Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Emotional Revolutions


saintmaybe

Recommended Posts

saintmaybe Collaborator

Anyone else feel like they had a dramatic personality transplant after they went gluten free?

I know for me, depression, guilt, and anxiety were a huge HUGE part of my celiac. Once I stopped eating gluten, a lot of that is slowly tapering off.

I'm finding very positive effects though- I am much less likely to take things lying down. I used to think everything was my fault. That apparently I was one of those people who was just destined to physically suffer for some kind of unapparent sin.

Now, I'm like, hey wait, so and so, THIS situation (whatever it is) is not my fault, and whatever you say can't make it so. I'm much less pliable, a lot more fired up and spunky.

Of course, this has it's drawbacks- my fiance and I fight a lot more. A LOT more, because I'm much less likely to just meekly concede the point.

Something else that happened- I went to a concert of one of my favorite bands, and for the first time, I felt totally 100% immersed in the music and the experience. I singing, clapping, dancing- having a GREAT time. And I could tell the people around me were having a BETTER time because I was so into it.

It's the first time in my life where I've felt like-- yes! THIS is the person I was supposed to be before everything got derailed by illness. It was amazing, transformative.

Anyone else have experiences like this, for good or ill? Do you LIKE the person you are off gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Yes, yes, yes.

I used to be one of those rebellious southern females. You know, the kind that questioned EVERYTHING. A good friend once told me that if the world was coming to an end, she would think it would be ok as long as I was there because I'd find a way to deal with it.

I realized how different I'd become when people started describing me as sweet, cheery, agreeable, ready to help. Now, not that those are BAD qualities - and I have always wanted to "help", but NO ONE HAD EVER DESCRIBED ME AS SWEET AND AGREEABLE. I had become much too passive - waiting for others to take the initiative, etc.

I'm happy to say my vinegar and obstanance are back, along with my sarcastic wit and undeniable charm. And I am, once again, ready to incite a riot at the drop of a hat or argue a point til the cows come home.

I also have discovered I font internalize things as much now - it's not always my fault (like everyone tried to tell me over and over).

Kelby Rookie

I cant say that I have noticed a HUGE difference, but I have noticed that my emotions are.. "amplified".

For instance, I was at a concert last week and a guy went up on stage and proposed to his girlfriend. Normally I would say hey good for you, etc. but I actually found myself tearing up! So crazy.

On the negative side of it though, I find if I am angry, I seem to be much more angry, or if I am happy I am much more happy.

Additionally, I feel like switching to the gluten-free diet has made me a much stronger and resilient person. I feel like the fact that I have been able to make this major life transition has made me feel more empowered, and for that I am extremely grateful and happy.

KM

Gfresh404 Enthusiast

I can totally relate to this. The person I am now, sometimes I don't even recognize myself. When describing the transformation to other people, ie family members, I usually say that now I have the potential to be my "best self" and before I was 80% of the time my worst self. I just don't like to say that I am changed man, because I am not, but in many ways I am - lol. I know that sounds confusing but it made sense in my head!

I just prefer describing it this way because I don't think people ever truly change - their moods may just alter depending on the current external events affecting their lives.

Anyway I truly love myself now (god that sounds corny) and have learned to be kind to myself, I think a lot of people, myself included are the toughest on themselves, which can be good at times, but it can also leave you feeling never satisfied and always disappointed, even when you do do something extra-ordinary.

In my real first year I sort of had to rediscover myself and find out who I really was, because who I thought I was, was not the case. To any other lost souls out there I highly recommend reading Psych-Cybernetics. If you read the description it sounds a little corny but it is like the Bible of Self-help books - every other self help book is supposedly based off of some concept gone over in this book.

AVR1962 Collaborator

Oh yeah, looking back now I know I have been sick for years. Ths stress I endured as a stepmom to two boys who wished I were died compunded the anxiety and depression I went thru. I was very weak then. I am actually surprised I didn't have a nervous breakdown actually.

