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PadmeMaster

A Good/bad And A "what's Going On?"

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So I was dieting and doing only smoothies (Naked juice, all but the Green Machine :) Green Machine was how I knew for sure I was never purposely touching Gluten again :( ) and salads. I went to Subway for a good salad (I am an olive-aholic) and got the chicken and baby spinach. I'd never had issues at subway in the past, despite seeing warnings on here, so wasn't careful past the obvious. I had some knee pain that night and the next day. I didn't get the point, so repeated. Still didn't get the point, just a twinge of pain. But something was bothering me... When the man the second time asked what chicken I wanted, he TOUCHED the breaded one. Watching my brother eat his normal sandwich, it hit me. The pain was because of the CHICKEN AND CHEESE. Both were first row items. Subway personnel just wipe the crumbs in there.. So I said something about it while asking for a back-row chicken the next time, and reminded her that I couldn't have the shredded cheese because of the same reason. Perfect. No pain. (Thankfully, contamination pain only lasts 24-48h for me.) And maybe she learned something ;)

But, the sad note is, I do NOT think that the buffalo chicken is Gluten Free. I didn't check the list, but I did have a minor reaction to something, and I'm pretty sure it wasn't anything else.

There is a "what's going on?" moment though.. I've been extra tired and had some strange moods. Mom suggested depression, and I googled.. Then it hit me why MOM has onsets of depression and I googled Hypothyroidism. I have a lot of the symptoms of it.. The cold in my feet (mostly, although it has hit my fingers and nose), the fatigue, the weight (although no gain, but again. I was dieting.). I don't track my cycle well enough to tell if it was off this month.. I went to the doctor and they said the results would be in today, but they close in an hour (or closed an hour ago) so I assume I'm waiting til Monday on that blood test. Could it be a new symptom to the gluten if it's NOT my thyroid? (They also did an Anemia test..)

Lastly: On the two tests they did, should I look out for hidden gluten in the meds they'll prescribe? I know it will be Levythroxin (the off-brand of Synthroid) for the Thyroid, but I know nothing about Anemia.

Thanks!


---

~Padme

Big Sister to John (16), Princess (5), Dino (4), Munchkin (3) and whoever else happens to join us while their parents can't care for them!

Gluten-free myself since Aug 2010; Not diagnosed Celiac

Daughter to wonderful parents!

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Your issue may not be thyroid so don't worry about that until the tests come in. Did you have positive blood work at diagnosis? If you did make sure they rerun those also. If you are eating out a lot you may be simply dealing with gluten issues as your problems are not uncommon for someone who is being CC'd. If your celiac panel shows your still not having those levels go down you may want to skip the restaurants and go with whole foods for a bit.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Gluten can affect the thyroid--- being gluten free (avoiding cc from eating out) may resolve it, if you can avoid te gluten-containing synthroid. Usually for anemia you'll get supplements (just read labels, because every brand is different), but if it's bad, they'll want to give IV iron.

I tried to eat a plain meatless salad at subway and had a bad reaction. (couldn't even finish the meal), and then when I went back with my partner for her to get a

Sandwich to go, I had a reaction just from the air there. I never thought I'd be so sensitive, but you may want to think about your level of gluten exposure. They're touching bread for sandwiches and then putting gluteny hands into the lettuce and veggies, and then all the veggies are cc'd for everyone. The lady who made that Salad I ate was in a brand new shop, and put on fresh gloves. That lettuce had been cc'd before I got there. Same with the tomatoes and everything else. I'd been looking forward to this subway location for over a year, and it opens right when I discovered I have dh/celiac! Oh irony.


glutenfree since 6/2011. sick for 30 years.

borderline blood test, negative biopsy.

SEVERELY sensitive celiac with DH. sensitive to contact and ingestion.

asthma (was severe; improved exponentially after 6/11)

spina bifida & childhood SCI at L4/L5 (possibly complicated by weak bones)

countless fractures and infections.

i once listed over 100 symptoms or conditions that improved or were eliminated after 6/11.

very vegan. and, of course, i've also discovered some other food allergies.

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I'm totally not the paranoid type, but the thought of eating anything from Subway makes me shiver.

Minimum wage staff (= high turnover and minimal training) combined with gluten bread EVERYWHERE even makes a "oh you silly people, c'mon now" person like me avoid eating there.


Positive Celiac (Blood & Biopsy) - April 2011

Peanut Allergy

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The Thyroid came back normal. I'm not eating out anymore, and after today will cut down on the processed foods (*clears throat* I ate nearly an entire container o the frozen Udi's cookies in two days.. I think you're supposed to heat them up...). I'm a little less tired today (like didn't fall asleep when I tried to nap.. always a plus).. I've never had that symptom of contamination, so didn't even consider it.. I'll keep an eye on what I eat and see if it goes away in the next couple days, since I'm past my typical 5-7 days.. Make sure I'm not accidentally getting something still.. But I'm the cook, and I'm super careful (like I use more dish soap washing my hands than my brother uses washing the dishes :) )


---

~Padme

Big Sister to John (16), Princess (5), Dino (4), Munchkin (3) and whoever else happens to join us while their parents can't care for them!

Gluten-free myself since Aug 2010; Not diagnosed Celiac

Daughter to wonderful parents!

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A whole package of gluten-free cookies could have enough gluten in them to cause a reaction. I recently discovered the deliciousness that is Snyder's gluten-free pretzel sticks and OMG THEY ARE SO DELICIOUS... but after a half a bag (don't judge me, please! Lol), I had a bad bellyache. Now if I eat more than what fits in one hand, I feel glutened.

Also, are a lot of these gluten-free treats sugary? There could be blood sugar crashes going on from the simple carb flours and delicious sugar making you very tired. (random thought from my own experience.)

If it tastes too good to be good for you, it probably is, I've learned. At least in excess it is! ;)

Feel better soon, I hope!


glutenfree since 6/2011. sick for 30 years.

borderline blood test, negative biopsy.

SEVERELY sensitive celiac with DH. sensitive to contact and ingestion.

asthma (was severe; improved exponentially after 6/11)

spina bifida & childhood SCI at L4/L5 (possibly complicated by weak bones)

countless fractures and infections.

i once listed over 100 symptoms or conditions that improved or were eliminated after 6/11.

very vegan. and, of course, i've also discovered some other food allergies.

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A whole package of gluten-free cookies could have enough gluten in them to cause a reaction. I recently discovered the deliciousness that is Snyder's gluten-free pretzel sticks and OMG THEY ARE SO DELICIOUS... but after a half a bag (don't judge me, please! Lol), I had a bad bellyache. Now if I eat more than what fits in one hand, I feel glutened.

Also, are a lot of these gluten-free treats sugary? There could be blood sugar crashes going on from the simple carb flours and delicious sugar making you very tired. (random thought from my own experience.)

If it tastes too good to be good for you, it probably is, I've learned. At least in excess it is! ;)

Feel better soon, I hope!

I haven't found the Snyder's ones :( No stores stock them... Anyway: The cookies were after it started.. And I'm feeling much better today (including being so hyper that I had to go on a bike ride to calm down) so I'm thinking y'all were right and it was the Subway.. So no more subway for me :)

Thanks!

~Padme


---

~Padme

Big Sister to John (16), Princess (5), Dino (4), Munchkin (3) and whoever else happens to join us while their parents can't care for them!

Gluten-free myself since Aug 2010; Not diagnosed Celiac

Daughter to wonderful parents!

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