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lemontree1

Anger Issues

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My 11 year old sometimes has horrible outbursts, screaming and yelling and sometimes even banging her head against things. A year ago I thought it was part of her growing up, and felt sorry she had to go through such a horrible trial. Now I'm thinking this really is her reaction to gluten.

I was diagnosed with Celiac Disease and a wheat allergy about a month and a half ago. I asked to have my children tested and they only ran one blood test on each child, which all came out negative. I'm really tired of fighting doctors over these issues and what I want, so I decided to give the two older children a choice to see if they notice a difference in any of their issues. They both decided to go for it. The only issue I've noticed with the 11 year old is the angry outbursts, and she is a little overweight, carrying it in her belly (I don't even know if either are really symptoms. The 8 year old has had tummy issues and bowel issues on and off, plus she is skinny and hasn't grown as fast as her sisters (She wears about the same size clothes as her 5 year old sister). The five year old sometimes gets canker sores, but with her I can't press the issue.

My husband thinks if I talk about wheat causing any problems, I'm going to cause our kids to be hypochondriacs. He has GI issues that I think are wheat caused as well, but he won't listen to me about it, and believes his only issue is an inherited weak sphincter, causing acid reflux. So, he doesn't like the fact there are three of us gluten free. Maybe he's just in denial. I know we're all tired of fighting with MY medical problems, but I really don't want my children to go through any of the stuff I've had to over the years, when it can be prevented.

Back to the 11 year old. She has actually been really sweet and almost no outbursts the last couple of weeks. A couple days ago, she started having outbursts again. I only realized this morning that it was about the same time I started having anxiety, rapid heartbeat and more extreme acid reflux/swollen tongue. It seems like a pretty strong correlation that we have been getting cross contaminated lately. I think the rice I bought (bulk, I know it was stupid) had some flour or something in it. I ground it up and used it to make bread and pizza the last few days.

I'm going to scrub out my grain mill really well. I bought some new grains-- bulk but in 25lb bags this time so there's no risk of CC from the other bulk items. I'm going to have to be a lot more careful now. I really hate going through all of this.

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I know what you mean about fighting with doctors--I'm trying to get my initial diagnosis, and it's difficult.

I can't imagine how hard it is to feed a family when some are celiac and some are not, but rest assured you're doing a great job as a mom. Good luck to you!

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If you're the one doing the cooking, I'd just start making every meal gluten free...family should be supportive of you. Homemade gluten free stuff isn't that difficult to make taste good. Your older kids want to try it, will your youngest really be able to tell the difference if no one makes a big deal out of it?

Maybe you shouldn't tell your kids that their problems are caused by wheat, I don't know. But at the very least you can tell them that not eating it anymore should make everyone feel a little better. If it clears up their tummy troubles, or other problems...thats fantastic. You can teach them about how to eat gluten free outside your home because it's healthier.

Maybe your husband is in denial...so much of what we normally eat is wheat based. If he doesn't have issues eating wheat, that means he can keep eating everything and anything...if he has seen the struggles you've gone through trying to become gluten free, i think that would push him even further into denial about the possibility of it being his problem as well.

But can anyone get mad at you for changing your family's diet to make them healthier? I don't think so. If you make that the focus, and it just happens to be gluten free because thats what YOU need to be healthy...thats just better for everyone right?

By the way, when I've eaten gluten I get extremely irritable and I'm prone to wicked tempermental outbursts that are completely outside my control. There is no reason your daughter isn't the same.

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Did you use the grain mill for wheat or other gluten containing grains prior to going gluten free? This may well be another source of cross contamination. I would be hesitant to use it. I don't know how well they can be cleaned.

The first sign, aside from a belly ache, my almost 7 year old has when he accidently gets gluten is raging temper tantrums. Before gluten free it was an almost daily occurance, but very rarely has them unless he gets glutened.

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I don't have a grain mill but I think it might be very iffy. I know they're really expensive. If you want to keep it, I think I'd be tempted to clean it as thoroughly as possible and then run a pound or more of the cheapest white rice I could find through it. And then throw that white rice flour away. Still iffy but might work depending on how sensitive you are.

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Yes! It most certainly could be. I used to have horrible anger episodes when I was on all of my intolerance foods. I remember once I even took a knife to my mom's bed and stabbed the crap out of it, and I used to fanasize and seriously consider stabbing her. (That sounds insane, don't worry I'm not like that now lol)

I also used to bang my head against walls and hit my head really hard repeatedly. It seemed like something I could not prevent, I just had to do it and it felt really good to do. Have not had a single urge to do that since a year and a half ago when I went off of gluten, and other intolerances like dairy, corn, soy, eggs.

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I had anger issues too. Internal seething anger for no reason at all...and sometimes (cringe) anger outbursts for no reason at all. All gone when gluten free.

