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alicewa

Is The Autoimmunity Always There, Even Once Gluten Free?

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The questions may sound confusing. But what I'm trying to find out is if I'm still having damage to my gut, even though I'm strictly on a gluten free diet. My doctor told me that over 50% of celiacs don't make a full recovery, even when on a strict gluten free diet, which is the reason for the vaccine.

Sometimes I wonder if the immune system may 'more mildly' continue to attack the lining of the small bowel or cause inflammation and elevated antibody levels and they just increase by a lot once gluten is introduced.

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The number of people with celiac disease who do not recover 100% is partly a result of the ignorance of the medical community about the disease. The longer you go undiagnosed, the more damage that is done.

I have been gluten-free for more than eleven years, but I will never recover 100%. Years of malabsorption damaged my bones, and while my osteoporosis is not getting worse, it will never go away.

My intestines are fully healed, and my health is good. But I know that I can never, ever eat gluten again.

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I think part of the problem is that it's too hard to eat truly gluten-free unless you avoid all processed foods and never eat out. The stuff is everywhere. There's decent evidence that some celiacs are casein-sensitive too, and I wonder about casein triggering low levels of autoimmunity.

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