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melissa222

Kids' Science Project

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  1. 1. What were your primary presenting symptoms at what you view as the onset of your illness?

    • Psychiatric. i.e. depression, anxiety, panic attacks, psychosis or schizephrenia
    • Digestive issues i.e. GERD, reflux, diarrhea, constipation, bloating
    • Neurological i.e. headaches, visual disturbances, brain fog, lesions, ataxia, movement disorders
    • Other autoimmune disease
    • Muscular i.e. spasms, heart disease, arrythmias, muscle twitching or fasciculations, muscle wasting
    • Cancer
      0
    • Reproductive issues i.e. infertility, miscarriages, cysts, hormonal problems, PMS/PMDD/painful menstrual cycles
    • Sleep disturbances and/or Fatigue
    • Other-please list
    • Nutritional Deficiencies
  2. 2. How long did you seek medical care before gluten was recognized as the culprit?

  3. 3. Who made you aware that gluten was the culprit for your or your loved ones medical problems?

    • Self-research
    • Physician
    • Friend or family member
    • Other - please list
      0


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A few more questions because the survey only allowed 3 questions.

4) How many physicians did you visit on your quest for a cause? A. Only one B. Two C. Three D. Four E. Other F. Lost count!

5) After strictly removing gluten from the diet, when was improvement in symptoms first noticed? A. 1-2 weeks B. 2-4 weeks C. 1-2 months D. 2-4 months E. 4-6 Months F. >6 months G. Symptoms did not improve after removing gluten

Thank you to all who participate! This is for my first grade twins science project. It will be on display and will hopefully make those who view it aware. If you are comfortable please list specific symptoms under the different categories. I am not using names, just going to compile the data and report it as graphs. It's a first grade project so it will be something that my six year olds will be presenting. Thanks again to all who participate!

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I started out with extreme tachycardia. I was in the emergency room twice with a heart rate over 180. I also had extreme fatigue and later came the unrelenting reflux. I saw my PCP to many times to count. I then found an endocrinologist since I didn't think my PCP was managing my hashimoto's well. Through my endo it was discovered that I didn't convert my T4 meds well so I was started on T3 meds in addition to my T4. She also did full iron tests and tested my ferritin levels. The were rock bottom. I saw her exclusively every 3-4 months for the next 1 1/2 years for my low ferritin and thyroid. I wasn't able to tolerate iron supplements due to the reflux. I decided to research on the internet hashimoto's disease/low ferritin/iron deficiency and that's what lead me to celiac. My endo is the one that ran the test for me. When it came back positive I went to a gastroenterologist for an EGD and biopsy.

question # 4: D (three)

question #5: B (2 to 4 weeks) My reflux was the first thing to go!!

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A few more questions because the survey only allowed 3 questions.

4) How many physicians did you visit on your quest for a cause? A. Only one B. Two C. Three D. Four E. Other F. Lost count!

5) After strictly removing gluten from the diet, when was improvement in symptoms first noticed? A. 1-2 weeks B. 2-4 weeks C. 1-2 months D. 2-4 months E. 4-6 Months F. >6 months G. Symptoms did not improve after removing gluten

Thank you to all who participate! This is for my first grade twins science project. It will be on display and will hopefully make those who view it aware. If you are comfortable please list specific symptoms under the different categories. I am not using names, just going to compile the data and report it as graphs. It's a first grade project so it will be something that my six year olds will be presenting. Thanks again to all who participate!

My answers- 4.)E 5 doctors- 1 Pain dr, 3 internal medicine drs, 2 neurologist since 1/09

5.)Just started the strict NO GLUTEN diet today. I am very hopefull!

Extra symptoms- Pain for no reason. Sore muscle skeletal pain. MIGRAINES THAT WOULD NOT LEAVE STARTED ALL MY SYMPTOMS.

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4. Too many to count.

5. B although I did notice some difference in 1-2 weeks but it was years before I was fully healed.

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4. Lost count

5. 1-2 weeks

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This is for my first grade twins science project.

