the books and products mentioned.

GAPS Resources

Starting GAPS

Thank you. I just checked out the diet and it seems very good, a lot of work, but I'll do anything at this point. I cannot tolerate milk, nuts or eggs, but maybe after some time I will be able to eat these things. Are you currently on this diet?

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Sorry for your pain. I have had that and sympathise...

You are not going to like what you hear about my treatment for SIBO but it was antibiotics. Mine was neomycin as C was my symptom...Only a normal course I think.. http://www.medicinenet.com/small_intestinal_bacterial_overgrowth/page6.htm

I then did strict FODMAP. http://shepherdworks.com.au/disease-information/low-fodmap-diet

Onions are my worst trigger food and then apples. I never touch artificial sweeteners anyway and rarely ate fruit but you have to watch for hidden fructose everywhere... I also went yeast free. And had to change things like white rice instead of brown rice...

After 12 months - symptoms are much better...I can have a dash of onion occasionally now :)

Georgie, thank you for your response. I REALLY appreciate feedback right now. I'm lost. I started my version of the FODMAP (found a list online) and it seems to be going well so far. My only concern is the sustainability on this long term. I mean, do you know if it actually helps to reverse SIBO or does it just alleviate symptoms because so many things are excluded from the diet? I think if I continue on I may do a session with Shepheard Works. I can say I'm please with seeing a little progress already. I hope you continue to feel better too. It's crazy that onions can be so problematic for some...I eat onions all the time, so it definitely makes sense!

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Thank you. I just checked out the diet and it seems very good, a lot of work, but I'll do anything at this point. I cannot tolerate milk, nuts or eggs, but maybe after some time I will be able to eat these things. Are you currently on this diet?

Yes, I am currently on this diet (so are my partner, two kids, and their dad). We have been doing it since the beginning of February. We took a couple months to get through the intro diet.

Dairy, nuts and eggs do not get introduced right away on this diet. The reasons they are problems for you will make a difference in whether you'll b able to introduce them later.

GAPS is similar to FODMAP in that you are attempting to starve out the overgrowths of bacteria and yeast in your gut. Additionally, with GAPS you are introducing bacteria. GAPS also focuses on getting whole, raw, organic sources for all your foods where FODMAP allows things like processed store bought lactose-free yogurt. On GAPS, you get whole raw milk and make your own. Some of the foods allowed on FODMAP are not allowed on GAPS, and vice versa. For instance, cooked apples are introduced as the first fruit allowed on GAPS but are not allowed on FODMAP. If you have overgrowths of normally good bacteria in the wrong places, I've you might want to try starve them out entirely before reintroducing them. This is where my knowledge isn't solid. I'd definitely talk to my doctor about the nature of your SIBO.

The GAPS diet starts with healing bone broths and cooked non-fibrous, non-starchy vegetables, and eliminate sugars that are not monosaccharide. Then you introduce muscle meats and home-fermented foods (not from the store!) Every food you eat should be organic and whole. The idea is to allow your gut to heal by introducing foods with the most readily absorbed nutrients. Once your digestion normalizes (in a good way!), you can introduce the next stage of the diet - SLOWLY. Dr. Natasha Campbell-McBride recommends doing a sensitivity test for suspected foods by putting a bit on the inside of your wrist before bed. In the morning, if it has produced a reaction, you know not to try that food yet.

Egg yolks get introduced fairly early on, first raw in your broth, then on their own. More people have problems with egg whites than egg yolks.

I have a post about dairy on my blog. Dairy gets introduced on GAPS as homemade yogurt from raw, organic milk. Many people who don't do well with pasturized milk are ok with raw, organic milk. Also, homemade yogurt is a different thing entirely than what you get in the store. It has the added benefit of being able to be made to the consistency you like :) You also get (homemade!) dairy kefir and ghee for cooking with on GAPS. (I hate dairy kefir, so I don't drink it. I do well with the yogurt. Water kefir, on the other hand, is amazing.)

Personally, I hate milk and have never liked it. My mom realized it wasn't good for me after I stopped breastfeeding and didn't make me have it. Whenever they made me have it in school I would puke! I liked cheese and whipped cream and ice cream, but since being on GAPS, when we reintroduced aged cheese as part of the full diet, I realized that it's a problem for me in all but the smallest quantities. You don't get plain milk on GAPS.

