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BobbyKat LittleCub

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ravenwoodglass Mentor

I'd heard of wheat and milk alergies....but this certainly doean't ACT like no alergy I've heard of LOL...

That's because celiac is an autoimmune disease caused by antibodies. It is not an allergy which is a histamine reaction.


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cougie23 Explorer

Ataxia is a feeling of being off balance. I likened it to walking on a ship in a rough sea and I tended to fall to the right. Pins and needles, numbness and sometimes pain in the hands and feet is often paresthesias. If you are not already taking it get some gluten free sublingual B12 as that can help the nerves heal more quickly.

Yeah I forgot about that one! Got that to...tend to drift to the right while walking(cutting people off/running ing to them like a drunken sailor) losing my balance..while walking..sometimes even while stationary(i've gotten some real funny looks! :rolleyes:

  • 3 months later...
catsmeow Contributor

I use Alba hawaiian hair wash, it's organic. I love it!

The formula has been changed since I wrote this. Alba is now putting hydrolyzed wheat protein into their shampoo.....GGGGRRRRR... :angry:

AVR1962 Collaborator

Since I'm losing my hair, I probably need to buy a gluten free shampoo. Can anyone tell me what brands are safe to use?

I did not read thru all the replies so someone may have already mentioned this. Besides looking at what you are using on your hair make sure your thyroid is good. If you mention to your doc that you are having hair loss and you are cncerned about the function of your thyroid he/she should set you up for a blood test. Thyyroid problems can cause hair loss.

However, another thing to look at is the possibility that your body is not absorbing the proper nutrients for hair growth which is not uncommon for celaics. I was losing my hair so I started taking an additional zinc supplemn on top of my multi vit which also contains zinc and take BioSil drops and my hair stopped falling out. I know a lady who took Evening Primrose oil tabs and it helped her regain her hair loss.

Alwayssomething Contributor

Hi everybody...

I'm quite new to this, but it bothers me that everyone seems concerned with ingestion only...when talking shampoo, but if everything I've read so far talks about wheat contamination and so on...what about absorbsion?

can't it be absorbed into your skin? why isn't anyone conserned about that!? We just bought this lovely bottle of Nexxus at Cosco...My family loved it. Everyone liked the way thier hair felt...except me!I was ok at first... then my hair just went limp and raggy,dirty looking within an hour(sorta wilted). I wasn't feeling that great either...then my 12 yr old pointed out that it had (Wheat) in the ingreadiance(I hadn't thought to look..being new at this, but he did...great kid!!!)

Also in the past I have mysterous tender sopots in my scalp(like bad sun burn without the sun burn!) I'm wondering if its ben shampoo related all along (and no...I ussreally don't get shampoo in my mouth) but notice my arms and back itch alot after shampooing!

Thats what I have to say about that!

So what does anybody hear about panteane??? I know the ingreadiants have changed over the years...several times...but I just bought some and couldn't find wheat on there any where..is it under a differant name? someone mentioned on a past blog that it had gluten( I read this after googling the question this morning and this cite popped up!)

This cite has been heaven sent by the way...thats why I desided to join!!!

THANKYOU EVERYONE FOR YOUR EXPERIANCES AND ADVICE!!!

COUGIE23

I think you are very right, I like to use Benedryl as an example, the bottle says right on it not to use it on the skin if you are also ingesting another form, and every dr out there will tell you the same thing. Yet those same doctors will tell you that gluten in your beauty products will have no affect. Realy? Also most facial products claim that they are "healing" your acne/roseca making your skin healthier etc....well if that is true it is being absorbed.

I have to admit though one of my symptoms is DH so as soon as I use a product that has any form of gluten in it the rash that covers my body is worse than another other symptom I have.

mtdewpeg Rookie

Hi. I am new here. I just started gluten free diet on Dec.28th. I was diagnosed with celiac disease recently.I have probably had it for many years, but never got the diagnosis until now. Very frustrating! I haven't been told to use gluten free shampoos and soaps. I guess when I see my gi GI Dr. on the 9th i WILL GET ALOT OF INFO. Is there any good gluten free shampoos avaliable in the local stores? MY DH and I are both on disability and just can't afford gluten free specialty shops. Thanks for any info. I am sure I will be on the boards alot trying to figure things out.

Bubba's Mom Enthusiast

If you want gluten-free and widely available at a low cost..try Sauve brand. I use the coconut shampoo and have had no problems.

If you want a different scent be sure to read the label. Sauve is very good about labeling what's in their products.

Welcome to the forum!


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sa1937 Community Regular

I also use Suave shampoo and conditioner...it's about as inexpensive as you can get and is readily available at grocery stores, drug stores and Wal-Mart...many times on sale for around a dollar or so for a bottle.

  • 2 weeks later...
cougie23 Explorer

I think you are very right, I like to use Benedryl as an example, the bottle says right on it not to use it on the skin if you are also ingesting another form, and every dr out there will tell you the same thing. Yet those same doctors will tell you that gluten in your beauty products will have no affect. Realy? Also most facial products claim that they are "healing" your acne/roseca making your skin healthier etc....well if that is true it is being absorbed.

I have to admit though one of my symptoms is DH so as soon as I use a product that has any form of gluten in it the rash that covers my body is worse than another other symptom I have.