I feel so much more alive, just an odd alertness but it is like reality dawning in rather than this mashy fog if that makes any sense. I feel more grounded than ever before.

I think it took my body getting so sick to make me realize how valuable my life is and what I actually had to do for myself. I was the one always doing for everyone else and with 5 kids in the house I didn't have time for me.

Eventhough I'd love to swing by Taco Bell for lunch and I can't splurge on a piece of pizza anymore, I feel my life is finally on the right track.

bigbird16 Apprentice

Yes, I've definitely changed. I've become more like my old self. Years ago before I started going downhill, I always had a can-do attitude, where I could do anything I set my mind to. If someone told me I couldn't or shouldn't, I did just to prove them wrong and thumbed my nose at them. I've always been described as sweet, but I used to have a lot more spice, too. I was easy-going and took life as it came. I marched to my own tune.

Then things changed and I started becoming meek and compliant and listened to the people who said I couldn't. I became depressed and cried a lot, always seeing the bad in situations. My negative reactions to situations were over the top--shaking, crying, erratic, shouting. I was pretty tightly wound, quiet, sullen.

Since making the dietary changes, everyday I become brighter and stronger. Some people that never knew me before sick are shocked at some of the things I come up with now, and some don't like the rebellious streak. They don't like that I will disagree when I feel the need to and won't just nod my head. My supervisor (Miss Doom & Gloom) hates the big streak of sunshine I bring into the office every day. I hardly cry now, except when there's really something to cry about. More rolls off my back, and my reactions are more tempered and easy-going. I roll with life more and make/take the time to soak up the present. I'm back to marching, hopping, and twirling to my own tune.

glutout Rookie

Oh, yes. I had severe anxiety and panic attacks and all other kinds of physical and emotional issues that no doctor could explain. Lost my job, couldn't drive, all types of things I have lost. Now, after a year and a half everything is getting better-more on an even keel. I still have to deal with the flashbacks and torments of what the anxiety has done to me on a daily basis for so long, but I am getting better. I have noticed, too, that here lately I don't take much crap and am getting back to that "tough" independent chick I used to be. I still am having some ataxia, dizziness issues to my getting back to driving is limited, but I am on my way!! Stupifying isn't it? :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Strawberry-Jam Enthusiast

Getting rid of soya specifically has stopped my random bouts of crying and depression that would come out of nowhere, even when my life was going really well. I would get this profound feeling of emptiness and emotional confusion and eventually took to self-harm and a lot of manipulative behaviour to distract myself from it. I pulled myself out of the worst of that before I discovered coeliac or my soya intolerance from pure willpower and a lot of extra sleep. When I discovered the crazy depression that comes from soya and cut it out, it was amazing how the nature of my sad phases changed to being purely related to circumstances and grounded in reality rather than appearing out of nowhere, like crashing into invisible walls.

But I am still having a lot of fatigue and headache symptoms that I am trying to work out, so my emotions are still in the "unstable" category. I am a lot more resigned and subdued than I used to be. I have longer melancholy streaks (those will be always with me tho, I'm an artist) and due to fatigue I hide from the world a lot or give up doing things I want to do. But I enjoy what I do see and experience a lot more because I am moving at a much slower pace and being more deliberate about things.

Coeliac slowed me down and lessened the intensity of my feelings and moods. Gluten-free helped me not be sick and losing weight at an alarming weight, but the emotional change since coeliac was triggered has not been reversed by diet. I don't know if I want it to be.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,646
    • Most Online (within 30 mins)
      7,748