Nuts are nice to have on GAPS, but if you have an IgE (anaphylactic) reaction please don't introduce them! However, if it is a digestive issue, you might find you can tolerate them once you've done some healing, and when you have prepared them according to GAPS protocol. My partner used to get bad stomach aches from walnuts and I used to get herpes outbreaks when I had more than a couple almonds. Now we can both eat them without issues (though I've noticed that pecans make my mouth itch, so I'm avoiding those).

On GAPS, you do not use store-bought nut flours or prepared nuts. Instead, you buy plain nuts. Then you rinse them, soak them overnight ala Nourishing Traditions instructions, and rinse them again. Then you dehydrate them. Once this process is complete, you can make them into flour in the food processor or eat them whole. This process not only helps remove any potential gluten cross-contamination, but it also reduces the phytic acid and other anti-nutrients in the nuts, which makes them easier to digest.

You can certainly do GAPS without those three foods.

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Follow-up: I read the blog on GAPS and ordered the book. I have to say that I really liked what I've read about the diet and have the highest hopes it will help me. I made two huge batches of the soup last night and just ate my first bowl...very tasty. I fasted Friday, Saturday and Sunday (using the Master Cleanse) and am so glad I did. I sort of reset my mental attitude about food and how much I need to consume. Plus, all of the bloating and gas is gone, and I think I'm in good shape to begin.

My plan is to follow GAPS (trying to do my best during a backpacking trip to Europe at the end of July) and then go back to following the Eat for Your Blood Type Diet. I loved how the latter was making me feel, but my stomach just can't handle all the fiber necessary for Type A just yet. I'll get there though...

Thank you so much for the information. That's why I LOVE this forum. I would have never known about GAPs without it!

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I have SIBO, but am still working on it.  I think I am making progress.  I have been following grain free low fruit/no sugar diet for a very long time.  I recently read that one can help symptoms of SIBO with lowfodmap/ grain free, or paleo, but that the bacteria still has food, so it remains.  For me, I believe this is the case.  i have been grain free many years.  For a while I kept it at bay eating meat and greens.  However, as soon as I added foods to that; I bloated.

I should have been checked long ago for SIBO, but since I refused to drink the sugary solution for diagnosis; I didn't.  Finally recently I took a class by Izabella Wentz about thyroid.  IN that class she having us analyze possible reasons for our thyroid issues and we looked at infections.  When I got to SIBO I felt strongly I might have it.   My vitamin B level has been low and supplements were not raising it significantly!  Other things, I noted are low ferritin, bloating with fod-maps, dental trouble which wouldn't even resolve with a long term 20 minute 8 step program for brushing/flossing/waterpiking.

 

There fore, I am now (with the okay of my functional medicine physician and naturopathic doctor.)  Doing an herbal protocol for SIBO.  I believe the combo of my diet and the herbs are improving my health.  Since beginning I see that my bloating is going down and my energy picking up.

 

The protocol for this is"  Candibactin BR (Metagenics) 2 capsules three times daily.  Oil of Oregano 2 gel caps 3 times a day, Allicillin (though with my celiac; I can't have this) 2 three times daily.  Since I am not able to take the allicillin, I am using herbs that previously helped me.  l capsule of fennel 3 times daily.  l capsule of cranberry 3 times daily, and l capsule of ginger three times daily.  I will also being using a special pro-biotic for this situation:  saccharomyces boulardii.  The wrong probiotic (like I have been doing) will make SIBO worse rather than better; I have read.  I decided not to take the probiotic yet as I am so frequently having cranberry juice, homemade ginger drink, or my capsules.  In perhaps 2 months; I will stop the other herbs and take the Saccharomyces Boulardii.  I have been trying to follow this now for about a month.