Kids have to do science projects in first grade? wow! I think I was just figuring out how to read then.... :)

4) A

5) C

I debated filling out this survey because from what I've read on this forum, my case is a bit of an anomaly. I went from perfectly healthly, to deathly ill with C.Difficile, to Celiac Diagnosis, to healthy again (though perhaps not perfectly!) within about 4 months. I consider myself to be VERY lucky.

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4) b

5) a

Although I went to a very well known celiac doctor it was 4 months after I started the gluten-free diet. So my testing was negative. But a doctor didn't figure it out for me, my sister did. One of the doctors I went to said I was fine, and had the best HDL/LDL cholesterol scores they had seen. Probably because I wasn't absorbing fats due to gut inflammation. The pain in my gut didn't give him a clue.

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4) How many physicians did you visit on your quest for a cause? A. Only one B. Two C. Three D. Four E. Other F. Lost count!

5) After strictly removing gluten from the diet, when was improvement in symptoms first noticed? A. 1-2 weeks B. 2-4 weeks C. 1-2 months D. 2-4 months E. 4-6 Months F. >6 months G. Symptoms did not improve after removing gluten

4. E (it was 6 doctors until diagnosis!)

5. I'm at 3 months and still dealing with symptoms...

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A few more questions because the survey only allowed 3 questions.

4) How many physicians did you visit on your quest for a cause? A. Only one B. Two C. Three D. Four E. Other F. Lost count!

It depends on how you look at it, I've seen a psych dr for the last 4 years, I saw my regular dr about neuropathy in my wrist/hands, who refered my to a neurologist, I moved and saw my current primary/gi dr who somewhat tested my for celiac, and an allergist to test for food allergies. So that is 5. However, I saw the first 3 dr's before I had considered celiac, it just seemed that I was unlucky health wise. So I only saw 2 dr's once I figured out gluten was the cause. I don't know which number is more accurate.

5) After strictly removing gluten from the diet, when was improvement in symptoms first noticed? A. 1-2 weeks B. 2-4 weeks C. 1-2 months D. 2-4 months E. 4-6 Months F. >6 months G. Symptoms did not improve after removing gluten

A

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4. Too many to count during 30 years of illness and resulting chronic pain. :rolleyes: BUT I FIGURED IT OUT MYSELF.

5. C

I have so many symptoms still to resolve (and it would take some time to list them all but examples that your survey did not list: hair loss, burning sensations, bone/joint pain) and I am 10 months gluten free. I expect it will take me several years. My doctor told me he has never seen celiac manifest itself as it did in me. I told him he should come on here and read some people's signature lines of symptoms if he wants a real education.

Your survey is very interesting and I am glad to see that Celiac awareness is beginning as early as the first grade! :)

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My doctor told me he has never seen celiac manifest itself as it did in me. I told him he should come on here and read some people's signature lines of symptoms if he wants a real education.

I agree completely. Too bad they don't do that maybe then so many of us wouldn't be labeled hypochodriacs! Plus they could learn what they need to tell their patients to keep them safe rather than just saying 'don't eat gluten, bye'.

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question #4 - E - no doctors; I have many diagnosed relatives so when I started having frequent GI symptoms I went gluten-free and got better. I knew better (from my family) than to trust doctors on this one.

Question #5 - A - 1-2 weeks

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4) How many physicians did you visit on your quest for a cause?

B. Two

5) After strictly removing gluten from the diet, when was improvement in symptoms first noticed? A. 1-2 weeks

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I just realized that my first three poll questions didn't register. I did it again and they are there now.

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I'm answering for my daughter . . .

Question 4: 2 Doctors (her Pediatrician who then sent us onto a Ped GI)

Question 5: Symptoms improved right away (1-2 weeks) but took about 10 months to resolve completely)

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A few more questions because the survey only allowed 3 questions.

4) How many physicians did you visit on your quest for a cause? A. Only one B. Two C. Three D. Four E. Other F. Lost count!

5) After strictly removing gluten from the diet, when was improvement in symptoms first noticed? A. 1-2 weeks B. 2-4 weeks C. 1-2 months D. 2-4 months E. 4-6 Months F. >6 months G. Symptoms did not improve after removing gluten

Thank you to all who participate! This is for my first grade twins science project. It will be on display and will hopefully make those who view it aware. If you are comfortable please list specific symptoms under the different categories. I am not using names, just going to compile the data and report it as graphs. It's a first grade project so it will be something that my six year olds will be presenting. Thanks again to all who participate!