    Maria Marshall
    Newest Member
    Maria Marshall
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.1k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MichelleGrant
      ps for the most part I don't eat much gluten day to day. In the past it was like a bucket for me. I could eat a little and be ok. But I had to be careful. If I ate too much I'd get tired and lethargic. Lately any gluten makes me very very sick. At first I didn't understand what was going on, and now I'm onto it. I'll never eat gluten again - unless I have to do the 6 week challenge.
    • MichelleGrant
      I've been gluten intolerant for as long as I can remember. I get terrible cramps and fatigue/ feel like I've got the flu. In the last 3 months I've felt increasingly unwell. I started to get very bad diarrhea after eating gluten, which would take 4-5 days to recover from with a very bland gluten-free diet. It escalated 4 weeks ago after having a small piece of bread. The diarrhea got so bad I went to the doctor thinking I had gastro. It was just before a trip overseas so he put me on antibiotics. The stool test for virus/ infection was negative. While overseas I had a terrible episode. I had some wheat (I know - I was missing western food), and that evening had chills for two hours. I had a bad episode of diarrhea. The next morning was the worst. I was shaking, felt like I was going to be sick, and had the worst diarrhea of my life. It was basically water, and I couldn't leave the bathroom for 2 hours. We had to change our train tickets and get a late checkout. Awful. I'll never eat gluten again. That was 1.5 weeks ago. I've eaten gluten-free since then, and my body is still working through things. Most foods are now causing irritation. I'm on a very bland gluten-free diet which seems to be working. I saw my Dr today. I was hoping she would say its my gallbladder/ pancreas. She said its hallmark celiac disease symptoms. She wants me to have a blood test tomorrow, and if thats negative go to the gastroenterologist. She will also test liver/ kidney etc. I haven't had any gluten for 1 week, with the exception of some soy sauce. My dr said my stomach is so inflamed that even though I haven't had gluten, if its celiac disease it might show up on the blood test. Separately, I had a test for celiac disease 3.5 years ago (colonoscopy/ endoscopy) which came back negative. To be fair, I didn't eat enough gluten beforehand. Please let me know your thoughts about the blood test. I'm wondering if I should gluten up and then do it, or just do it tomorrow since I've had issues with diarrhea all week, and if its negative have more tests/ gluten up.
    • Scott Adams
      Based on your test results (IgG ELISA: 106 units, IgA ELISA: 135 units, tTG: 251 units), all of which are well above the >30 units threshold for moderate to strong positive, there is a very high likelihood—as you noted—that you have celiac disease. While a biopsy was traditionally considered the gold standard for confirmation, your exceptionally elevated antibody levels, combined with your long-standing gluten sensitivity and strict adherence to a gluten-free diet, strongly support the diagnosis. Given that you’ve been gluten-free for 20 years, a biopsy now might not be reliable (since it requires gluten exposure to detect damage). Your assessment aligns with current understanding—many experts would consider these results diagnostic in the right clinical context. That said, if you ever needed formal confirmation (e.g., for medical documentation), a discussion with a gastroenterologist about potential gluten challenge testing (though challenging) could be an option. Regardless, your proactive approach to avoiding gluten is absolutely the right course! Thanks for sharing your experience—it’s a great example of how patient awareness and adherence can manage celiac effectively. There are benefits to not having a formal diagnosis, for example people with a formal diagnosis may face higher life insurance costs, as well as higher private health insurance costs.
    • dfgray
      Hi Scott, I just came across your article regarding blood tests to determine celiac disease and wanted to thank you for writing it so clearly. Today I pulled out my 20 year old test results from Immumo labs and followed along as I reread the article.   I was first tested in April 2005. At the time I was told that I’m highly sensitive to gluten and must avoid but the practitioner would not say I had celiac disease without a biopsy to confirm.   Based on the information in the article, it looks like there’s a 97% chance that I have celiac disease [here are my results: IgG ELISA test :106 units; IgA ELISA: 135 units; tTG: 251units). The range for all the tests is: <20=negative, 20-30=week positive, >30units =moderate to strong positive]. Am I correct in my assessment? Is there any doubt that I have celiac? I’m not looking for medical advice but I’d love your opinion on this. I have eaten strictly gluten free for 20 years now and wouldn’t ever consider otherwise regardless. Thanks in advance, and thanks again for your article. Dana
    • Scott Adams
      The description of their patented technology is quite vague, so I would say beware of it until you have more information.
×
×
  • Create New...