 

I hope others will check for SIBO shortly after diagnosis.  Although, I had some adrenal issues which I guess I needed to address first.  It took 4 years to resolve those!  Best wishes as you navigate to better health.  Dee

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    • hi All, I had been getting so gradually sick that I don't know when it started, (but I am now assuming 1994).  In 2008, I succumbed to pressure from my insurance rep to get more insurance, and they would even come to my house to test my blood.  I was denied insurance and recommended to see my doctor, who told me I had the liver of a severe alcoholic.  I very rarely drink. I went for tests and the doctor was baffled.  He said I should lose weight.  He said it was likely fatty liver disease. That was 2008.  For the next few years I got tests, tried to eat healthy, and every so often I would see if it was helping my liver numbers. I got stomach aches when I ate toast or a sandwich, but didnt link it to the toast except later, in hindsight.  How could toast give me a stomach ache?  Anyway, on the advice of my doctor, I tried very hard to lose weight, so went lo-carb.  One day, I had had no breakfast and at church 'goodie-time' was unable to resist all the carbs.  Later that afternoon, I felt like someone had literally poisoned me. This was now 2011.  I decided to not eat or drink anything but almonds and organic cold pressed  apple juice in a glass jar, and ate only those things for the next 3-4 days while I looked for symptoms on the Internet. I narrowed it down to celiac disease and went to the doctor.  I refused to eat gluten to get the test.  I decided not to eat gluten and I got better. I then started a job in China.  I learned how to say things like "no soy sauce" since it's made from wheat.  I got so much better.  I knew what my reactions were to gluten, especially the one that happened first: I would get a shakiness inside, like my blood system was micro-vibrating. i got the flu and was in bed for three days straight eating only mandarin oranges and water.  After a couple of days, I got that shakiness, suddenly, lying in bed.  I was astounded, cause I had only water and oranges.  Then I remembered that I had taken two Advil, in the gel cap form.  I looked on the Internet, and sure enough, the gel caps contained gluten.  Wow.  Even that small amount in two gel caps set it off. I was very vigilant.  Then one day, back in Canada, I was making hot dogs for a four-year-old and I had fresh bakery buns.  I couldn't resist.  I guess I thought, well, it's been a couple of years gluten free, let's see what happens.  I ate one and a half huge bakery hot dog buns on impulse.  Big mistake. I got so, so sick.  I was sick for 6 weeks with various symptoms.  Spleen pain, liver pain, kidney pain, migraine headaches, stomach issues, constipation, dizziness, brain fog, irritability, etc.  This was 2013. After one week of still being sick, I thought it's probably too late, but I should get that celiac test to see if there are detectable antibodies.  I went to the doctor, who didn't think it was necessary and insisted it was fatty liver disease and not celiac.  He humoured me and gave me the requisition anyway.  It wasn't too late!  One week later. i was shocked to see that my antibody level was 99. ( If you have less than 20 you don't have Celiac. It is called tTg test).  If you have 100, they say you don't really need a biopsy and it's pretty much confirmed celiac.  The doctor was a little bit embarrassed and said, "looks like you've diagnosed yourself". So finally he shut up about fatty liver disease.   I got so much better living in China.  I occasionally slipped. I  then went back to canada for a year.  I developed DH, as I got these lesions starting on my thumb and then on my fingers and palms.  Finally after 6 months I cut out dairy.  I had heard it was also somehow bad for Celiacs from the Internet but I really didn't want to cut out dairy as it was bad enough without gluten.  I finally did and the DH cleared up.   Then back to China.  I would go back to Canada twice a year for the time off from spring and summer holidays.  It was really hard to be around western food temptations and I would get "glutened" even though I tried hard. I began to get a strange pain in my leg and the doctor in canada said it was likely arthritis in my hip.  i went for an xray but it didnt show anything.  it really killed me to get that pain in my leg and then in my hip.  i would cry out and have to sit down.  i started riding my bike to work in china cause it was painful to walk very far.  I had started to reintroduce dairy while in China and found that I could eat yogurt, which I love. I had heard that people blamed their gluten reactions on Roundup, or glyphosate, because they could eat flour products in other countries but not North America.  One day about six months ago I made cookies for my students.  I wore gloves and was very careful.  