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Questions On Coping In General


josh052980

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Lisa Mentor

I think you & Lisa just misunderstood each other. That's all I was trying to clear up.

Yes, thank you Karen, apparently I misunderstood the statement. A lesson learned not to skim a post before commenting :D


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sandsurfgirl Collaborator

I think you & Lisa just misunderstood each other. That's all I was trying to clear up.

I think we did too. Sorry Lisa. I am in a foul mood today too because I've been nauseous for weeks. I posted a thread about it.

Let's get back to the original subject. How do you cope in general? I could use some more ideas because this nausea is obviously making me a grouch. LOL

kareng Grand Master

I think we did too. Sorry Lisa. I am in a foul mood today too because I've been nauseous for weeks. I posted a thread about it.

Let's get back to the original subject. How do you cope in general? I could use some more ideas because this nausea is obviously making me a grouch. LOL

Well...good girls! I remember SSG to be a reasonable person, so I knew she didn't think the evil gluten had sharp teeth and was burrowing into her hands in order to attack her gut. ( might make a good horror movie?)

SSG - you have extra to handle. I suppose you can be grouchy if you want. I'm actually quite grouchy about my family & Thanksgiving. I'm wondering if it's to late to go to Disney.

I do try to find something funny when I'm grouchy or depressed. I have subscribed to a few things on Facebook just to get pics of silly animals or things like that. Some days I don't even look at them but they are there if I can't find anything else.

sandsurfgirl Collaborator

Well...good girls! I remember SSG to be a reasonable person, so I knew she didn't think the evil gluten had sharp teeth and was burrowing into her hands in order to attack her gut. ( might make a good horror movie?)

SSG - you have extra to handle. I suppose you can be grouchy if you want. I'm actually quite grouchy about my family & Thanksgiving. I'm wondering if it's to late to go to Disney.

I do try to find something funny when I'm grouchy or depressed. I have subscribed to a few things on Facebook just to get pics of silly animals or things like that. Some days I don't even look at them but they are there if I can't find anything else.

Yeah it's been a rough time that's for sure. Glad we cleared that up!

Are you talking So Cal Disney or Florida? We have passes and we go a lot.... when I'm well that is.

kareng Grand Master

Yeah it's been a rough time that's for sure. Glad we cleared that up!

Are you talking So Cal Disney or Florida? We have passes and we go a lot.... when I'm well that is.

Don't really care! Both are good! Just want to run away! Somewhere where someone else can make me food!

Lisa Mentor

Don't really care! Both are good! Just want to run away! Somewhere where someone else can make me food!

Be here by Friday for our T-day dinner. ;)

kareng Grand Master

Be here by Friday for our T-day dinner. ;)

Thanks!


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sandsurfgirl Collaborator

Don't really care! Both are good! Just want to run away! Somewhere where someone else can make me food!

Disney is so good about gluten free too!

Marilyn R Community Regular

I'd have to have a xanax to deal with Disney World. :D (Remembering when some chick with a stroller knocked my mom's walker out from under when rushing to the fireworks.) I wanted to throttle her!

sandsurfgirl Collaborator

I'd have to have a xanax to deal with Disney World. :D (Remembering when some chick with a stroller knocked my mom's walker out from under when rushing to the fireworks.) I wanted to throttle her!

LOL! Disney is my happy place. We go a lot with our passes.

Marilyn R Community Regular

LOL! Disney is my happy place. We go a lot with our passes.

Hope you have a wonderful time! :D

sandsurfgirl Collaborator

Hope you have a wonderful time! :D

LOL! :P We never go near the place Thanksgiving weekend though. It's the busiest weekend of the year and black Friday is the very busiest day of the year there. I think they usually get to capacity. Craziness!

DerpTyler Newbie

While I don't agree with everything in the above post, YES gluten from shampoo can get into your mouth while in the shower. It's easy to remove that aspect, so it's no longer a possibility when you get ill from other sources. :)

lol have you ever tasted shampoo? haha that stuff is nasty :P last thing i would do is swallow it

notme Experienced

about 6-8 months i went a little nuts, thinking i was "all better" AND i overdid it with stuff that bothers me less and less as time goes by: nightshades, soy, dairy, etc. also thinking that just because they SAID it was safe doesn't mean it is: my blood pressure meds - called the manufacturer and they said the drug was safe so i took them. ran out for a week (i know, bad arlene) and my guts calmed down. turns out the capsule the drug is in is made of some kind of starch nobody could tell me what it was made of. so now i take the drug out of the capsule (called pharmacy and they said this was ok to do) and i'm fine with it. annnd the hand sanitizer/lysol wipes thing: went camping, was miserable - now i make sure i wash my hands with (gluten-free) soap and rinse with h2O if we camp. also separate my gluten free food in my own cooler :)

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  • Posts

    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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