AMEN...THANKYOU...finally someone who understands what I'm saying!!! :blink::lol::D

Also I'd like to point out that if you can SMELL it ,Gluten molicules are entering in through your NOSE!! so you don't nesasarily have to INGEST it to have interaction with your mucus membranes....which makes more sense than geting it in your mouth...just saying! :rolleyes::D

But I still stand by my absorbtion therory!!! My HAIR can testify to that! LOL :P

(personally I use pantene)

rarmama Apprentice

I've been using Organix Moroccan Argan Oil shampoo, and was happy to see that all their products are gluten-free. I also like Joico, and it is gluten-free as well (or at least most of it is, from what I understand.)

  • 1 year later...
Kass1107 Newbie

AMEN...THANKYOU...finally someone who understands what I'm saying!!! blink.giflaugh.gifbiggrin.gif

Also I'd like to point out that if you can SMELL it ,Gluten molicules are entering in through your NOSE!! so you don't nesasarily have to INGEST it to have interaction with your mucus membranes....which makes more sense than geting it in your mouth...just saying! :rolleyes:biggrin.gif

But I still stand by my absorbtion therory!!! My HAIR can testify to that! LOL tongue.gif

(personally I use pantene)

I explain it to people like this, if you can absorb medicine from a transdermal patch into your skin and it get into your blood stream, etc then how could you not absorb gluten into your body by using shampoo, conditioner, lotions, etc? Our skin is the largest organ we have.

shadowicewolf Proficient

I explain it to people like this, if you can absorb medicine from a transdermal patch into your skin and it get into your blood stream, etc then how could you not absorb gluten into your body by using shampoo, conditioner, lotions, etc? Our skin is the largest organ we have.

No, that is not how it works.

 

The "gluten" molecule is too big to be absorbed.

 

The reason people use gluten free items is because of the chance of ingestion, not because of skin contact.

kareng Grand Master

I explain it to people like this, if you can absorb medicine from a transdermal patch into your skin and it get into your blood stream, etc then how could you not absorb gluten into your body by using shampoo, conditioner, lotions, etc? Our skin is the largest organ we have.

 

 

But that isn't really how that works. Everything is made of molecules.  We can't absorb everything thru our skin - water, dirt, dog hair, etc.  It doesn't work that way.  The medications are specially made to be small enough and sometimes have a special chemical that helps them penetrate the skin layers.  Gluten is a large molecule that is too large to go through the skin.  Even if it go in, say in through a cut, it needs to be in the intestines to start the immune reaction.

 

Open Original Shared Link

Gemini Experienced

But that isn't really how that works. Everything is made of molecules.  We can't absorb everything thru our skin - water, dirt, dog hair, etc.  It doesn't work that way.  The medications are specially made to be small enough and sometimes have a special chemical that helps them penetrate the skin layers.  Gluten is a large molecule that is too large to go through the skin.  Even if it go it, say in through a cut, it needs to be in the intestines to start the immune reaction.

 

Open Original Shared Link

How very common sense and scientific of you, kareng!  :D

kareng Grand Master

How very common sense and scientific of you, kareng!  :D

 

 

We could get really scientific - molecular masses, octanol-water partition coefficients, etc but most of us would just be looking like this Open Original Shared Link

  • 3 months later...
RNGayle Enthusiast

Do you have wavy or curly hair? I went "no 'poo" (I use an occasional surfactant-free soap like dr. Bronner's, and lots of regular conditioning, the book "curly girl" or the Internet has lots of info), and my hair felt a lot better and shed less. That was pre-gluten-free, and now that I'm gluten-free, my hair feels amazing and I'm shedding a more normal amount.

My college freshman daughter has gone "no poo" and pretty much loves it. She always had such a bad dandruff problem along with extremely oily hair prior to going no poo.

AprilBeth2013 Contributor

I use Hugo Naturals: Open Original Shared Link

 

Be prepared for the sulfate free experience through…it can be quite different if you haven't used it before.  Definitely buy conditioner too. :)

moosemalibu Collaborator

I use Alterna Bamboo line. I used to get a really bad itchy scalp and since using it I don't anymore from shampoo... only itchy if I get glutened via food.

  • 1 year later...
calli Newbie
On ‎9‎/‎12‎/‎2011‎ ‎1‎:‎11‎:‎57‎, Katrala said:

 

(I'm speaking purely for celiac here - not for anyone who has any other types of issues with gluten)

 

For celiac the damage comes when gluten enters the small intestine.

 

You picking up a handful of wheat gluten isn't going to hurt you unless you ingest it.

 

I doubt a shampoo makes your hair directly fall out. I'd say it's either a different issue or the malabsorption of nutrients is what is causing the hair loss. I had big issues with it before diagnosis and it's just now getting better.

 

I think it was the Australian research with vaccines that does it by injecting gluten, yes?

 

Once again - I'm not referring to anything regarding a wheat allergy or some other type of gluten sensitivity. I haven't done my homework on what reactions can or may be caused by direct contact, etc.

I have celiac disease. And just smelling regular flour with enriched wheat flour will make me sick. If dust from the flour is in the air it will make me sick. Yes! this very serious and will cause other problems if we don't make sure that everything in our home is gluten free. My family is having a hard time with it.  I could eat my sandwich because it bumped into gluten bread, even the slightest crumb can make me sick.

calli Newbie

Sorry folks my last comment said that I could eat a sandwich, what I meant was I could not eat my sandwich because it bumped into gluten bread.

What my doctors told me I have had celiac disease for a long time, It explains a lot, I wish I had known sooner.

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    • Wheatwacked
      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
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    • Wheatwacked
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