Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Lactose Intolerance

BeFree

By BeFree
in Food Intolerance & Leaky Gut

Recommended Posts

BeFree Contributor
BeFree
Posted

I have searched the internet and cannot find the answer to this question. I realize this question has probably been asked many times but if someone could answer I'd really appreciate it.

I understand that a person with celiac can have a temporary lactose intolerance until the villi heal completely. If you ingest lactose before the villi have completely healed, will it slow down your healing process? I want to know if I can occasionally eat cheese and just put up with the symptoms of the lactose intolerance, or is this damaging to my intestines?

(I don't have a diagnosis of celiac yet, but until I have a diagnosis, I want to be cautious and try to make sure I'm healing any intestinal damage, if in case I do have it.)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

Lactose intolerance, whether temporary due to villous atrophy, or permanent, is not an autoimmune condition.

No damage to your body tissue will result from ingesting lactose. You may FEEL like your intestines are being torn apart, but the symptoms will pass. Nobody will want to be downwind of you, and you may want to stay close to a toilet. :ph34r:

mushroom Proficient
mushroom
Posted

The gluten is responsible for the damage to the villi

The lactase to digest the lactose is made at the tips of the villi

You will most likely be lactose intolerant until your villi heal

Until they heal the lactose will ferment rather than digest in your gut and and cause the side effects Peter mentions, but it should not cause any damage to your body.

AVR1962 Collaborator
AVR1962
Posted

Have you tried aged cheeses? There are alot of aged cheeses that lose their lactose during the aging process. Where I live they are labeled in the cheese section as dairy free. Some cultured yogurts are the same although I think more lactose stays in the yogurt than in the cheese.

BeFree Contributor
BeFree
Posted
  • Author

Thanks so much for your answers. I'm OK with some occasional discomfort as long as I know I'm not damaging my body.

I ate some gluten-free pizza and had some upset afterwards (first time I'd eaten cheese since going gluten-free), and realized I'm probably lactose intolerant. The next day I ate the same pizza with a lactaid and it went much better. (So it doesn't seem to have been CC or anything.)

I have indeed found that aged cheese seems to go down easier, which is great since that's the kind I prefer anyway! :)

BeFree Contributor
BeFree
Posted
  • Author

"You may FEEL like your intestines are being torn apart"

Yes...That is EXACTLY how I felt the last time I ate a cheese sandwich on wheat bread, like I was being torn apart, it was so painful. Nice that there are people that understand.

Eating just cheese by itself (ie, without the gluten), seems to be manageable for me though, fortunately. Uncomfortable, but not painful.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I was referred to a dietician to discuss my Celiac diet. I asked her the same question. She said it would be good to take a lactase suppliment if dairy gave me discomfort. She said if adding some cheese or butter to things made them taste better to encourage me to eat, go ahead and do so.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BeFree Contributor
BeFree
Posted
  • Author

"She said if adding some cheese or butter to things made them taste better to encourage me to eat, go ahead and do so."

The nut-thins do taste a lot better with some cheese!

Lisa Mentor
Lisa
Posted

Here is a statement from MedScape (which I cannot link)

Although villous atrophy is not exclusive of celiac disease, it is considered a crucial finding. Other causes of blunted villi include tropical sprue, malnutrition, intolerance to cow's milk, soy protein intolerance, and infectious gastroenteritis. However, most of these conditions can be readily excluded on the basis of clinical history and laboratory data.

I do feel that the previous posters have answered your questions, though.

  • 2 weeks later...
cougie23 Explorer
cougie23
Posted

The gluten is responsible for the damage to the villi

The lactase to digest the lactose is made at the tips of the villi

You will most likely be lactose intolerant until your villi heal

Until they heal the lactose will ferment rather than digest in your gut and and cause the side effects Peter mentions, but it should not cause any damage to your body.

Wow...it's been 3 months since I've been diagnosed and this is the first time someone explained WHY celiacs can't have lactose..my Dr. just said DON'T DO IT...she never said why!!! I know I'm casien sensitive but this really explains the dairy intolerance on a whole new level...espeacially the rotting breath before I stopped all dairy!!!

thanks for clearing that up! Its amazing what I learn on this site every day!

And Peter... LOVE the evil pumpkin!!! :D:D:D It's delicously wicked! B)

BeFree Contributor
BeFree
Posted
  • Author

"Wow...it's been 3 months since I've been diagnosed and this is the first time someone explained WHY celiacs can't have lactose..my Dr. just said DON'T DO IT...she never said why!!!"

Oh that's too bad--I think it's so important to your health to have that piece of information where you understand what's going in inside your body. I'm glad you could find some answers here.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,156
    • Most Online (within 30 mins)
      7,748
    Shrub
    Newest Member
    Shrub
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.