0
confused mom

Celiac And Alopecia?

Rate this topic

Recommended Posts

My daughter tested positive for Celiac antibodies last Dec. She had a biopsy of her small intestine which came back inconclusive, as there was no damage to her villi. Her doctor took her off gluten, but her stomach aches didn't really improve much. He then diagnosed her with "latent Celiac" since she had no intestinal damage and also diagnosed her with irritable bowel syndrome because she was still having stomach aches & constipation. We took her to another doctor for a second opinion and this doctor put her back on gluten for one month and then will test her blood again. If her levels are elevated, then we will for sure know she has Celiac. I noticed today that the top row of each of my daugter's eyelids are missing clumps of eyelashes! She swears she didn't pull them out or do anything to make her eyelashes fall out. Is it possible that, after being back on gluten for two weeks, that she has developed the auto-immune disease called Alopecia, where the body attacks hair follicles and patients lose their hair? I'm really worried that this is what she has. I haven't called the doctor yet. Has anyone else with Celiac experienced hair loss???

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


My daughter tested positive for Celiac antibodies last Dec. She had a biopsy of her small intestine which came back inconclusive, as there was no damage to her villi. Her doctor took her off gluten, but her stomach aches didn't really improve much. He then diagnosed her with "latent Celiac" since she had no intestinal damage and also diagnosed her with irritable bowel syndrome because she was still having stomach aches & constipation. We took her to another doctor for a second opinion and this doctor put her back on gluten for one month and then will test her blood again. If her levels are elevated, then we will for sure know she has Celiac. I noticed today that the top row of each of my daugter's eyelids are missing clumps of eyelashes! She swears she didn't pull them out or do anything to make her eyelashes fall out. Is it possible that, after being back on gluten for two weeks, that she has developed the auto-immune disease called Alopecia, where the body attacks hair follicles and patients lose their hair? I'm really worried that this is what she has. I haven't called the doctor yet. Has anyone else with Celiac experienced hair loss???

Yes, I've seen several posts on here mentioning hair loss and thinning hair. I don't remember seeing anything about the eyelashes specifically, but there's probably something on here about that as well. My own hair became thin and brittle. After 9 months on the diet, it's starting to look healthier. My doctor said that it might take a year. It's due to all the vitamin and nutrition deficiencies caused by celiac, I guess. Hopefully, your daughter's eye lashes will grow back after she goes back to being gluten free. Good luck!

Share this post


Link to post
Share on other sites

I also have hair loss when glutened and had lost a lot before I was diagnosed. I also lose hair if I injest soy.

Sometimes hair loss will occur when the body is severely stressed, that is not uncommon. I would talk to her doctor about it and about any other issues that have worsened since she has gone back on gluten.

False negatives in both blood and biopsy are really all too common. If she had positive results on either she need to be on the diet. If she has been on the diet for a while she might need more than a month back on gluten for positive blood test results so be prepared for those to come back negative.

IMHO the doctor should have rerun her blood work to see if the antibodies had gone down rather than doing a gluten challenge.

Gluten is tricky and can sneak in. It isn't uncommon to have it take a few months before we get the lifestyle down as it involves much more than just food.

Do other family members eat gluten? If they do she needs seperate nut butters, butter, condiments etc. If you bake with gluten flours the flour becomes airborn and can keep her ill. She needs her own toaster and if nonstick pans are scratched she needs a new one for her use. She also should not use wooden utensils or cutting boards that are also used for gluten.

I don't know her age but if she is old enough to wear makeup have her make sure that is gluten free also.

She may need to cut out dairy for a while if she hasn't already as other intolerances are not uncommon. Dairy and soy being, I think, seen the most often. Many of us are able to add dairy back in after we have healed.

I hope she is feeling better soon.

Share this post


Link to post
Share on other sites

When I was an undiagnosed celiac most of my eyelashes fell out, really upsetting - I was quite proud of my long dark lashes. Over time most of my body hair fell out too tho the hair on my head only thinned a little. I have grown back some of my body hair. I read about a 12 year old boy who was completely bald who's hair all came back on a gluten-free diet.

Share this post


Link to post
Share on other sites

Too bad we can't selectively choose where to lose the hair.

Share this post


Link to post
Share on other sites
Ads by Google:


Yes, I've seen several posts on here mentioning hair loss and thinning hair. I don't remember seeing anything about the eyelashes specifically, but there's probably something on here about that as well. My own hair became thin and brittle. After 9 months on the diet, it's starting to look healthier. My doctor said that it might take a year. It's due to all the vitamin and nutrition deficiencies caused by celiac, I guess. Hopefully, your daughter's eye lashes will grow back after she goes back to being gluten free. Good luck!

