Jump to content
  • Sign Up
0
Macbre

Celiac & POTS

Rate this topic

Recommended Posts

I was just wondering if anyone else has both Celiac's and POTS (Postural orthostatic tachycardia syndrome)......I don't think they are related. It seems you can get POTS from a viral infection, which I had approx 3 years ago, but I was wondering if anyone else has it. I'm just curious to know is if you have both if the symptoms are worse when you get glutened. When I get glutened my symptoms are mainly heart related. Does anyone else have this?

Share this post


Link to post
Share on other sites

I've had POTS since I was a kid. I don't have (active) Celiac. Both my kids do. Neither of them have POTS though.

Share this post


Link to post
Share on other sites

I have severe ortho static hypotension and severe tachycardia ( up to the 180s) but I have cardiomyopathy and my cardiologist does not believe they are related

Share this post


Link to post
Share on other sites

Hi there!

I was actually diagnosed with POTS back in 2005 then Celiac in 2010. My doctors believe my POTS was caused by having untreated Celiac for years. When I went gluten free most of my POTS symptoms went away, but I can tell as soon as I get glutened as I will start having heart issues within 15-30 minutes after eating. I never had the traditional GI issues prior to my Celiac diagnosis...all of my symptoms were heart and ANS. Now though I have the GI symptoms along with the POTS symptoms if I get glutened. :(

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

×