Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

I'm So Bitter And Sick Of It


zus888

Recommended Posts

Goof Rookie

I think you and I have been gluten-free for the same amount of time. I just hit 6 months last week. The stages of grief are absolutely true! When I first read that, I laughed a bit, and didn't take that part of going gluten-free seriously. But I went through all 5 stages of grief, including the anger. I have also made some mistakes along the way, been glutened, and been angry about being glutened. BUT you will get through this, I can assure you. Let yourself go through the grief stages. It's ok!!!! You're going through a massive lifestyle change, and it's natural for it not to be easy. Just keep hanging in there!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sarah Alli Apprentice

I don't really know why someone would miss gluten. I bake and everything I've made tastes as good or better (I love the almondy flavor Pamela's has) as gluteny things. I've made banana bread, oatmeal muffins, coconut cupcakes, cheesecake, chocolate chip cookies, snickerdoodles, on and on. All gluten free, and nobody can tell the difference. I have recipes for all these if you're interested.

I don't especially care for bread, so you've got me there. I eat Udi's occasionally but if I lived alone I probably wouldn't bother- it's mostly for my pb&j-loving sweetie.

In fact (and maybe this isn't what you want to hear) I love being gluten free. I do. I had to make changes in my life, totally, but most of them were changes I wanted to make anyway but put off. More fruits and vegetables in my diet. No more icky over-processed, bleached, god-only-knows-what-else carbs. Nothing fried. More organics, making stuff from scratch instead of buying things full of preservatives and carcinogens. Much less eating out (we save so much money). More than all of those things, really, is that I appreciate what being gluten free has taught me: namely, how to cook and really love food. I've morphed into a foodie- what once was a picky bland eater now dwells longer each time in the spice aisle and grows her own herbs. I've churned ice cream and made peanut butter. I spend lazy afternoons simmering chicken stock and I dream of canning home-grown delights and maybe someday owning my own bakery. I have the energy, at long last, to do the things I want to do- being gluten free did all of this for me.

Link to comment
Share on other sites
love2travel Mentor

I don't really know why someone would miss gluten.

I am a foodie and as such miss gluten like crazy! When you are as passionate about food as I am, you naturally miss it. The best food (and top quality ingredients) is a gigantic part of my life. I have eaten in some of the top restaurants on the planet so when you have had the ultimate you never forget it. You are right - it is very simple to do a lot of great gluten-free baking that can be superior to things containing gluten but that applies to quick breads, cookies, cakes, brownies, muffins, cupcakes, etc. and not yeast breads, phyllo and puff pastry, bagels, English muffins, choux pastry, and so on. I miss the aromas, texture and structure in addition to flavour. The act of kneading dough for bread or buns is (was) an integral part of the experience to me. Now those are the things I miss because they just cannot be replicated whereas the other stuff can. Yes, I admit I am a bit serious about food and am a food snob. There - I said it! :P

Link to comment
Share on other sites
zus888 Contributor

Man, I miss bread. I miss bread something fierce. And, that's the rub. If I had a day to binge, I would first go to Golden Corral and get salad and their dinner rolls. Mostly, the dinner rolls. That would be my meal: soft, buttery dinner rolls that practically melt in your mouth. Really, above all else, THAT is what I think about. BREAD. Yeasty yummy bread. Warm and soft, and chewy. Then, I'd probably have a pizza with a thick crust. Not sure what I'd have for dessert, but I wouldn't waste my time on something that could be decently replicated. The other thing I miss (but not yet) are my holiday cookies. I'm pretty sure that I'm not going to be able to replicate one of them, which makes me terribly sad.

Link to comment
Share on other sites
sa1937 Community Regular

Man, I miss bread. I miss bread something fierce. And, that's the rub. If I had a day to binge, I would first go to Golden Corral and get salad and their dinner rolls. Mostly, the dinner rolls. That would be my meal: soft, buttery dinner rolls that practically melt in your mouth. Really, above all else, THAT is what I think about. BREAD. Yeasty yummy bread. Warm and soft, and chewy. Then, I'd probably have a pizza with a thick crust. Not sure what I'd have for dessert, but I wouldn't waste my time on something that could be decently replicated. The other thing I miss (but not yet) are my holiday cookies. I'm pretty sure that I'm not going to be able to replicate one of them, which makes me terribly sad.

I hear ya, Suzanna. I think a lot of us miss our old gluteny bread...and that seems to be difficult to replicate, try as we may. I'm not sure I really recall exactly what it tastes like as it's been a long while. Have you tried making gluten-free pizza yet...that is one thing I've gotten pretty good at. The cookies will probably be easier than bread and come the holiday season, I have a feeling you'll find a lot of recipes here on the forum.

Link to comment
Share on other sites
GlutenFreeManna Rising Star

I hear ya, Suzanna. I think a lot of us miss our old gluteny bread...and that seems to be difficult to replicate, try as we may. I'm not sure I really recall exactly what it tastes like as it's been a long while. Have you tried making gluten-free pizza yet...that is one thing I've gotten pretty good at. The cookies will probably be easier than bread and come the holiday season, I have a feeling you'll find a lot of recipes here on the forum.