Before this, I wouldn't even be in the same room with flour.  But nothing happened.  Then I tasted a cookie.  Nothing happened!!  The next day, I ate a whole cookie. Nothing happened!!  I began to think there was something to the theory of North America and roundup.  I still avoided flour in general cause I didn't want to push it, but I started eating soy sauce and relaxed a bit - started going to restaurants in china, etc. instead of micromanaging food in my kitchen, cause I was evidently not reacting to gluten in China.  I then realized that the only episodes of pain I had had were when I was in Canada the previous summer and spring.  Very strange.  So.  I got back to Canada, last spring, had my usual gluten free meal on the airplane, and then visited my mother.  I ate only organic yogurt.  Nothing else, and a few hours later I was attacked by almost every gluten related pain I had ever had.  My hip was suddenly shooting pain and I cried out and limped to the couch.  My mother asked, what did you eat?  I said, nothing!  Only organic yogurt!   Of course after any glutening, it takes weeks for these pains to subside, and I endured pain stabs in my spleen for a while.  Then back to China, where I was able to eat normally.  No pains, nothing.  I ate yogurt, made myself with uht milk imported from Germany or Australia, and I was fine.     Until the day when I ate one of the chocolate bars I had brought from Canada as prizes for my students.  Instant reaction! Spleen pain!  I had heard that sugar cane was as bad as flour for being drenched in roundup.  Now I was convinced. It was definitely stuff from Canada that was the culprit.  Only farm products.  Yes, they say the yogurt is organic, but I'm sure they feed the milk cows hay that has been exposed to roundup.   Now I know exactly what I can eat and where.  I love the food here, and it's safe.  There are exceptions.  They use pesticides on fruit, cause I get a stomach ache when I eat certain fruits, but it's a different reaction that the gluten reaction,  I can eat flour products without a huge reaction, but I still have celiac, because I do get reactions even from Chinese flour, just not as bad as I did before.  A mild sick feeling, like something is off, kind of unbalanced, and of course the inevitable shakiness.  I react much worse to Canadian chocolate.  But there is a huge difference between food here and food there.  A very painful difference.  Hard to figure out, but I think I have. so here's my theory,  roundup actually causes the celiac disease, or whatever disease you might happen to be genetically susceptible to. (My uncle has arthritis in his hip). If you keep ingesting it, you will get gradually sicker and sicker and get some kind of disease.  If you stop eating roundup completely, you will heal with a healthy diet.  If you already have a disease like celiac or DH you can manage it and stay healthy if you are totally roundup free. My dad died of nonHodgkins lymphoma and he insisted it was the roundup the neighbor had been spraying on his farm, right next to my dads organic hobby farm.  Now I believe him. I wish I'd been able to piece this together a bit earlier.  Since 1994, many diseases have hugely increased.  That's when they started with the roundup and there is a one on one correspondence on the graphs with roundup use and  many diseases. sorry for the novel but I just can't keep this all to myself,  I'm like the canary in the mine.  But roundup is everywhere so I don't know if you can really avoid it in North America, sadly. My advice is to move elsewhere and figure it out like I did. i saw a youtube video by an MIT researcher that they are now figuring out that glyphosate actually takes up the place of the essential amino acid glycine in your body.  Because they are molecularly similar, glyphosate gets in there and stops glycine from being able to do it's job in your body.  So it causes all sorts of problems in a gradual way and eventually you will have trouble. i hope this helps!  Stay away from farm products!  I hope it's not true what the conspiracy theorists say (that they are spraying chemicals, chemtrails etc.  I don't know if they are spraying roundup) but if it is, that's the end of the world as we know it.  I don't really want to go there,  I just know what I know and I'm sharing it.   this is just the short version  but I've tried to include important info.  Anyone else have a similar story in any way?
