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fuzzelfluff_04

Boyfriend/ Fiance With Celiac

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pharmanex_cory_aten@yahoo.com

Hello! I am new at this and this is going to be my first post. You all were talking about your boyfriends and how they were there. Well I am a boyfriend that is just starting to learn the in's and out's of the desease. Krysta has been a part of my life for the last 3 years and i have never met anybody like her. She has been such a large part of my life. She suffers from the desease but together we are pushing through the hard times. I have had a hard time with it and have tried to research things that would make it easier for her at school. She is at the University of Idaho so she has to find and cook things for herself. I enjoy cooking but never had to worry about things such as this.

I do have one question though. I know that there are alot of places out there that do scholarships for disabilities. Do any of you know of any? One thing that I have noticed is the cost of the things that she can eat. It is hard being apart and not being able to help her (due to that I am in New York and she is in Idaho). I thought that joining here would give me the chance to help her in another way.

We have found some ways to deal with the distance but this is an entire different situation that I would gladly accept any help from.

thanks.

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I do have one question though.  I know that there are alot of places out there that do scholarships for disabilities.  Do any of you know of any?  One thing that I have noticed is the cost of the things that she can eat.  It is hard being apart and not being able to help her (due to that I am in New York and she is in Idaho).  I thought that joining here would give me the chance to help her in another way.

I don't think any universitites would could Celiac Disease as a disability. It really isn't a disability, although I know how expensive gluten-free food can be. Good job for helping her out, though. Celiac is a medical condition, not a physical disability because you can't tell someone is Celiac by looking at them usually, and Celiac usually doesn't impair someone's physical abilities unless they're not following the gluten-free diet. But good luck!


14 years old

Diagnosed with celiac disease in 1993

Totally gluten-free since 1993

"All there is in life is wheat...Oh, wheat! Lots of wheat! Fields of wheat! A tremendous amount of wheat! Yellow wheat. Red wheat. Wheat with feathers. Cream of wheat!" - Woody Allen, Love and Death

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I don't think any universitites would could Celiac Disease as a disability. It really isn't a disability, although I know how expensive gluten-free food can be. Good job for helping her out, though. Celiac is a medical condition, not a physical disability because you can't tell someone is Celiac by looking at them usually, and Celiac usually doesn't impair someone's physical abilities unless they're not following the gluten-free diet. But good luck!

<{POST_SNAPBACK}>

very true. do you know of any support groups or places where i can check to find some that may be in her area. She is at the University of Idaho. She is always looking for others that are in that area.

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I am currently the only one gluten-free in my house, and it will probably stay like that unless I start getting hyper-sensitive or something. Gluten may not be good for me, but for other people, grains have a lot of excellent nutritional value and I don't think it's fair to expect them to give it up. It's my diet, not theirs. However, I don't cook 2 meals, and if I make a gluten-free casserole or something, we all eat it. I will cook gluten-free pasta for me, regular for the kids, and then just have the same sauce, which is always home-made anyhow and never did have gluten in it. I really miss the garlic toast, but oh well! I just have a second glass of wine. I personally don't expect people to order gluten-free dishes in a restaraunt with me, they can still have whatever they want! Just the fact that you are taking it seriously and being supportive is enough, it's all I need from a person!


LORI

Dx celiac disease Aug 25/05, ate KFC that night and gluten-free ever since

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I do have one question though. I know that there are alot of places out there that do scholarships for disabilities. Do any of you know of any? One thing that I have noticed is the cost of the things that she can eat. It is hard being apart and not being able to help her (due to that I am in New York and she is in Idaho). I thought that joining here would give me the chance to help her in another way.

I am in Canada, and I can claim the difference in cost of gluten-free food vs. regular food on my income tax. It is under the disability section (I personally hate that because I don't see myself as disabled), and I just keep a running total of my special food. Maybe the US has something like that too?? I also need a letter from my dr stating my diet is medically indicated, not just a health food kick or something.


LORI

Dx celiac disease Aug 25/05, ate KFC that night and gluten-free ever since

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pharmanex_cory_aten@yahoo.com

I do have one question though.  I know that there are alot of places out there that do scholarships for disabilities.  Do any of you know of any?  One thing that I have noticed is the cost of the things that she can eat.  It is hard being apart and not being able to help her (due to that I am in New York and she is in Idaho).  I thought that joining here would give me the chance to help her in another way.

<{POST_SNAPBACK}>

As the added cost of the diet is *technically* a choice (you can get adequate nutrition from currently existing, inexpensive, whole, naturally gluten free foods), there isn't a whole lot of help for the costs of specialty gluten-free items. You can, if you have enough in medical costs, include the added expense of gluten-free items (for instance, the difference in the cost of a gluten-free loaf of bread over a regular loaf of bread) in your medical deductions, but to do that, your medical expenses have to be at least 7.5% of your income. I haven't heard of any scholarships for this condition, specifically.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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