I answered Other under symptoms because mine (anemia, weight loss) wasn't listed.

4) I went to 2 specialists - the first one diagnosed me with cancer!

5) It took about 9 months for my iron levels and weight to come back up. It took 18 months to get my Celiac Panel bloodwork numbers back to nearly normal. (still working on that one!)

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4) How many physicians did you visit on your quest for a cause? A. Only one B. Two C. Three D. Four E. Other F. Lost count!

5) After strictly removing gluten from the diet, when was improvement in symptoms first noticed? A. 1-2 weeks B. 2-4 weeks C. 1-2 months D. 2-4 months E. 4-6 Months F. >6 months G. Symptoms did not improve after removing gluten

4. Lost count!

5. A for GI symptoms, F for psych/insomnia, G for autoimmunity

I love seeing children exposed to science this young. I hope they have a wonderful time presenting their study!

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A few more questions because the survey only allowed 3 questions.

4) How many physicians did you visit on your quest for a cause? A. Only one B. Two C. Three D. Four E. Other F. Lost count!

5) After strictly removing gluten from the diet, when was improvement in symptoms first noticed? A. 1-2 weeks B. 2-4 weeks C. 1-2 months D. 2-4 months E. 4-6 Months F. >6 months G. Symptoms did not improve after removing gluten

Thank you to all who participate! This is for my first grade twins science project. It will be on display and will hopefully make those who view it aware. If you are comfortable please list specific symptoms under the different categories. I am not using names, just going to compile the data and report it as graphs. It's a first grade project so it will be something that my six year olds will be presenting. Thanks again to all who participate!

4) - Lost count. I remember about 12 years ago being given an epi pen because they thought I had an allergy to MSG :blink:

5) First day! One of my symptoms was severe GERD which I was medicated for for years. Removing gluten has meant I have never had GERD medication since - that was almost a year ago!

One of my other symptoms is Intussusception, I had it 3 times before going gluten free and I had no idea what was causing it. Since going gluten free I've had it twice and it has been the only two times I ingested gluten - so I know now that is exactly what was causing it.

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Thank you everyone for the responses so far! I hope they keep coming! If you know of anyone who may want to help out please pass the link along. I am trying to spread awareness and educate others as much as I can. I honestly thought I was dying and that I would not live to see my kids grow up before I figured out what was going on with me. I was having arrythmias, I had no energy at all, all the muscles in my body were in constant spasm - even my tongue hurt! My muscles were twitching constantly - doctors were useless. Thyroid problems, liver damage, etc. They either dismissed it as fibromyalgia or were looking for some rare disease. After just 10 1/2 days things started to turn around. I've only been gluten free since October 4th, and one month ago today is when I started to feel the cloud lift. My kids do not have celiac, but 2 of them carry the same HLA DQ8 gene as I. Probably not a coincidence that they are my 2 ADD kids. They've been gluten free for one week and are already telling me how much better they feel. I want to reach however many people I can because had someone told me about gluten it would have saved me from a lot of physical damage and distress, and my kids years of suffering from ADD. Since it is science fair time, I thought this would be a great opportunity to spread awareness and educate kids. Thanks to everyone who participates!

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A few more questions because the survey only allowed 3 questions.

4) How many physicians did you visit on your quest for a cause? A. Only one B. Two C. Three D. Four E. Other F. Lost count!

5) After strictly removing gluten from the diet, when was improvement in symptoms first noticed? A. 1-2 weeks B. 2-4 weeks C. 1-2 months D. 2-4 months E. 4-6 Months F. >6 months G. Symptoms did not improve after removing gluten

Thank you to all who participate! This is for my first grade twins science project. It will be on display and will hopefully make those who view it aware. If you are comfortable please list specific symptoms under the different categories. I am not using names, just going to compile the data and report it as graphs. It's a first grade project so it will be something that my six year olds will be presenting. Thanks again to all who participate!

4. F Lost count

5.C for digestive symptoms, neurological symptoms did not improve until I went soy free.

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