I agree with Sylvia! Don't give up on making gluten-free things yet. Pizza is really easy if you can find King Arthur's multi-purpose gluten-free flour and use their recipe on their blog. On the box of flour they have a recipe for popovers that is great! The popovers taste like a small soft dinner roll to me. For your holiday cookies I suggest you post the original recipe in the recipe section here and ask for help converting it to gluten-free. There are some amazing gluten-free bakers here. Just look at what Simona has recently been able to make: (If you search for her posts specifically you will see a bunch of other faboulous treats such as dumplings and cakes, etc.)

Link to comment
Share on other sites
Kim69 Apprentice

You are very lucky to have a gluten-free household. My family refuses.

My saviours are chocolate and an antidepressant (I was on it before I became Coeliac).

I have serious issues with food and see a therapist who has helped me throughout. I also have fructose malabsorption which really limits my food. I miss apples and pears.

So my advice is to see a therapist and consider an antidepressant. The ad helped me feel normal.

Hugs to you!!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zus888 Contributor

I have been waffling about seeing a therapist and maybe even the antidepressants. I hate the idea of adding more drugs to what I already take (17 total daily). Plus, depression is one of the big indicators for me that something is amiss (either thyroid or getting glutened), so masking it may be masking a valid medical issue.

I would qualify myself as depressed right now, though it's not really affecting my every day living - just tainting my general world-view. I meant to call the doc today to have my thyroid tested again - I can't seem to get is stabilized.

I do have a pizza crust recipe that I got from food.com and it's pretty good. I'd rank it up there with an ok frozen pizza. But I just can't get the dinner rolls out of my head. They haunt me.

Even today, I was talking to someone about the diet, and I really had not one good thing to say about it. I did tell her that some people will say that it's not that bad, but that I hadn't found that to be true at all. I won't lie: I think it sucks. I would love to get out of that mindset because it does nothing but sabotage my whole perspective.

Link to comment
Share on other sites
ravenwoodglass Mentor

I have been waffling about seeing a therapist and maybe even the antidepressants. I hate the idea of adding more drugs to what I already take (17 total daily). Plus, depression is one of the big indicators for me that something is amiss (either thyroid or getting glutened), so masking it may be masking a valid medical issue.

I would qualify myself as depressed right now, though it's not really affecting my every day living - just tainting my general world-view. I meant to call the doc today to have my thyroid tested again - I can't seem to get is stabilized.

I do have a pizza crust recipe that I got from food.com and it's pretty good. I'd rank it up there with an ok frozen pizza. But I just can't get the dinner rolls out of my head. They haunt me.

Even today, I was talking to someone about the diet, and I really had not one good thing to say about it. I did tell her that some people will say that it's not that bad, but that I hadn't found that to be true at all. I won't lie: I think it sucks. I would love to get out of that mindset because it does nothing but sabotage my whole perspective.

17 different scripts a day! Yea I would be reluctant to add another into the mix also. Do have your doctor review all of the meds and make sure that your mood issues aren't being caused by a reaction to the mixture. Many drugs can have side effects that can cause irritability and other problems.

Link to comment
Share on other sites
zus888 Contributor

Oh, No! Not 17 scripts, 17 pills. Actually it LOOKS worse than it is. I have 4 scripts: Rx fish oil (2 pills, 2x daily - supposed to provide anti-inflammatory effects), something to keep crohns in check (3 pills 2x daily), and another for my liver disease (2 pills 2x daily - although there are no studies to prove that it actually provides any true benefits for the liver disease), thyroid med (1x daily), OTC allergy, and OTC vitamins. So, it's a lot of pills to keep track of even though there's only 4 scripts.

I have a lot of issues going on, just like many of you. Unfortunately, none will be resolved by the gluten-free diet.

Link to comment
Share on other sites
ravenwoodglass Mentor

Oh, No! Not 17 scripts, 17 pills. Actually it LOOKS worse than it is. I have 4 scripts: Rx fish oil (2 pills, 2x daily - supposed to provide anti-inflammatory effects), something to keep crohns in check (3 pills 2x daily), and another for my liver disease (2 pills 2x daily - although there are no studies to prove that it actually provides any true benefits for the liver disease), thyroid med (1x daily), OTC allergy, and OTC vitamins. So, it's a lot of pills to keep track of even though there's only 4 scripts.

I have a lot of issues going on, just like many of you. Unfortunately, none will be resolved by the gluten-free diet.

Whew, glad to hear that. Do be sure to have them do rechecks on your liver panels frequently. I don't know what liver issues you have but many of us to have liver panels that are off when we are diagnosed that resolve with no meds after we have been gluten free for a while. I had a problem finding fish oil tabs that were soy free. I don't know if you have issues with soy but if you do make sure they don't have soy in them. I finally found a cod liver oil cap that was just cod liver oil. I hope you are feeling better soon. Your allergies may also calm down. I showed allergies to 98 out of the 99 things I was tested for prediagnosis and felt like I needed to live in a bubble. Within a few months only 4 remained and they are not really severe at this point. Hopefully yours will resolve also. It can be amazing how much celiac impacts our systems and how much can resolve that doesn't seem to be related after we heal.

