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Gimpwithacause

Gluten-Free But Still Reacting Bad

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Hey guys, So I've been really trying to stay gluten free for the past year, and my stomach has become unpredictable on whether it will have a bad reaction or not. It could be totally gluten free and my stomach will still react as if I just ate a roll or doughnut...I don't know what to eat and not eat when it IS gluten-free....I keep getting terrible gas that is terrible to get rid of and have not found a fix for it yet. PLEASE HELP ME! My last stomach ache lasted for 7 hours when I was eating regular food. If you have an answer for this delima that would be awesome! Thanks again
:D

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Are you still eating dairy? That's the first thing to cut out and if that doesn't work try cutting out soy.

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Try a probiotic like Align for a couple of months. I was having problems for a while when I decided to get on Align. I've been on Align for 2 months now and feel much better. Got rid of the terrible gas bouts. I could no longer have any dairy due to severe stomach cramps. After a month on Align, I can now eat frozen yogourt. Give it a try, it might help.

Wenmin

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so sorry to hear what you're going through. I've been gluten free for 1 1/2 years and my antibodies are still sky high. Fortunately, I don't have GI issues (other than acid reflux which has improved) but am so tired all the time. It's so frustrating!

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Are you still eating dairy? That's the first thing to cut out and if that doesn't work try cutting out soy.

I agree! I've been with celiac for five years and in the last month I've given up both dairy and soy. Definitely feel a bounce back in my step.

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Some of us, super sensitive celiacs, react to lower levels of gluten than the rest. There is a section on this forum about that. You could try a diet of meat and produce for a week or so to see if that helps.

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I agree! I've been with celiac for five years and in the last month I've given up both dairy and soy. Definitely feel a bounce back in my step.

I am deffinately going to have to try that! I do remember something about I have the milk thing too, and I hadn't though much about the soy. Thanks :)

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Try a probiotic like Align for a couple of months.

Last time I checked Align contains dairy. I use a dairy, soy, gluten (obviously) free probiotic. Works for me.

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Hey guys, So I've been really trying to stay gluten free for the past year, and my stomach has become unpredictable on whether it will have a bad reaction or not. It could be totally gluten free and my stomach will still react as if I just ate a roll or doughnut...I don't know what to eat and not eat when it IS gluten-free....I keep getting terrible gas that is terrible to get rid of and have not found a fix for it yet. PLEASE HELP ME! My last stomach ache lasted for 7 hours when I was eating regular food. If you have an answer for this delima that would be awesome! Thanks again
:D

When you say you have "been really trying to stay gluten free for the past year" does that mean that you have been having some slip ups? If you have you could be having delayed reactions to those rather than to what you just ate. It is a good idea to delete soy and dairy for now to see if those are an issue. Also make sure you are doing all you can at home to be safe. Dedicated gluten-free toaster, strainer, condiments, nut butters etc if you share a home with gluten eaters. Avoid restaurants and processed food for a while also to make sure you are not getting cross contamination from those and so that you have the most control you can about how processed your food is. If you go with mostly whole unprocessed foods that will help you heat the fastest.

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sounds like you have a pinch of leaky gut syndrome. your stomach is not fully healed. imagine an inflamed belly you need to soothe it. certain foods even in the gluten free diet can be irritating. avoid salt, refined sugar, carbonating drinks, heavy meats, raw vegetables. you need to heal your gut. take L- glutamine 1 hour before breakfast and 1 hour before dinner. after eating take 3 papaya tablets. take a multivitamin (i would recommend childrens gummy gluten free vitamins because adult vitamins have a higher dosage of iron which can make you constipated and were trying to f lush your system out faster) after two weeks take a probiotic (in a capsule not yogurt stay away from dairy for now) for 2 weeks. if the probiotic makes you feel sick (a definite sign of an inflamed gut) and wait another two weeks before trying it again. your body needs to heal. this sounds silly but take a hot bath. its like putting ice on a wound it will soothe your digestive system and will soothe the stress of daily life and the disease. drink hot tea at least once a day i recommend chamomile and ginger herbal tea. eat plain for 2 weeks. plain rice with steamed vegetables, eat rice chex like their chips for a snack, eat only cooked vegetable, stay away from refined sugar. this is only the healing diet. after 2 weeks introduce heavier (make sure their gluten free) foods and make sure the meats do not have antibiotics in them because that destroys your gut it doesn't heal it. sip on cold water. they put ice on swollen wounds correct? well stomach is inflamed so i would believe on sipping on cold water but not drinking large quantities of cold water for its bad for digestion. when drinking with or after meals drink room temperature water. its time to take your life back. i hope this helped

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    • As your vitamin d and iron levels are low it suggests celiac disease because if I am not wrong ,your iron levels is low without any reason.  To rule out confusion you should go for celiac gene test. Because if your gene test is positive then you should go for  biopsy of small intestines to confirm the diagnosis about celiac disease.   I also have heaviness,nausea and various other symptoms I am on gluten diet since one year and my gene test is positive for celiac disease and symptoms also suggest.  So, according to my knowledge your all symptoms will get better after you start gluten free diet if you have celiac disease or gluten sensitivity.   Best of luck! 
    • I would avoid those "noodles" starches = gas right now.
      I avoid most stuff like cabbage, broccoli in all but the smallest amounts (1 leaf or 2-4 sprigs) and cook til mush. I found higher density vitamin greens to be best to avoid wasting the room I had for food, stuff like spinach, kale, butter leaf, romaine all have much higher ratios of vitamin A and K then other greens with less sugar, starches, carbs. So you can cram more in there.

      Soups, during flares, I find using meat and herbs to flavor them best, I got a Pots de Herb blend that is nice from The Spice House, tested gluten free for me. But gentle herbs instead of spices...think of Italian and french cuisines. Bit of oregano, basil, rosemary, thyme, etc. Avoiding peppers, spices, and going very limited to no garlic and onions. Funny fact they make bonito flakes (dried fish) like Eden Foods, that makes a good fish flavoring if you boil them into water. Not now but later you can do this with coconut secret aminos,  wakame, or kambu for a asian fish stock for soups.

      I would seriously suggest trying eggs...they have been my savoir for flares, I just cook them soft with almond milk in them in a microwave so they are moist...and soft.

      I treat myself about once a month with either canned tuna, salmon, or millers crab meat (the real stuff), I found the crab easiest to digest and a super strong flavor in soups or with eggs.

      But again step back and say "I will try this for the first week" "Try this the second week" etc. Step by step on how you will try stuff, I know you want to jump to it and try to see what all you can eat but you have to space it and take it every few days for your testing of yourself to be accurate.

      Simple foods, the fewer ingredients the better, give yourself a low single digit number and stick to it so you do not get overwhelmed.
    • I think turkey would be great!  I am sort of thinking you might just want to do a sort of bland diet - as if you were getting over the stomach virus.  So a simple chicken soup with some cooked veggies like carrots and green beans or peas - you can then put it over rice or rice noodles if you want.  I like your idea of staying away from dairy, etc.  You can do that for a few weeks.   Grill the chicken on the grill or cook with a little olive oil in a pan - you can get a nice brown on the outside that adds a lot of flavor.  then put  little water in the pan and boil it and scrape the bottom and dump that in with the rice or veggies that are cooking.  You can throw that chicken in your soup/ rice.  If you cook fresh spinach in things - it can add a lot of spinach flavor.   I think cooked fruits or veggies are usually the easiest to digest.  But really keep it to a few things for a couple of weeks then add then when you are feeling a bit better.
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