    • First, about 35% of the population carries the genes that could (rare) develop into celiac disease.  The genetic test just simply rules out celiac disease.  I guess your hubby  could develop it....some day or never.   Baby?  Get your daughter to your Ped.  Babies can develop rashes (e.g. eczema)  for so many things.  It could be a wheat allergy and not even celiac disease which is an autoimmune disorder.  Celiac disease in the form of dermatitis herpetiformis (aka celiac rash)  is pretty unheard of in infants.  It is SUPER rare — like one case in 2005 and the researchers dug through case studies going back to 1966.   Just curious.  The old method of grain (cereal) introduction was to give rice cereal.  Is that old outdated advice?   Kudos for you for breastfeeding!    It was my fondest aspect of early motherhood.  So easy and convenient.   Get to the doctor.  Do not try to diagnose an infant!  Trust your good mommy instincts.  Hopefully your baby just is not ready for wheat.  I recall that when introducing new foods you were to give a little and wait a few days for reactions.  Sounds like it might be as simple as too much of a good thing.    
    • hi Bananababy, I had been getting so gradually sick that I don't know when it started, (but I am now assuming 1994).  In 2008, I succumbed to pressure from my insurance rep to get more insurance, and they would even come to my house to test my blood.  I was denied insurance and recommended to see my doctor, who told me I had the liver of a severe alcoholic.  I very rarely drink. I went for tests and the doctor was baffled.  He said I should lose weight.  He said it was likely fatty liver disease. That was 2008.  For the next few years I got tests, tried to eat healthy, and every so often I would see if it was helping my liver numbers. I got stomach aches when I ate toast or a sandwich, but didnt link it to the toast except later, in hindsight.  How could toast give me a stomach ache?  Anyway, on the advice of my doctor, I tried very hard to lose weight, so went lo-carb.  One day, I had had no breakfast and at church 'goodie-time' was unable to resist all the carbs.  Later that afternoon, I felt like someone had literally poisoned me. This was now 2011.  I decided to not eat or drink anything but almonds and organic cold pressed  apple juice in a glass jar, and ate only those things for the next 3-4 days while I looked for symptoms on the Internet. I narrowed it down to celiac disease and went to the doctor.  I refused to eat gluten to get the test.  I decided not to eat gluten and I got better. I then started a job in China.  I learned how to say things like "no soy sauce" since it's made from wheat.  I got so much better.  I knew what my reactions were to gluten, especially the one that happened first: I would get a shakiness inside, like my blood system was micro-vibrating. i got the flu and was in bed for three days straight eating only mandarin oranges and water.  After a couple of days, I got that shakiness, suddenly, lying in bed.  I was astounded, cause I had only water and oranges.  Then I remembered that I had taken two Advil, in the gel cap form.  I looked on the Internet, and sure enough, the gel caps contained gluten.  Wow.  Even that small amount in two gel caps set it off. I was very vigilant.  Then one day, back in Canada, I was making hot dogs for a four-year-old and I had fresh bakery buns.  I couldn't resist.  I guess I thought, well, it's been a couple of years gluten free, let's see what happens.  I ate one and a half huge bakery hot dog buns on impulse.  Big mistake. I got so, so sick.  I was sick for 6 weeks with various symptoms.  Spleen pain, liver pain, kidney pain, migraine headaches, stomach issues, constipation, dizziness, brain fog, irritability, etc.  This was 2013. After one week of still being sick, I thought it's probably too late, but I should get that celiac test to see if there are detectable antibodies.  I went to the doctor, who didn't think it was necessary and insisted it was fatty liver disease and not celiac.  He humoured me and gave me the requisition anyway. i was shocked to see that my antibody level was 99. ( If you have less than 20 you don't have Celiac. It is called tTg test).  If you have 100, they say you don't really need a biopsy and it's pretty much confirmed celiac.  The doctor was a little bit embarrassed and said, "looks like you've diagnosed yourself". So finally he shut up about fatty liver disease.   I got so much better living in China.  I occasionally slipped. I  then went back to canada for a year.  I developed DH, as I got these lesions starting on my thumb and then on my fingers and palms.  Finally after 6 months I cut out dairy.  I had heard it was also somehow bad for Celiacs from the Internet but I really didn't want to cut out dairy as it was bad enough without gluten.  I finally did and the DH cleared up.   Then back to China.  I would go back to Canada twice a year for the time off from spring and summer holidays.  It was really hard to be around western food temptations and I would get "glutened" even though I tried hard. I began to get a strange pain in my leg and the doctor in canada said it was likely arthritis in my hip.  i went for an xray but it didnt show anything.  it really killed me to get that pain in my leg and then in my hip.  i would cry out and have to sit down.  i started riding my bike to work in china cause it was painful to walk very far.  