Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Bad Symptoms After Going gluten-free


Tarantula44

Recommended Posts

Tarantula44 Apprentice

Hi, I'm new and have posted a few times...I have read there can be a great deal of discomfort at the beginning of a gluten and casein free diet. I only went off gluten one week ago (dairy as of two days ago) and have been feeling extra fatigued, have had headaches, lightheaded, and have been having pain and discomfort in my stomach and throat. I've had GERD for a while with occasional mild hiatal hernia that comes and goes for the past three years, but since I've gone off gluten the hiatal hernia is back and the GERD symptoms are pretty bad. Is this a normal reaction? Is hiatal hernia associated with gluten? Has anyone else had this happen? Thanks for any insight! t.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Eat simply.

Some of the gluten free substitutes eaten as replacements can be rough on you until you figure out which ones they are.

Link to comment
Share on other sites
mushroom Proficient

Avoid processed foods, shop the edges of the supermarket for fruits, veggies, meat, fish, venture into the middle only for rice. nuts, and gluten free pasta. Don't eat soy or corn or dairy. There, that's the mantra! :lol:

Yes, GERD is a symptom of celiac. And when we go off gluten we often suffer from withdrawal which makes us feel worse than before. You have to stick it out for a couple of weeks and get through to the other side :) I would think hiatal hernia would be made worse if you were still suffering from bloating and gas from the gluten - don't know because I don't have one.

Link to comment
Share on other sites
Tarantula44 Apprentice

Thanks to both of you. I am eating really simply, I haven't had any of the gluten free foods...no sugar, soy, eggs or nightshades either (I haven't eaten these in years). I have always eaten whole foods, never processed and always cook my own meals from scratch. I guess my question is do your existing symptoms from gluten get exacerbated for a little while when going off of it? That would explain this. I also have crazy anxiety. Ugh...I hope this clears up soon. I definitely will stick with it. I'm in for the long haul.

Link to comment
Share on other sites
Skylark Collaborator

You may be going through a little withdrawal. Gluten and casein are processed into opiate peptides in your digestive system and if you had intestinal damage, they were getting into your bloodstream. Suddenly taking them away can be a bit of a shock to the system as you basically go through a mild narcotic withdrawal. I bet you're craving them too. Hang in there and you will feel much better in a few weeks as the peptides work themselves back out of your body.

Link to comment
Share on other sites
Richie1 Rookie

After going gluten free about 8 weeks ago I had symptoms that I hadn't had before ( extreme fatigue,brain fog and breathlessness) my original symptoms had always been digestive.

As long as you stay on the gluten free it will get better just stick with it just remember how ill you felt before .You will get to know what foods cause you problems listen to your body it knows what it needs and what it doesn't ,I take a muti-vitamin supplement everyday and digestive enzymes and feel better than ever.

Hope you start to feel the benefits soon.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,091
    • Most Online (within 30 mins)
      7,748

    Grammar B
    Newest Member
    Grammar B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...