I have been losing hair for years and have been wondering if celiac is the culprit. I have been on a gluten free diet for a year and a half now and don't feel 100% yet and my hair is still falling out. However I don't have a dishwasher AND I don't have a gluten free kitchen as my family is not gluten free, so maybe that's why I can't seem to get to a point that I feel good all the time.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Who's Online   18 Members, 1 Anonymous, 543 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Roxanne Bracknell
    Celiac.com 06/22/2018 - The rise of food allergies means that many people are avoiding gluten in recent times. In fact, the number of Americans who have stopped eating gluten has tripled in eight years between 2009 and 2017.
    Whatever your rationale for avoiding gluten, whether its celiac disease, a sensitivity to the protein, or any other reason, it can be really hard to find suitable places to eat out. When you’re on holiday in a new and unknown environment, this can be near impossible. As awareness of celiac disease grows around the world, however, more and more cities are opening their doors to gluten-free lifestyles, none more so than the 10 locations on the list below.
    Perhaps unsurprisingly, the U.S is a hotbed of gluten-free options, with four cities making the top 10, as well as the Hawaiian island of Maui. Chicago, in particular, is a real haven of gluten-free fare, with 240 coeliac-safe eateries throughout this huge city. The super hip city of Portland also ranks highly on this list, with the capital of counterculture rich in gluten-free cuisine, with San Francisco and Denver also included. Outside of the states, several prominent European capitals also rank very highly on the list, including Prague, the picturesque and historic capital of the Czech Republic, which boasts the best-reviewed restaurants on this list.
    The Irish capital of Dublin, meanwhile, has the most gluten-free establishments, with a huge 330 to choose from, while Amsterdam and Barcelona also feature prominently thanks to their variety of top-notch gluten-free fodder.
    Finally, a special mention must go to Auckland, the sole representative of Australasia in this list, with the largest city in New Zealand rounding out the top 10 thanks to its 180 coeliacsafe eateries.
    The full top ten gluten-free cities are shown in the graphic below:
     

    Jefferson Adams
    Celiac.com 06/21/2018 - Would you buy a house advertised as ‘gluten-free’? Yes, there really is such a house for sale. 
    It seems a Phoenix realtor Mike D’Elena is hoping that his trendy claim will catch the eye of a buyer hungry to avoid gluten, or, at least one with a sense of humor. D’Elena said he crafted the ads as a way to “be funny and to draw attention.” The idea, D’Elena said, is to “make it memorable.” 
    Though D’Elena’s marketing seeks to capitalizes on the gluten-free trend, he knows Celiac disease is a serious health issue for some people. “[W]e’re not here to offend anybody….this is just something we're just trying to do to draw attention and do what's best for our clients," he said. 
    Still, the signs seem to be working. D'elena had fielded six offers within a few days of listing the west Phoenix home.
    "Buying can sometimes be the most stressful thing you do in your entire life so why not have some fun with it," he said. 
    What do you think? Clever? Funny?
    Read more at Arizonafamily.com.

    Advertising Banner-Ads
    Bakery On Main started in the small bakery of a natural foods market on Main Street in Glastonbury, Connecticut. Founder Michael Smulders listened when his customers with Celiac Disease would mention the lack of good tasting, gluten-free options available to them. Upon learning this, he believed that nobody should have to suffer due to any kind of food allergy or dietary need. From then on, his mission became creating delicious and fearlessly unique gluten-free products that were clean and great tasting, while still being safe for his Celiac customers!
    Premium ingredients, bakeshop delicious recipes, and happy customers were our inspiration from the beginning— and are still the cornerstones of Bakery On Main today. We are a fiercely ethical company that believes in integrity and feels that happiness and wholesome, great tasting food should be harmonious. We strive for that in everything we bake in our dedicated gluten-free facility that is GFCO Certified and SQF Level 3 Certified. We use only natural, NON-GMO Project Verified ingredients and all of our products are certified Kosher Parve, dairy and casein free, and we have recently introduced certified Organic items as well! 
    Our passion is to bake the very best products while bringing happiness to our customers, each other, and all those we meet!
    We are available during normal business hours at: 1-888-533-8118 EST.
    To learn more about us at: visit our site.

    Jefferson Adams
    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
    USC’s Clinical Trials Centre Director Lucas Litewka said trial participants would receive an injection of the vaccine twice a week for seven weeks. The trials will be conducted alongside gastroenterologist Dr. James Daveson, who called the vaccine “a very exciting potential new therapy that has been undergoing clinical trials for several years now.”
    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au

    Jefferson Adams
    Celiac.com 06/19/2018 - Could baking soda help reduce the inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease? Scientists at the Medical College of Georgia at Augusta University say that a daily dose of baking soda may in fact help reduce inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease.
    Those scientists recently gathered some of the first evidence to show that cheap, over-the-counter antacids can prompt the spleen to promote an anti-inflammatory environment that could be helpful in combating inflammatory disease.
    A type of cell called mesothelial cells line our body cavities, like the digestive tract. They have little fingers, called microvilli, that sense the environment, and warn the organs they cover that there is an invader and an immune response is needed.
    The team’s data shows that when rats or healthy people drink a solution of baking soda, the stomach makes more acid, which causes mesothelial cells on the outside of the spleen to tell the spleen to go easy on the immune response.  "It's most likely a hamburger not a bacterial infection," is basically the message, says Dr. Paul O'Connor, renal physiologist in the MCG Department of Physiology at Augusta University and the study's corresponding author.
    That message, which is transmitted with help from a chemical messenger called acetylcholine, seems to encourage the gut to shift against inflammation, say the scientists.
    In patients who drank water with baking soda for two weeks, immune cells called macrophages, shifted from primarily those that promote inflammation, called M1, to those that reduce it, called M2. "The shift from inflammatory to an anti-inflammatory profile is happening everywhere," O'Connor says. "We saw it in the kidneys, we saw it in the spleen, now we see it in the peripheral blood."
    O'Connor hopes drinking baking soda can one day produce similar results for people with autoimmune disease. "You are not really turning anything off or on, you are just pushing it toward one side by giving an anti-inflammatory stimulus," he says, in this case, away from harmful inflammation. "It's potentially a really safe way to treat inflammatory disease."
    The research was funded by the National Institutes of Health.
    Read more at: Sciencedaily.com