I had started to reintroduce dairy while in China and found that I could eat yogurt, which I love. I had heard that people blamed their gluten reactions on Roundup, or glyphosate, because they could eat flour products in other countries but not North America.  One day about six months ago I made cookies for my students.  I wore gloves and was very careful.  Before this, I wouldn't even be in the same room with flour.  But nothing happened.  Then I tasted a cookie.  Nothing happened!!  The next day, I ate a whole cookie. Nothing happened!!  I began to think there was something to the theory of North America and roundup.  I still avoided flour in general cause I didn't want to push it, but I started eating soy sauce and relaxed a bit - started going to restaurants in china, etc. instead of micromanaging food in my kitchen, cause I was evidently not reacting to gluten in China.  I then realized that the only episodes of pain I had had were when I was in Canada the previous summer and spring.  Very strange. So.  I got back to Canada, last spring, had my usual gluten free meal on the airplane, and then visited my mother.  I ate only organic yogurt.  Nothing else, and a few hours later I was attacked by almost every gluten related pain I had ever had.  My hip was suddenly shooting pain and I cried out and limped to the couch.  My mother asked, what did you eat?  I said, nothing!  Only organic yogurt!   Of course after any glutening, it takes weeks for these pains to subside, and I endured pain stabs in my spleen for a while.  Then back to China, where I was able to eat normally.  No pains, nothing.  I ate yogurt, made myself with uht milk imported from Germany or Australia, and I was fine.     Until the day when I ate one of the chocolate bars I had brought from Canada as prizes for my students.  Instant reaction! Spleen pain!  I had heard that sugar cane was as bad as flour for being drenched in roundup.  Now I was convinced. It was definitely stuff from Canada that was the culprit.  Only farm products.  Yes, they say the yogurt is organic, but I'm sure they feed the milk cows hay that has been exposed to roundup.   Now I know exactly what I can eat and where.  I love the food here, and it's safe.  There are exceptions.  They use pesticides on fruit, cause I get a stomach ache when I eat certain fruits, but it's a different reaction that the gluten reaction,  I can eat flour products without a huge reaction, but I still have celiac, because I do get reactions even from Chinese flour, just not as bad as I did before.  A mild sick feeling, like something is off, kind of unbalanced, and of course the inevitable shakiness.  I react much worse to Canadian chocolate.  But there is a huge difference between food here and food there.  A very painful difference.  Hard to figure out, but I think I have. so here's my theory,  roundup actually causes the celiac disease, or whatever disease you might happen to be genetically susceptible to. (My uncle has arthritis in his hip). If you keep ingesting it, you will get gradually sicker and sicker and get some kind of disease.  If you stop eating roundup completely, you will heal with a healthy diet.  If you already have a disease like celiac or DH you can manage it and stay healthy if you are totally roundup free. My dad died of nonHodgkins lymphoma and he insisted it was the roundup the neighbor had been spraying on his farm, right next to my dads organic hobby farm.  Now I believe him. I wish I'd been able to piece this together a bit earlier.  Since 1994, many diseases have hugely increased.  That's when they started with the roundup and there is a one on one correspondence on the graphs with roundup use and  many diseases. sorry for the novel but I just can't keep this all to myself,  I'm like the canary in the mine.  But roundup is everywhere so I don't know if you can really avoid it in North America, sadly. My advice is to move elsewhere and figure it out like I did. i saw a youtube video by an MIT researcher that they are now figuring out that glyphosate actually takes up the place of the essential amino acid glycine in your body.  Because they are molecularly similar, glyphosate gets in there and stops glycine from being able to do it's job in your body.  So it causes all sorts of problems in a gradual way and eventually you will have trouble. i hope this helps!  Stay away from farm products!  I hope it's not true what the conspiracy theorists say (that they are spraying chemicals, chemtrails etc.  I don't know if they are spraying roundup) but if it is, that's the end of the world as we know it.  I don't really want to go there,  I just know what I know and I'm sharing it.  Be blessed.  
    • Also not that it matters, but have had low iron on and off last 2 years. Just another reason why I’m testing. 
    • Every lab has different ranges.  Post the ranges and we might be able to help.
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