Link to comment
Share on other sites
zus888 Contributor

That's actually quite interesting. It's ragweed season up here and normally (even with shots) I'm completely miserable, but I'm not having any more of a problem than a slightly runny nose. I don't know if the pollen isn't that bad or what. I thought it had more to do with the shots and my allergy meds, but maybe I'm wrong. I have tried going off the allergy meds, and have had no luck at all with it. But, in a normal year, I'm miserable with the shots AND the meds - that's how bad I reacted. So, maybe gluten-free IS actually making a noticeable effect?

Oh, and I have been diagnosed with Primary Sclerosing Cholangitis. A study showed no difference between those who went gluten-free and those who didn't. Apparently it has no effect on the progression of the disease. I try not to think about it, though.

Going to Outback tonight for my birthday dinner and then having an almond torte from Gluuteny. Man, I really hope it's good. If not, I'll just have to make my own cake for myself tomorrow. But today, I'm NOT cooking!

Link to comment
Share on other sites
Zaphryn Newbie

I thought at first relief when I was told what was wrong, and the diet didn't bother me much other than it's so damn costly and there are close to no products in my country.. but at least you can make alternatives and some are better than the originals.

But gotta say, it depresses me so when I go downtown and I can't go to a restaurant with my boyfriend and he doesn't wanna be limited by me. I said before I went on the diet that I was worried how it'd bother him cause in a way it'd restrict him too, but he said it'd be no problem. It's just not how I felt lately. And when people make homebaked cakes at work and I gotta say no.. man, it kills you socially. Who knew food brought people together as much as it does. This diet basically restricts you in all sorts of food and makes you hypersensitive towards other food too .. No wonder it makes a lot of us bitter.

Link to comment
Share on other sites
mushroom Proficient

Yeah, you have to develop a new outer skin that both makes you impervious to the dubious delights of gluten, and at the same time allows you to be super nice to people who offer it to you, and not bore them to death with why you can't eat it :lol: You also have to learn that it is the social part that counts, not the food, and focus on that, otherwise you run the risk of being ostracized. There's nothing that will turn you into a good cook more than a diagnosis of gluten intolerance. Blow them away with your gluten free goodies. Sorry I can't help with the boyfriend part. Either he gets it and will be supportive, or he doesn't and won't. :(

By the way, welcome to the forum :)

Link to comment
Share on other sites
Marilyn R Community Regular

That's actually quite interesting. It's ragweed season up here and normally (even with shots) I'm completely miserable, but I'm not having any more of a problem than a slightly runny nose. I don't know if the pollen isn't that bad or what. I thought it had more to do with the shots and my allergy meds, but maybe I'm wrong. I have tried going off the allergy meds, and have had no luck at all with it. But, in a normal year, I'm miserable with the shots AND the meds - that's how bad I reacted. So, maybe gluten-free IS actually making a noticeable effect?

Oh, and I have been diagnosed with Primary Sclerosing Cholangitis. A study showed no difference between those who went gluten-free and those who didn't. Apparently it has no effect on the progression of the disease. I try not to think about it, though.

Going to Outback tonight for my birthday dinner and then having an almond torte from Gluuteny. Man, I really hope it's good. If not, I'll just have to make my own cake for myself tomorrow. But today, I'm NOT cooking!

I used to get a serious cold or bronchitis twice a year. Now I haven't had a cold in almost two years. It used to be a big problem, because all of the OTC cold remedies make me break out in hives. So I just sufferred through the 1-2 weeks I had the cold with homemade remedies. (Chicken soup, Vick's Vaporub.)

You're going to get some weird blood tests if you have secondary food intolerances going on. I've been dx with Mixed Connective Tissue Disease and a weird lung disease. I insisted that they repeat my blood tests and they came back normal. My guess is that something else is bugging you, like soy. Soy's in everything, like mayo and all processed foods. I'm just guessing though... could be completely wrong.

The only reason I mention this is that I noticed from previous posts that we've shared quite a few symptoms.

Hope you have a really happy birthday, and wish you the very best. :D

Link to comment
Share on other sites
Zaphryn Newbie

Yeah, you have to develop a new outer skin that both makes you impervious to the dubious delights of gluten, and at the same time allows you to be super nice to people who offer it to you, and not bore them to death with why you can't eat it :lol: You also have to learn that it is the social part that counts, not the food, and focus on that, otherwise you run the risk of being ostracized. There's nothing that will turn you into a good cook more than a diagnosis of gluten intolerance. Blow them away with your gluten free goodies. Sorry I can't help with the boyfriend part. Either he gets it and will be supportive, or he doesn't and won't. :(

By the way, welcome to the forum :)

Thank you =D! And good point with the social part which is what counts instead of the food. And I think you're right about becoming a good cook cause you learn to make everything from the bottom.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,070
    • Most Online (within 30 mins)
      7,748

    TT24
    Newest Member
    TT24
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...