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I have a 12 yo who we are trying to get a diagnosis for. Doctors are very frustrating. However, we are going gluten free regardless as soon as the last test is ordered. We did a gluten free trial of two weeks and about 7 days in, I had a very sweet 12 year old who stopped fighting with her brother, listened to reason, did her chores without complaint and had less stomach aches. We were instructed to put her on gluten because she is small and has delayed puberty and the endocrinologist would like her scoped in order to prove to me that she needs to be on prilosec and to make me feel better by getting a negative biopsy for Celiac. :unsure: They want her on high dose prilosec but I am convinced that she is gluten intolerant. So to your question about anger: YES. My daughter is back to throwing major tantrums. She "spins in circles" when she is trying to discuss something (and is yelling). She recognizes this is gluten related. She told me last night that she really wants the biopsy (we will see if they grant it) and then she can't wait to go gluten free because she felt sooooo much better. So I say your anxiety and the angry outbursts are gluten related.

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Let me add something that is very helpful that one of the moderators here suggested. Make a list of your kid's medical issues (physical and emotional) and cross them off as they disappear on a GFD. We did and my husband (who is a skeptic) was really shocked by what went away after just two weeks and what came back on a glutenous diet.

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    Jefferson Adams
    Celiac.com 06/18/2018 - Celiac disease has been mainly associated with Caucasian populations in Northern Europe, and their descendants in other countries, but new scientific evidence is beginning to challenge that view. Still, the exact global prevalence of celiac disease remains unknown.  To get better data on that issue, a team of researchers recently conducted a comprehensive review and meta-analysis to get a reasonably accurate estimate the global prevalence of celiac disease. 
    The research team included P Singh, A Arora, TA Strand, DA Leffler, C Catassi, PH Green, CP Kelly, V Ahuja, and GK Makharia. They are variously affiliated with the Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Lady Hardinge Medical College, New Delhi, India; Innlandet Hospital Trust, Lillehammer, Norway; Centre for International Health, University of Bergen, Bergen, Norway; Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Gastroenterology Research and Development, Takeda Pharmaceuticals Inc, Cambridge, MA; Department of Pediatrics, Università Politecnica delle Marche, Ancona, Italy; Department of Medicine, Columbia University Medical Center, New York, New York; USA Celiac Disease Center, Columbia University Medical Center, New York, New York; and the Department of Gastroenterology and Human Nutrition, All India Institute of Medical Sciences, New Delhi, India.
    For their review, the team searched Medline, PubMed, and EMBASE for the keywords ‘celiac disease,’ ‘celiac,’ ‘tissue transglutaminase antibody,’ ‘anti-endomysium antibody,’ ‘endomysial antibody,’ and ‘prevalence’ for studies published from January 1991 through March 2016. 
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    Celiac.com 06/15/2018 - There seems to be widespread agreement in the published medical research reports that stuttering is driven by abnormalities in the brain. Sometimes these are the result of brain injuries resulting from a stroke. Other types of brain injuries can also result in stuttering. Patients with Parkinson’s disease who were treated with stimulation of the subthalamic nucleus, an area of the brain that regulates some motor functions, experienced a return or worsening of stuttering that improved when the stimulation was turned off (1). Similarly, stroke has also been reported in association with acquired stuttering (2). While there are some reports of psychological mechanisms underlying stuttering, a majority of reports seem to favor altered brain morphology and/or function as the root of stuttering (3). Reports of structural differences between the brain hemispheres that are absent in those who do not stutter are also common (4). About 5% of children stutter, beginning sometime around age 3, during the phase of speech acquisition. However, about 75% of these cases resolve without intervention, before reaching their teens (5). Some cases of aphasia, a loss of speech production or understanding, have been reported in association with damage or changes to one or more of the language centers of the brain (6). Stuttering may sometimes arise from changes or damage to these same language centers (7). Thus, many stutterers have abnormalities in the same regions of the brain similar to those seen in aphasia.
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    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
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    To that end, a research team recently set out to try to get some information about the frequency and importance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. The research team included Shafinaz Hussein, Tatyana Gindin, Stephen M Lagana, Carolina Arguelles-Grande, Suneeta Krishnareddy, Bachir Alobeid, Suzanne K Lewis, Mahesh M Mansukhani, Peter H R Green, and Govind Bhagat.
    They are variously affiliated with the Department of Pathology and Cell Biology, and the Department of Medicine at the Celiac Disease Center, New York Presbyterian Hospital/Columbia University Medical Center, New York, USA. Their team analyzed results of TCR-GR analyses performed on SB biopsies at our institution over a 3-year period, which were obtained from eight active celiac disease, 172 celiac disease on gluten-free diet, 33 RCDI, and three RCDII patients and 14 patients without celiac disease. 
    Clonal TCR-GRs are not infrequent in cases lacking features of RCDII, while PCPs are frequent in all disease phases. TCR-GR results should be assessed in conjunction with immunophenotypic, histological and clinical findings for appropriate diagnosis and classification of RCD.
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    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023

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